-------------------- Seeking renewed health & vitality. --------------------------------- Do not take anything I say as medical advice - I am NOT a dr! Posts: 830 | From TN | Registered: Aug 2007
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Angelica
Unregistered
posted
I thought I had no bart rashes but then remembered a strange scratch that was around for a long time and then left when I was on antibiotics. I have done 3 bart tests including a Fry blood smear and all have been negative but bart is still highly suspected.
My CD57 was high once and became a bit lower after some treatment.
I was begining to think since I didnt have the rash then maybe I wasnt effected by the Bart severly.
I was trying to make sense of treating the Bart and then the Lyme.
Complicated stuff
Anyone know about the CD57?
-------------------- PROUD : )
Dx: Lyme & Bart April 2008. currently on plaquanil, Roxid and Sulfameth. Posts: 89 | From Manalapan, NJ | Registered: Feb 2008
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ByronSBell 2007
Unregistered
posted
Out of 28 current patients at the clinic 26 have bartonella...
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kelmo
Frequent Contributor (1K+ posts)
Member # 8797
posted
Me.
Posts: 2903 | From AZ | Registered: Feb 2006
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
+Bartonella No rash
Posts: 3975 | From usa | Registered: Aug 2007
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Alv
Unregistered
posted
never had a rash and have neurolyme and all the coinfections.
My son had never had a rash.Only recall a couple of pimples that he said are itchy on his leg.
He has neurolyme and , babesia microti positive by igenex, mucoplasma and bartonella .Send him to Pediatritian ( ignorant) told me it might be alergic to penuts.One year later spread in HIS HEAD and has white matter on his head and he was lying in the floor with severe headaches .
Never saw a bulls eye rash on any of us.
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cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165
posted
moi
-------------------- "Say it straight simple and with a smile."
"Thus the task is, not so much to see what no one has seen yet, But to think what nobody has thought yet, About what everybody sees."
-Schopenhauer
pos babs, bart, igenex WB igm/igg Posts: 3156 | From Lyme limbo | Registered: Oct 2005
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TerryK
Frequent Contributor (5K+ posts)
Member # 8552
posted
Just to throw in another possibility, I was negative for bart via lab tests and had no rashes until I started doxy. Then I got the long red streaks on my side. I also have a ton of symptoms. My LLMD said there is no doubt, it is bart.
I'm now on levaquin for it and the streaks are fading. It seems like bart is a very difficult infection to figure out.
Terry
Posts: 6286 | From Oregon | Registered: Jan 2006
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13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Rianna
Frequent Contributor (1K+ posts)
Member # 11038
posted
Yep Positive Bartonella No Rash Rianna
Posts: 1172 | From UK | Registered: Jan 2007
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posted
No rash but I feel like mine is Bart. I have all the s & s of Bart. Although I am awaiting further testing.
Looking forward to getting SOME form of relief from all this crap for sure. As well as knowing it is NOT all in my head!
Posts: 109 | From San Antonio,Tx | Registered: May 2008
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I have baronella and no rash...feels like I have a sunburn...palms are hot...brain feels hot and inflamed...dianosed with lyme encephalitis. Brain does feel less heat since being on abx. I am taking 1500 mgs of flagyl and 50 mgs of azithromycin.
I am glad you asked this question. I wondered this myself.
Do you feel better with movement..but still get fatigued easily?
Take care,
-------------------- HopefulStill Posts: 8 | From Ohio | Registered: May 2008
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YOu wrote: "Do you feel better with movement..but still get fatigued easily?"
Ididnt really have a problem with Movement. My biggest problem was the Fatigue and weakness. To the point that holding down the brake peddle at a stop light would require using both legs.
One leg would get shakey and too weak to hold the brake that long.
I still dont feel any better yet, I have only been on Rifampin for a month now. Hope is comming.
N0o one knows anything new about the CD57 number?
Thanks all for replies- interesting to see the "normal" bart rash is not soo normal.
Proud to serve
-------------------- PROUD : )
Dx: Lyme & Bart April 2008. currently on plaquanil, Roxid and Sulfameth. Posts: 89 | From Manalapan, NJ | Registered: Feb 2008
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Before you say no rashes... and "for sure"....
Look at this link. I saw lots of skin manifestations that I wouldn't have thought were bartonella... but they were.
I have Lyme/Bart and have been taking 1500 mgs of Flagyl and 50 mgs of Azithromycin daily.
I started this on May 2nd. I have already seen some improvement.
I have Lyme ecephalylis and the hot/inflamed filling in my brain is better. I was falling frequently daily and haven't fallen in about 2 weeks. I was feeling air hunger and would get breathless very easily this has improved.
It is so important to be on the correct medication. I feel my doctor hit a homerun.
I have had Lyme for 2 years and just got diagnosed a little more than a month ago.
I went into denial thinking I was misdiagnosed because a doctors suggested I had MS, early Lupus, etc. I myself thought I had Lupus because I matche almost all the symptoms.
As I am seeing some improvements, I know that I was diagnosed correctly. Also the herxing proves to me that I have lyme.
I just wanted to let you know what medications are helping me since we share the same diagnosis.
Take care,
-------------------- HopefulStill Posts: 8 | From Ohio | Registered: May 2008
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Lyme CD57 Test THE CD-57 Striker Panel Test Our ability to measure CD-57 counts represents a breakthrough in Chronic Lyme Disease treatment.
It can be used to help determine how active the infection is, how well the treatment is working, and whether, after treatment ends, a relapse is likely to occur!
This is how it works: Chronic Lyme infections are known to suppress the immune system. The Lyme spirochete can affect all major cell types of the immune system, but it most clearly can impact a specific subset of the natural killer cells.
This is called the CD-57 subset. Just as in HIV infection, which suppresses T-cell counts, Lyme suppresses Natural killer cell count such as CD57. As in HIV infection, where abnormally low T-cell counts are routinely used as a marker of how active the infection is, in Lyme we can use the CD-57 count to indicate how active the Lyme infection is.
When Lyme is active, the CD-57 count is suppressed. We currently are having our tests run by LabCorp because published research on this test was based on their methods. At this lab, the expected range for the CD 57 count is above 60.
However, in the chronic Lyme patient, CD-57 counts are usually well below 60 and may be at risk with levels of 60-100.
This test can be run at the start of therapy, then every several months to document the effectiveness of treatment. One hopes to see a stable number or a rising trend over time.
When antibiotic therapy is finally at an end, if the CD-57 count is not above 60, then a Lyme relapse is more likely to occur.
Test interpretation: Low CD57 occurs in chronic Lyme or when the disease has been active for over 1 year. A review of the affects of other infections, only Lyme spirochetes lowers the CD57. Following is the criteria established by research.
Test interpretation: Low CD57 occurs in chronic Lyme or when the disease has been active for over 1 year. The count reflects the degree of infection. It is not a diagnostic test but is used as a marker for Lyme being active. Test done by LabCorp.
>200 is normal < 20 severe illness 0-60 is seen in chronic Lyme disease > 60 Lyme activity indicates improvement
Love ya, mom
-------------------- "Absence of evidence is not evidence of absence"--Carl Sagan Posts: 317 | From Kansas and New Jersey | Registered: May 2008
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