I have not been dx with anything, but lyme is a possibility.
I was bit around the last week of march 2008, and my first symptoms were right leg and arm numb, nausea, fatigue, and a general sick feeling.
My question is, can numbness and tingling be one of the first symptoms if the bite only took place a week before??
[ 31. May 2008, 02:12 AM: Message edited by: lea ]
Posted by CD57 (Member # 11749) on :
you bet! i would recommend getting to an LLMD (Lyme literate medical doctor) asap. There is a good one who comes to Malibu once a month from his Bay Area office. Post in seeking a doctor and someone will get back to you.
Posted by Tincup (Member # 5829) on :
Welcome Lea from California.
Sorry to hear you are feeling crummy.
Yes, it is very possible. Neck can swell, infection can be spreading.. and other causes.
CD 578934 had a great suggestion... always does.... to find a doctor ASAP who can help you in the early stages.
Let us know how you are doing... ok?
Feel better soon.
Posted by laurie sm (Member # 14584) on :
numbness was one of my first symptoms...My big toe was numb.Then nerve pain came next. Laurie
Posted by laurie sm (Member # 14584) on :
numbness was one of my first symptoms...My big toe was numb.Then nerve pain came next. Laurie
Posted by lea (Member # 15593) on :
Thanks for your responses. My regular doctor said numbness and tingling only happen in chronic lyme.
But after reading all these posts, it seems like lyme is different for everybody.
My doctor still signed off so I can get my blood sent to Igenex.
Posted by narrowpath (Member # 15086) on :
Yikes - that's BS. I had tingling and twitching (neuro symptoms) within a week of being bitten. It all depends on how quickly it reaches your CNS - it has absolutely nothing to do with some arbitrary "chronic" timeframe. In some people the bacteria seems to breach the blood-brain barrier much quicker, too.
Get to a LLMD ASAP and good luck! Don't wait for 4 months like I did being misdiagnosed!
Posted by lea (Member # 15593) on :
Thanks!!
Posted by richedie (Member # 14689) on :
It is weird though because those symptoms may be at the start of the problem and then subside over time and you may notice new symptoms. I know I started with the pain and tingling, feelings of limbs going numb, but neurological tests never showed anything so the Neurologist thought I was crazy. For me, that has calmed down and it is more pain in spots.
Posted by njlymemom (Member # 15088) on :
These symptoms can certainly be from lyme.
These were some of my first symptoms way back in 1984.
My young daughter also had numbness and tingling of her arms and legs as her first symptoms. She came home from school saying her leg was so numb she had trouble walking.
Then she had vision problems and fatigue.
No pain at all.
Unfortunately there are people who experience this and end up with an MS diagnosis.
It is sad that many are children. MS society claims that MS in children is on the rise - or is it!
Posted by lea (Member # 15593) on :
So far my neurologist thinks I am crazy as well. I pass all the neurologic tests and nothing is showing on my brain mri. I think they initially thought this could be MS, and we are still doing further testing.
Posted by njlymemom (Member # 15088) on :
Lea, why waste your time and money with your
"regular" dr. He or she may ok the testing at
igenex, but chances are the test results will
not be read correctly.
Speaking from experience, find an LLMD (lyme
literate doctor) as soon as you can.
If it is lyme or a co infection, it only gets
worse and will not go away on its own.
Do you understand what a co infection is?
One tick bite can give you more than one illness.
The others are just as serious
than lyme disease. Your "regular doc" and
neurologist will not check for these -
guaranteed.
Post in "seeking doctor".
Posted by lymebytes (Member # 11830) on :
Numbness and tingling take place at any time, right after the bite or 10 years later, whenever it becomes active.
It is a common symptom and has been withme now off and on for 2 years.
Posted by lea (Member # 15593) on :
Well I just sent my lab work to Igenex, so now starts the waiting game. I also found an LLMD, but I haven't made an appointment yet.
Posted by njlymemom (Member # 15088) on :
make the appointment
Posted by C.M.L (Member # 15715) on :
I was diagnosed with Active Lyme two weeks ago. This past week I have gotten the tingling in both hands. It feels really cold, then it burns. My dr. said it could be lyme related.
This is the second time this year I have been diagnosed w/ Active Lyme. crazy. I am not an outdoor person either.
Posted by soonermom (Member # 14494) on :
Lea,
Sorry to hear about what you are going through. Sounds a lot like the last 7 months of my life. I was being worked up for MS too. I have had every weird feeling of numbness, burning, vibrating, etc. possible. I even have numerous white matter lesions in my brain. I thought that lyme had been ruled out early on by a negative test. (tested by my request, neuro didn't want to do it) but I later found out it was only a screening test.
When my Igenex Western Blot came back CDC positive for lyme, my doctors didn't even know what to say....some just ignored it & kept telling me that I had MS. Some lectured me about how I didn't have Lyme and the tests aren't accurate. There is a definite lyme-denial going on in my state.
It took a few months to get into my LLMD. He diagnosed me with neurological lyme and I am on antibiotics and improving all the time!! It is truly like a miracle to me. I am so glad you are getting tested. Keep us updated!
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