posted
I have not been dx with anything, but lyme is a possibility.
I was bit around the last week of march 2008, and my first symptoms were right leg and arm numb, nausea, fatigue, and a general sick feeling.
My question is, can numbness and tingling be one of the first symptoms if the bite only took place a week before??
[ 31. May 2008, 02:12 AM: Message edited by: lea ]
Posts: 146 | From California | Registered: May 2008
| IP: Logged |
CD57
Frequent Contributor (1K+ posts)
Member # 11749
posted
you bet! i would recommend getting to an LLMD (Lyme literate medical doctor) asap. There is a good one who comes to Malibu once a month from his Bay Area office. Post in seeking a doctor and someone will get back to you.
Posts: 3528 | From US | Registered: Apr 2007
| IP: Logged |
Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Welcome Lea from California.
Sorry to hear you are feeling crummy.
Yes, it is very possible. Neck can swell, infection can be spreading.. and other causes.
CD 578934 had a great suggestion... always does.... to find a doctor ASAP who can help you in the early stages.
posted
numbness was one of my first symptoms...My big toe was numb.Then nerve pain came next. Laurie
Posts: 256 | From long island, new york | Registered: Feb 2008
| IP: Logged |
posted
numbness was one of my first symptoms...My big toe was numb.Then nerve pain came next. Laurie
Posts: 256 | From long island, new york | Registered: Feb 2008
| IP: Logged |
posted
Yikes - that's BS. I had tingling and twitching (neuro symptoms) within a week of being bitten. It all depends on how quickly it reaches your CNS - it has absolutely nothing to do with some arbitrary "chronic" timeframe. In some people the bacteria seems to breach the blood-brain barrier much quicker, too.
Get to a LLMD ASAP and good luck! Don't wait for 4 months like I did being misdiagnosed!
Posts: 43 | From Chicago | Registered: Mar 2008
| IP: Logged |
posted
Thanks!!
Posts: 146 | From California | Registered: May 2008
| IP: Logged |
richedie
Frequent Contributor (1K+ posts)
Member # 14689
posted
It is weird though because those symptoms may be at the start of the problem and then subside over time and you may notice new symptoms. I know I started with the pain and tingling, feelings of limbs going numb, but neurological tests never showed anything so the Neurologist thought I was crazy. For me, that has calmed down and it is more pain in spots.
-------------------- Mepron/Zith/Ceftin Doxy/Biaxin/Flagyl pulse. Artemisinin with Doxy/Biaxin. Period of Levaquin and Ceftin. Then Levaquin, Bactrim and Biaxin. Bactrim/Augmentin/Rifampin. Mepron/Biaxin/Artemisinin/Cat's Claw Rifampin/Bactrim/Alinia Plaquenil/Biaxin Posts: 1949 | From Pennsylvania | Registered: Feb 2008
| IP: Logged |
These were some of my first symptoms way back in 1984.
My young daughter also had numbness and tingling of her arms and legs as her first symptoms. She came home from school saying her leg was so numb she had trouble walking.
Then she had vision problems and fatigue.
No pain at all.
Unfortunately there are people who experience this and end up with an MS diagnosis.
It is sad that many are children. MS society claims that MS in children is on the rise - or is it!
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
| IP: Logged |
posted
So far my neurologist thinks I am crazy as well. I pass all the neurologic tests and nothing is showing on my brain mri. I think they initially thought this could be MS, and we are still doing further testing.
Posts: 146 | From California | Registered: May 2008
| IP: Logged |
posted
Lea, why waste your time and money with your
"regular" dr. He or she may ok the testing at
igenex, but chances are the test results will
not be read correctly.
Speaking from experience, find an LLMD (lyme
literate doctor) as soon as you can.
If it is lyme or a co infection, it only gets
worse and will not go away on its own.
Do you understand what a co infection is?
One tick bite can give you more than one illness.
The others are just as serious
than lyme disease. Your "regular doc" and
neurologist will not check for these -
guaranteed.
Post in "seeking doctor".
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
| IP: Logged |
lymebytes
Frequent Contributor (1K+ posts)
Member # 11830
posted
Numbness and tingling take place at any time, right after the bite or 10 years later, whenever it becomes active.
It is a common symptom and has been withme now off and on for 2 years.
posted
Well I just sent my lab work to Igenex, so now starts the waiting game. I also found an LLMD, but I haven't made an appointment yet.
Posts: 146 | From California | Registered: May 2008
| IP: Logged |
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
| IP: Logged |
posted
I was diagnosed with Active Lyme two weeks ago. This past week I have gotten the tingling in both hands. It feels really cold, then it burns. My dr. said it could be lyme related.
This is the second time this year I have been diagnosed w/ Active Lyme. crazy. I am not an outdoor person either.
Posts: 22 | From N.East CT | Registered: Jun 2008
| IP: Logged |
Sorry to hear about what you are going through. Sounds a lot like the last 7 months of my life. I was being worked up for MS too. I have had every weird feeling of numbness, burning, vibrating, etc. possible. I even have numerous white matter lesions in my brain. I thought that lyme had been ruled out early on by a negative test. (tested by my request, neuro didn't want to do it) but I later found out it was only a screening test.
When my Igenex Western Blot came back CDC positive for lyme, my doctors didn't even know what to say....some just ignored it & kept telling me that I had MS. Some lectured me about how I didn't have Lyme and the tests aren't accurate. There is a definite lyme-denial going on in my state.
It took a few months to get into my LLMD. He diagnosed me with neurological lyme and I am on antibiotics and improving all the time!! It is truly like a miracle to me. I am so glad you are getting tested. Keep us updated!
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
![[Big Grin]](biggrin.gif)
Printer-friendly view of this topic