Hi all, I do not have an appt. with Dr. C. until August 5th. For those of you who have had experience with him, do you know if he would be willing to run the labs with Igeneix, before my appointment. I do have someone locally that can draw them for me. I just feel it would be advantageous to have all of that before I even went...but not sure if this is something he would do or not. Thanks.
Posted by Lymetoo (Member # 743) on :
Have no idea... call and ask.
Posted by Lily (Member # 13158) on :
Do you have a local doctor who would write the script? That's what I did before my first appointment with your same LLMD.
I do not know if he would do it or not. However, I would not think any doctor would write a script for anything for a patient that they have not met.
I hope he is able to do it for you
Lily
Posted by havefaith377 (Member # 15250) on :
Thanks everyone. My PCP won't...surprise surprise. Thanks again.
Posted by Lymetoo (Member # 743) on :
You're sure your PCP wouldn't at least sign off on the test kit?? That's all he has to do.
He has to be willing to accept the test results from Igenex. But then, you might have to battle him for the results.
Posted by dbourne (Member # 13833) on :
We are taking my daughter to see Dr C on Monday. I tried and tried to get her Pediatrician to run the test. Not treat her...just to pull the blood. They told me no because congenital lyme doesn't really exist. And if for some reason she did have it than the CDC would be at my door for a front page story (very rude). By the way she has tested positive and we plan to let them know.
Back to your question- I ended up getting my local LLMD to run the test and we are taking the test result with us to the appointment. I don't know where you can start to get the blood pulled. The lab I went to was so familiar with Dr. W and Igenex that they didn't even ask to see his request.
You might want to call around to the different labs. I heard somewhere that you can pay a fee of $40 dollars to the lab and they will pull the blood. That is just rumor though so please call first.
Also, if you have the Igenx paper work all filled out with Dr. C's name/address as the doctor and look really confident in yourself they may do it for you. I don't know, good luck. I know how frustrating that is. You want to be fully prepared for your appointment to have the largest chance to benefit. Good luck!
Posted by CherylSue (Member # 13077) on :
Call Igenex in Palo Alto. They will send you a kit. You want the IgM and IgG western blot for Lyme.
Have the blood drawn locally. They give you a package mailer for DHL. It's prepaid.
Cost is about $198. Doctor C will charge you $60 more for the same test.
CherylSue
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by CherylSue: Call Igenex in Palo Alto. They will send you a kit. You want the IgM and IgG western blot for Lyme.
Have the blood drawn locally. They give you a package mailer for DHL. It's prepaid.
Don't you have to have a dr's request? The results have to be sent to a doctor....?
Posted by havefaith377 (Member # 15250) on :
Lymetoo you are correct. I actually already contacted Igenex to see if a dr.s request/signature was required, and they said yes.
Posted by CherylSue (Member # 13077) on :
If I remember correctly, I called Igenex and prepaid for the kit. Then I took the forms/kit to my local pcp who has also been cooperating with me and my out of state LLMD. She signed for the test, and my local lab did the blood draw and spun the tubes. We packaged the tubes in the packaging provided and used the DHL mailer, and I went to my nearest DHL. The tests have to be run Mon-Weds so the samples are received before the weekend.
The test results were sent to both my PCP and my LLMD per my request.
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