We had a pretty good thread about this a few weeks ago - unfortunatley some of us have this awful sypmtom.
I was wondering how many of you either have a diagnosis of Bartonella or at least suspect you have Bart?
Thanks so much.
Posted by kelmo (Member # 8797) on :
I had this pain for the first time last week. And, yes, I have bart.
It lasted only a couple of hours, for which I was grateful.
Posted by sparkle7 (Member # 10397) on :
Yes. I have this symptom but I don't think I have any of the co-infections.
My doctor said the tests were inaccurate for the co-infections.
He asked me a bunch of questions rather than getting tests. I don't seem to have any other primary symptoms of the co-infections.
Posted by bunnyfluff (Member # 14117) on :
I do from time to time.
My LLMD has also said it can be a side effect of Biaxin, so maybe other things as well.
Bunny
Posted by mojo (Member # 9309) on :
Thanks for the responses.
I've had this pain pretty much non stop for three years, unfortunately.
Just trying to figure this all out.
I appreciate your help.
Posted by hokie (Member # 14720) on :
I have this off and on. Have Lyme and Babs. May have Bart. Getting better, but if I plateau will ask LLMD to retest for Bart.
Suspect Bart, seriously.
However, my pain is slowly getting better. After at least two years. I am grateful.
Posted by mojo (Member # 9309) on :
Thanks for the reply, Hokie.
Coincidentally my twin (who also has Lyme) has a very Baronella looking rash in her armpit area today. We're fairly certain we were infected at the same time.
I think I'll speak with my Dr. for sure about Bart.
Posted by mariarosa (Member # 15459) on :
I have this type of pain, with no coinfections. Are the tests for coinfections not accurate? I see some of you suspect you have them, even after testing.
Posted by cantgiveupyet (Member # 8165) on :
almost non stop since 2006-
positive for bart on fry labs blood smear.
I found that my tight pelvic floor muscles caused the majority of my pain. If the muscles are less tight, i have less pain.
I was just thinking about this tonite, so im glad you posted. Trying to figure out if there is a LLMD out there who is seeing results treating patients like us and what they are using.
Anyone hearing anything out there from the LLMD's?
I have IC too and PFD.
Posted by KauaiGoddess (Member # 11782) on :
Aloha~
I have this pain too...
I actually had some very painful swelling twice now, that really stumped the gyno....
don't know why I even bothered to go...but just wanted to make sure it wasn't something else, you know...
My LLMD even wasn't too sure about it...but didn't disregard it as a possibility either...
I am convinced it's related to all this cause I never had this prior....
anyways, I also have Bart and Babs....
the swelling has happened since treatment, twice exactly 1 year apart...
Any else ever have swelling?
also, the vulvar pain comes and goes....but have found that it has gotten MUCH better since I have done 6 months of Rifampin...
Also I only use non-bleached pads with organic cotton from the health food store now....no more tampons!