LymeNet Flash: Question for women with vulvar pain

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Medical Questions » Question for women with vulvar pain

UBBFriend: Email this page to someone!

Author

Topic: Question for women with vulvar pain

mojo
Frequent Contributor (1K+ posts)
Member # 9309

posted

We had a pretty good thread about this a few weeks ago - unfortunatley some of us have this awful sypmtom.

I was wondering how many of you either have a diagnosis of Bartonella or at least suspect you have Bart?

Thanks so much.

Posts: 1761 | From USA | Registered: May 2006 | IP: Logged |

kelmo
Frequent Contributor (1K+ posts)
Member # 8797

posted

I had this pain for the first time last week. And, yes, I have bart.

It lasted only a couple of hours, for which I was grateful.

Posts: 2903 | From AZ | Registered: Feb 2006 | IP: Logged |

sparkle7
Frequent Contributor (5K+ posts)
Member # 10397

posted

Yes. I have this symptom but I don't think I have any of the co-infections.

My doctor said the tests were inaccurate for the co-infections.

He asked me a bunch of questions rather than getting tests. I don't seem to have any other primary symptoms of the co-infections.

Posts: 7772 | From Northeast, again... | Registered: Oct 2006 | IP: Logged |

bunnyfluff
LymeNet Contributor
Member # 14117

posted

I do from time to time.

My LLMD has also said it can be a side effect of Biaxin, so maybe other things as well.

Bunny

--------------------
4 strong winds that blow lonely,
7 seas that run high.

All those things that don't change
Come what may.

Posts: 103 | From Dallas/ Fort Worth. TX | Registered: Dec 2007 | IP: Logged |

mojo
Frequent Contributor (1K+ posts)
Member # 9309

posted

Thanks for the responses.

I've had this pain pretty much non stop for three years, unfortunately.

Just trying to figure this all out.

I appreciate your help.

Posts: 1761 | From USA | Registered: May 2006 | IP: Logged |

hokie
LymeNet Contributor
Member # 14720

posted

I have this off and on. Have Lyme and Babs. May have Bart. Getting better, but if I plateau will ask LLMD to retest for Bart.

Suspect Bart, seriously.

However, my pain is slowly getting better. After at least two years. I am grateful.

Posts: 129 | From Virginia | Registered: Feb 2008 | IP: Logged |

mojo
Frequent Contributor (1K+ posts)
Member # 9309

posted

Thanks for the reply, Hokie.

Coincidentally my twin (who also has Lyme) has a very Baronella looking rash in her armpit area today. We're fairly certain we were infected at the same time.

I think I'll speak with my Dr. for sure about Bart.

Posts: 1761 | From USA | Registered: May 2006 | IP: Logged |

mariarosa
Member
Member # 15459

posted

I have this type of pain, with no coinfections. Are the tests for coinfections not accurate? I see some of you suspect you have them, even after testing.

Posts: 13 | From PA | Registered: May 2008 | IP: Logged |

cantgiveupyet
Frequent Contributor (1K+ posts)
Member # 8165

posted

almost non stop since 2006-

positive for bart on fry labs blood smear.

I found that my tight pelvic floor muscles caused the majority of my pain. If the muscles are less tight, i have less pain.

I was just thinking about this tonite, so im glad you posted. Trying to figure out if there is a LLMD out there who is seeing results treating patients like us and what they are using.

Anyone hearing anything out there from the LLMD's?

I have IC too and PFD.

--------------------
"Say it straight simple and with a smile."

"Thus the task is, not so much to see what no one has seen yet,
But to think what nobody has thought yet, About what everybody sees."

-Schopenhauer

pos babs, bart, igenex WB igm/igg

Posts: 3156 | From Lyme limbo | Registered: Oct 2005 | IP: Logged |

KauaiGoddess
LymeNet Contributor
Member # 11782

posted

Aloha~

I have this pain too...

I actually had some very painful swelling twice now, that really stumped the gyno....

don't know why I even bothered to go...but just wanted to make sure it wasn't something else, you know...

My LLMD even wasn't too sure about it...but didn't disregard it as a possibility either...

I am convinced it's related to all this cause I never had this prior....

anyways, I also have Bart and Babs....

the swelling has happened since treatment, twice exactly 1 year apart...

Any else ever have swelling?

also, the vulvar pain comes and goes....but have found that it has gotten MUCH better since I have done 6 months of Rifampin...

Also I only use non-bleached pads with organic cotton from the health food store now....no more tampons!

Much Love & Aloha~!

Fawne

--------------------
Energy flows where attention goes~

Posts: 302 | From Kauai | Registered: May 2007 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/