I've been sick since March 2008 and recently saw an LLMD (Dr. E in Jackson, NJ). I had almost completed a 30-day cycle of 200mg/day generic doxy when I saw Dr. E.
She switched me to a 30-day cycle of 300mg/day Doryx. I just started the modified treatment less than a week ago.
The past day or so, I have been feeling more tired/fatigued/weak than usual. In addition, my vision seems to be a little off.
During much of the past day or two, it seems that I can't quite fully focus on objects. Things are a little blurry, a little hazy, etc. It's almost as if I'm partly looking through things rather than at them.
It's actually a little disorienting. Is it possible that the vision impairment (and the rest) could be a herx reaction? Or, is this not common, even if dealing with the herx reaction?
Of course, anything wrong with our vision is scary, and it has me pretty freaked out. I called the doctor and am waiting for a response, but I couldn't resist posting here since people here are so knowledgeable.
Oh, and I have not yet been diagnosed. Waiting for test results.
Thank you so much! jwick
Posted by Lymetoo (Member # 743) on :
[QUOTE]Originally posted by Lymetoo: [QB] Absolutely! Hope it goes away soon!![QUOTE]
Hi Lymetoo,
That's good to know. I just spoke to someone at the doctor's office. She advised that Dr. E feels this could certainly be part of a herx reaction. If so, it is temporary...which is the exact word I wanted to hear.
However, she thinks it is a good idea to see an eye doctor...just to be safe and make sure there are no issues.
Um, does the fact she thinks I should see an eye doctor mean that she may suspect this is not a herx? I'm thinking she is just thorough and wants to make sure all is good.
I hope these reactions (if that is what this is) do not last too long. I'm on day 2 of it and am feeling SO weak.
Good times...lol!
Posted by Lymetoo (Member # 743) on :
Sometimes we blame everything on Lyme, so it's good to make sure.
Posted by Clarissa (Member # 4715) on :
Blurred vision can totally occur during herxes and treatment. Like the other wretched symptoms, it will rectify itself throughout treatment.
Always good to ask, though!!
Best,
Posted by NanaDubo (Member # 14794) on :
Blurred vision was one of my first symptoms. Before I had a clue that I had another LD exposure, I went right to the eye doc.
He said I needed laser surgery or I would get Glaucoma from the pressure. I had the surgery : (
Then I found out what was going on and realized I had pressure in my entire head, not just my eyes.
Later a retina specialist I saw to make sure there was no euvitis (sp?) said the laser surgery probably made my vision worse.
Seeing an eye doc is a good idea but think hard about what they tell you if they are not Lyme literate.
I usually have eye troubles when I am herxing.
Posted by jwick25 (Member # 15190) on :
Thank you all so much. That is definitely reassuring that it is not just me...lol!
I hope that it doesn't last much longer. Today is day 2 of feeling even worse than usual.
I guess you just have to suck it up and deal with feeling worse before you feel better.
Do herxes typically last a long time? Is the first herx supposed to be the worst? Therefore, if you get one later, it shouldn't be as bad as the first?
[ 12. June 2008, 07:59 AM: Message edited by: jwick25 ]
Posted by jwick25 (Member # 15190) on :
So now, in addition to the rest of the cruddy symptoms, I have been dealing with a really heavy feeling of pressure in my head,
specifically at the bridge of my nose. I am really hoping that this is a sign that the medicine is working...
rather than a sign that my head is going to explode...lol!
Is this normal?
[ 12. June 2008, 07:45 PM: Message edited by: jwick25 ]
Posted by jwick25 (Member # 15190) on :
Ok, I am really getting scared here. Last night starting at dinner, I started to feel way worse with the weakness, lightheadedness, tingling, shaking, etc. This morning is awful. Dr. E is on vacation, and the number they refer patients to advised that no one is there to return calls on the weekend.
I am praying that this is just a herx reaction, but I am really scared. I am feeling almost as bad as I did when I was hospitalized for this back in March.
If this is a herx, how bad is this going to get before it gets better? I'm afraid to even take my Doryx (but I did). I feel like I can't breathe and am going to pass out.
Any advice for a big, wimpy chicken???
Posted by hopingandpraying (Member # 9256) on :
My teenage son sometimes get pain in the eyes - it is Lyme-related. We had him checked by an opthalmologist, but he found nothing wrong.
Yes, this horrendous disease can wreak havoc with all parts of the human body!
Posted by InADaze (Member # 7711) on :
If you don't mind the drive, there's a pretty good Lyme Literate opthalmologist in Lancaster, PA.
PM me if you want the name.
Posted by jenin98 (Member # 12617) on :
I have the same symptoms as you. I have been on treatment for 9 months, and now my vision is way off. My eyes burn now. feels like something coating is on there. I saw an eye specialist about 6 months ago, did a full eye test, and thought I was crazy for going to see him cause he found nothing wrong with my eyes.. I am seeing another eye doc Monday, but I think this is the crap coming out of us. My ears even burn, and tons of pressure on sinus area, head, etc.. not to mention the tremors, burning, fatigue, cracking popping joints, and headach. But, believe it or not, I am better than 9 months ago. I could not even walk last year, I could not even feel my legs. So, I will settle for this, for now. untill I get recovered!!!!!we will!!!1
Posted by jwick25 (Member # 15190) on :
My eyes burn as well. Not constantly, but every now and then. Maybe it is the infection trying to get out.
Today was just an awful day. My husband was working, and my in-laws were nice enough to come stay with me because I felt so ill and was really scared.
I hope this is simply a sign that the Doryx is working. I also hope that tomorrow is better.
I still don't have my results back, so it's really scary not knowing for sure what is going on!
Does anyone have any good detox ideas? I'm looking for a safe way to alleviate some symptoms.
Posted by jwick25 (Member # 15190) on :
Hi stjohn,
Thanks so much for the helpful message! I am still feeling lousy, but - fortunately - not quite as bad as I did on Saturday.
I am hoping that the past couple of days were the result of a herx reaction.
I see my PC doc tomorrow and the Rheum on Wednesday. I'm going to make a list of questions to take with me.
The vision thing is a concern because I don't want any permanant damage.
![[bonk]](graemlins/bonk.gif)