I am Igenex Lyme W/B overall negative but had 12 bands as either IND or +, so LLMD clearly thinks I have an infection. LLMD clinically dx'd with Lyme/Bart. I DO have many risk factors for Bart, a few for Lyme.
Have also had 2 SED RATE (ESR) tests done that were both in normal ranges BEFORE starting any ABX.
Is SED RATE always elevated in an untreated lyme infection? I've thought it was but can this be different? Is SED RATE NOT elevated with Bart?
IF I have this, I've had it some time (meaning at least 5 years). All neuro sx's now, nerve pain being the worst.
What are everyone's experiences with this? I just started IV Rocephin treatment last week...and want to be sure I'm treating the right infection.
Thanks for any help, MBB3
[ 18. June 2008, 07:12 PM: Message edited by: MBB3 ]
Posted by Larkspur (Member # 5131) on :
I never had an elevated SED rate when I developed full blown neuro lyme.
Posted by Dawnee (Member # 15089) on :
I'm CDC positive from 3 different labs for LD and my SED rate is always normal. I also have very high potential for Bart but so far my co-infections have come back neg except for Mycoplasma
Posted by feelfit (Member # 12770) on :
My SED rate, ANA, and CRP, all indicators of inflamation are always normal.
Based on your responses (even with CDC + Lyme, No less), it does seem VERY likely to have normal SED Rate etc.
I also did a little online research after posting and sure enough, MANY journals mention NORMAL ESR, ANA etc in the case of Lyme.
Great info here as always! MBB3 Posted by maureen2174 (Member # 11471) on :
my sed rate was normal, so was my ANA. I did have a positive RF though, but when i got it retested it was normal.
Posted by adamm (Member # 11910) on :
no inflammation markers whatsoever found in my bloodwork
Posted by Lymetoo (Member # 743) on :
Nope! We've done polls here before [not supposed to now] and I'm pretty sure that the majority of us had LOW sed rates.
A low sed rate can indicate HYPERCOAGULATION, by the way.
Mine is low and so is my CRP. But that doesn't mean I don't have inflammation in my body.
Do a search here on sed rate. Lots of good information!
Posted by webmeg (Member # 13647) on :
Neuro-lymie, SED rate normal, CRP just slightly elevated (don't remember, something like 5.1...)
SED has always been normal since treating Lyme.
Posted by MBB3 (Member # 13459) on :
Thanks again for the responses...
Lymetoo ? A low sed rate indicating HYPERCOAGULATION? NO way????? My LabCorp test in Sept. 2007 was a 4 and March 2008 was only 2...MEGA LOW!!!
That is something I am HIGHLY suspicious of in my case as it relates to 'nerve pain'. I've started several threads about it.
I've said it before will summarise again...I have TERRIBLE (Level 10) burning in my feet and calves while sitting and when I stand and MOVE the burning stops or greatly lessens almost immediately - I am just a layman, but this possibly means seems vascular, any ideas? BTW, I am only age 39, near normal weight and don't have 'visual' signs of vascular problems, but SOMETHING is causing this burning to come and go...again clinically dx'd with Lyme/Bart, but based on history BART far more likely.
I know DR. C believes up to 90% of those with Lyme have some degree of hypercoagulation/vasculitis, just never heard it described the way I do in terms of 'nerve pain' or neuropathy.
I guess I am getting off topic, but low SED RATE=HYPERCOAGULATION is VERY interesting.
Hoping treatment turns this all around!
Thanks, MBB3 Posted by Lily (Member # 13158) on :
Mine is always extremely high.
LLMD said this is NOT typical for Lyme, although he does see it.
Lily
Posted by Lymetoo (Member # 743) on :
I would say it's the bart causing your pain... but lyme can do the same thing.
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