LymeNet Flash: Is SED RATE (ESR) Always Raised With Lyme or Bart ?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Is SED RATE (ESR) Always Raised With Lyme or Bart ?

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Topic: Is SED RATE (ESR) Always Raised With Lyme or Bart ?

MBB3
LymeNet Contributor
Member # 13459

posted

Hello

I am Igenex Lyme W/B overall negative but had 12 bands as either IND or +, so LLMD clearly thinks I have an infection. LLMD clinically dx'd with Lyme/Bart. I DO have many risk factors for Bart, a few for Lyme.

Have also had 2 SED RATE (ESR) tests done that were both in normal ranges BEFORE starting any ABX.

Is SED RATE always elevated in an untreated lyme infection? I've thought it was but can this be different? Is SED RATE NOT elevated with Bart?

IF I have this, I've had it some time (meaning at least 5 years). All neuro sx's now, nerve pain being the worst.

What are everyone's experiences with this? I just started IV Rocephin treatment last week...and want to be sure I'm treating the right infection.

Thanks for any help, MBB3

[ 18. June 2008, 07:12 PM: Message edited by: MBB3 ]

Posts: 247 | From The Country | Registered: Oct 2007 | IP: Logged |

Larkspur
LymeNet Contributor
Member # 5131

posted

I never had an elevated SED rate when I developed full blown neuro lyme.

--------------------
"We must be willing to get rid of
the life we've planned, so as to have the life that is waiting for us" - e.m. forster

Posts: 921 | From PA | Registered: Jan 2004 | IP: Logged |

Dawnee
Unregistered

posted

I'm CDC positive from 3 different labs for LD and my SED rate is always normal.
I also have very high potential for Bart but so far my co-infections have come back neg except for Mycoplasma

IP: Logged |

feelfit
Frequent Contributor (1K+ posts)
Member # 12770

posted

My SED rate, ANA, and CRP, all indicators of inflamation are always normal.

CDC pos. Lyme, Hemobartonella pos, C-pneumonia pos.

So, no, SED rate is not always elevatd.

Feelfit

Posts: 3975 | From usa | Registered: Aug 2007 | IP: Logged |

MBB3
LymeNet Contributor
Member # 13459

posted

Thanks

Based on your responses (even with CDC + Lyme, No less), it does seem VERY likely to have normal SED Rate etc.

I also did a little online research after posting and sure enough, MANY journals mention NORMAL ESR, ANA etc in the case of Lyme.

Great info here as always! MBB3 [group hug]

Posts: 247 | From The Country | Registered: Oct 2007 | IP: Logged |

maureen2174
LymeNet Contributor
Member # 11471

posted

my sed rate was normal, so was my ANA. I did have a positive RF though, but when i got it retested it was normal.

Posts: 871 | From NJ | Registered: Mar 2007 | IP: Logged |

adamm
Unregistered

posted

no inflammation markers whatsoever found in my bloodwork

IP: Logged |

Lymetoo
Moderator
Member # 743

posted

Nope! We've done polls here before [not supposed to now] and I'm pretty sure that the majority of us had LOW sed rates.

A low sed rate can indicate HYPERCOAGULATION, by the way.

Mine is low and so is my CRP. But that doesn't mean I don't have inflammation in my body.

Do a search here on sed rate. Lots of good information!

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

webmeg
LymeNet Contributor
Member # 13647

posted

Neuro-lymie, SED rate normal, CRP just slightly elevated (don't remember, something like 5.1...)

SED has always been normal since treating Lyme.

Posts: 257 | From Connecticut | Registered: Oct 2007 | IP: Logged |

MBB3
LymeNet Contributor
Member # 13459

posted

Thanks again for the responses...

Lymetoo ? A low sed rate indicating HYPERCOAGULATION? NO way????? My LabCorp test in Sept. 2007 was a 4 and March 2008 was only 2...MEGA LOW!!!

That is something I am HIGHLY suspicious of in my case as it relates to 'nerve pain'. I've started several threads about it.

I've said it before will summarise again...I have TERRIBLE (Level 10) burning in my feet and calves while sitting and when I stand and MOVE the burning stops or greatly lessens almost immediately - I am just a layman, but this possibly means seems vascular, any ideas? BTW, I am only age 39, near normal weight and don't have 'visual' signs of vascular problems, but SOMETHING is causing this burning to come and go...again clinically dx'd with Lyme/Bart, but based on history BART far more likely.

I know DR. C believes up to 90% of those with Lyme have some degree of hypercoagulation/vasculitis, just never heard it described the way I do in terms of 'nerve pain' or neuropathy.

I guess I am getting off topic, but low SED RATE=HYPERCOAGULATION is VERY interesting.

Hoping treatment turns this all around!

Thanks, MBB3 [group hug]

Posts: 247 | From The Country | Registered: Oct 2007 | IP: Logged |

Lily
LymeNet Contributor
Member # 13158

posted

Mine is always extremely high.

LLMD said this is NOT typical for Lyme, although he does see it.

Lily

Posts: 219 | From Florida | Registered: Sep 2007 | IP: Logged |

Lymetoo
Moderator
Member # 743

posted

I would say it's the bart causing your pain... but lyme can do the same thing.

My sed rate was 3 and I have hypercoagulation.

--------------------
--Lymetutu--
Opinions, not medical advice!

Posts: 96239 | From Texas | Registered: Feb 2001 | IP: Logged |

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