Hi, I am new to this board and need help badly. I was diagnosed
w/ Interstitial Cystitis 6 years ago. My symptoms are bladder
burning, urinary frequency/urgency, hormonal issues, GI issues,
VERY distended abdomen, weight gain. I have had all the tests,
MRIs, etc. Nothing ever. My most recent Igenex is as follows:
IgM Borderline positive
18 +
30 + (but 30 confirmation test showed negative for Lyme)
34 IND
39 IND
41 ++
58 +
83-93 +
IgG Negative
34 IND
41 ++
I have a LLMD who I trust. He seems to be treating me to see if
I respond. I am on IV Rocephin 2 grams/day. This is my 3rd
week. I can barely handle 2 grams so he is keeping me there.
My bladder symptoms are OUT OF CONTROL since the Rocephin
and I am fatigued, which I never have been prior to the
Rocephin. My natural doctor does a lot of kinesiology and says I
don't have Lyme and that I don't have any of the symptoms. I
am so confused. I am miserable in every area of my life and
can't function, which I'm sure you all understand. Any thoughts,
please?!
Posted by catskillmamala (Member # 12536) on :
Jeni,
My daughter had so many bladder issues: burning urination, frequency, accidents, etc.
Guess what: lyme colonized her eurethra! She's been in treatment and she's MUCH MUCH better.
Your symptoms may be exacerbated because you could be experiencing a herxheimer reaction-- when lyme dies off it makes you feel worse because it releases toxins.
Hang in there, but be sure to report all symptoms to your llmd.