LymeNet Flash: I am new here...could I have Lyme?!?

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Medical Questions » I am new here...could I have Lyme?!?

UBBFriend: Email this page to someone!

Author

Topic: I am new here...could I have Lyme?!?

Jeni
Member
Member # 16257

posted

Hi, I am new to this board and need help badly. I was diagnosed

w/ Interstitial Cystitis 6 years ago. My symptoms are bladder

burning, urinary frequency/urgency, hormonal issues, GI issues,

VERY distended abdomen, weight gain. I have had all the tests,

MRIs, etc. Nothing ever. My most recent Igenex is as follows:

IgM Borderline positive

18 +

30 + (but 30 confirmation test showed negative for Lyme)

34 IND

39 IND

41 ++

58 +

83-93 +

IgG Negative

34 IND

41 ++

I have a LLMD who I trust. He seems to be treating me to see if

I respond. I am on IV Rocephin 2 grams/day. This is my 3rd

week. I can barely handle 2 grams so he is keeping me there.

My bladder symptoms are OUT OF CONTROL since the Rocephin

and I am fatigued, which I never have been prior to the

Rocephin. My natural doctor does a lot of kinesiology and says I

don't have Lyme and that I don't have any of the symptoms. I

am so confused. I am miserable in every area of my life and

can't function, which I'm sure you all understand. Any thoughts,

please?!

Posts: 11 | From los angeles | Registered: Jul 2008 | IP: Logged |

catskillmamala
LymeNet Contributor
Member # 12536

posted

Jeni,

My daughter had so many bladder issues: burning urination, frequency, accidents, etc.

Guess what: lyme colonized her eurethra! She's been in treatment and she's MUCH MUCH better.

Your symptoms may be exacerbated because you could be experiencing a herxheimer reaction-- when lyme dies off it makes you feel worse because it releases toxins.

Hang in there, but be sure to report all symptoms to your llmd.

Posts: 524 | From Hudson Valley, NY | Registered: Jul 2007 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/