I am doing a presentation to a group of child psychologists about Lyme disease.
Many children in our area who have Lyme disease are being inappropriately referred to psychologists for "emotional disturbance."
I would like to educate this group about neuropsychiatric presentations of Lyme in children.
Although I plan to present the data, I would also like to include a few personal stories (anonymously) from children whose presentation of Lyme is neuropsychiatric in nature.
To the extent you feel comfortable, please share with me your children's stories regarding Lyme disease, particularly as it relates to psychiatric manifestations.
Thank you very much for considering responding to this post.
Posted by lymemomtooo (Member # 5396) on :
Sent a pm. Good luck. lmt
Posted by hcconn22 (Member # 5263) on :
My wife is a social worker who has had many children and adults referred due to Unexplained Mental Conditions.
After the 1st visit she referred them to a LLMD who in 100% of the cases Dx'ed Lyme, by both blood tests and clinical signs.
Posted by Clarissa (Member # 4715) on :
I don't have any children but I was a congenital Lymie and had primarily psychiatric disorders with Lyme/Bart starting as a toddler.
I have a summary of my story if you want to PM me your email address or ask specific questions.
Best,
Posted by MysteryGirl44 (Member # 10201) on :
Hi! I'm a teen and I have neuro-psychiatric effects of Lyme Disease.
I have trouble with short and long-term memory, concentration, reading comprehension, severe fatigue, slowness, disorientation, difficulty understanding directions and what is going on, seizures, and fainting.
I even have more neurological symptoms that I don't remember at the moment.
I got neuro-psychiatric testing and was then diagnosed with AD/HD (Inattentive Type) and Temporal Lobe Dysfunction. Both are caused by Lyme Disease.
My grades have declined, even though I truly do try my best.
People don't seem to realize that my problems with school aren't just from bad concentration and memory. I am living with a debilitating illness.
Going to school every day is really hard. I try, though.
I don't feel like I learn a lot at school because I have trouble understanding what is going on.
I go to the bathroom a lot during the school day to sleep.
Teachers don't understand how sick I am and how hard I am trying. I try to give them information about Lyme, but they don't want it.
Nobody could ever imagine how sick I am by looking at me.
Let me know if you have any questions you want me to answer. I really want to help you.
Thank you so much for being an advocate for so many children who need one.
Here is a great article that you may want to print out and give copies to the people who you will be talking to:
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