posted
I am doing a presentation to a group of child psychologists about Lyme disease.
Many children in our area who have Lyme disease are being inappropriately referred to psychologists for "emotional disturbance."
I would like to educate this group about neuropsychiatric presentations of Lyme in children.
Although I plan to present the data, I would also like to include a few personal stories (anonymously) from children whose presentation of Lyme is neuropsychiatric in nature.
To the extent you feel comfortable, please share with me your children's stories regarding Lyme disease, particularly as it relates to psychiatric manifestations.
Thank you very much for considering responding to this post.
Posts: 129 | From Virginia | Registered: Feb 2008
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lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
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Sent a pm. Good luck. lmt
Posts: 2360 | From SE PA | Registered: Mar 2004
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Hi! I'm a teen and I have neuro-psychiatric effects of Lyme Disease.
I have trouble with short and long-term memory, concentration, reading comprehension, severe fatigue, slowness, disorientation, difficulty understanding directions and what is going on, seizures, and fainting.
I even have more neurological symptoms that I don't remember at the moment.
I got neuro-psychiatric testing and was then diagnosed with AD/HD (Inattentive Type) and Temporal Lobe Dysfunction. Both are caused by Lyme Disease.
My grades have declined, even though I truly do try my best.
People don't seem to realize that my problems with school aren't just from bad concentration and memory. I am living with a debilitating illness.
Going to school every day is really hard. I try, though.
I don't feel like I learn a lot at school because I have trouble understanding what is going on.
I go to the bathroom a lot during the school day to sleep.
Teachers don't understand how sick I am and how hard I am trying. I try to give them information about Lyme, but they don't want it.
Nobody could ever imagine how sick I am by looking at me.
Let me know if you have any questions you want me to answer. I really want to help you.
Thank you so much for being an advocate for so many children who need one.
Here is a great article that you may want to print out and give copies to the people who you will be talking to:
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/