I have heart rythym issues, myu heart seems to have forgoten how to regulate itself.
I can get uncontrollable tachs as well as low pulses. I don't think I will be able to handle this when I start on antibiotics.
Is there someplace I can go where I can be monitored for awhile? thanks, JL
Posted by scared08 (Member # 14695) on :
I would highly reccomend that you see a cardiologist and request a 24 hour halter moniter to record your rythyms. Maybe an echocardiogram, test you thryroid and adrenals. Have you discussed this with any Dr.???
Posted by newdurham77 (Member # 7815) on :
Definitely see a cardiologist. If the regular one can't "handle" your case, they would refer you to a specialized cardiologist that deals exclusively with problems of rhythm -called electrophysiologists.
Posted by sutherngrl (Member # 16270) on :
There is medication for this. I had to take it when I first became ill because my heart was going crazy. I took meds for about a year and it made my blood pressure too low, so I stop taking it; but my heart is not as bad as it was back then. I have a few valve issues so I am use to having palpitations. Many times it is not anything serious but would be a good idea to see a cardiologist.
Posted by njlymemom (Member # 15088) on :
just a suggestion
if you put in the topic line that you have a question on a heart issue you might get more responses
Posted by ByronSBell 2007 (Member # 11496) on :
yes, there is a clinic for chronic lyme patients that are really ill
Posted by laura j (Member # 14257) on :
Byron, where is the clinic?
Posted by Keebler (Member # 12673) on :
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I recall reading about that. If you don't see Byron's reply soon, I'll look through my notes. [Edited to add: I see his reply below. ]
Oh, if you mention this to a normal doctor, I'd be sure not to use the term "difficult patient" as it is a killer label for your medical file. They would not think "difficult CASE" but it's the label they use for patients they want to toss in the trash can. If that is ever in your file, it could prevent you from getting the care you need.
Oh . . . have you been evaluated for QT syndrome? If you startle easily, that is just one clue.
Also . . . Arnold Peckerman, MD has done extensive research on "cardiac impedence" - some really good stuff that may relate here and tests that most cardiologists never think of doing.
You can cross search that. I'll come back later with an article, but rest calls first.
Good luck.
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Posted by ByronSBell 2007 (Member # 11496) on :
quote:Originally posted by laura j: Byron, where is the clinic?
Health Centers of America in Kansas City, MO
Posted by Keebler (Member # 12673) on :
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Here are some video links I mentioned in post above.
While some (many?) cases of CFS might be undiagnosed lyme, this information may be helpful to patients across the board.
Cardiac Insufficiency Hypothesis - article and many links, including to: Pittler MH, Schmidt K, Ernst E., Hawthorn extract for treating chronic heart failure: meta-analysis of randomized trials. Am J Med. 2003 Jun 1;114(8):665-74. [PDF Format]
Video: A three-hour talk by Dr. Cheney on diastolic cardiomyopathy and ME/CFS.
CFS and Diastolic Cardiomyopathy - Paul Cheney, M.D., Ph.D.
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New Research on Cardiac Insufficiency
several articles
There is new research from a New Jersey team, authored by Doctors Arnold Peckerman, Benjamin Natelson et al., which found left-ventricular dysfunction following exertion and orthostatic stress in patients with myalgic encephalomyelitis/chronic fatigue syndrome.
The WedMD article and the press release are available at the link below. In an NIH-funded study on impedance cardiography also linked below, Peckerman and Natelson found that low cardiac output correlated with symptom severity in ME/CFS.
Dr. A. Martin Lerner . . . Viral infection persists in the heart, causing left-ventricular dysfunction, producing exercise intolerance. Exercise, in turn, worsens the cardiac dysfunction.
. . .
More recently, physicist, physician, long-time ME/CFS researcher and clinician, and heart-transplant recipient Paul Cheney, M.D., Ph.D., has offered an alternative theory that a subset of ME/CFS patients suffer from a diastolic cardiomyopathy, a problem with ventricular filling resulting from mitochondrial dysfunction and low ATP energy in the heart.
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Again, presented not to sadden, but if there is a dysfunction, treatment for underlying causes and employing support measures can make a difference. I hope you can find a LLMD. Or call a LLMD's office and ask what doctor they would refer their patients to for cardiac matters.
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This book, by an ILADS member LLMD, might hold many answers and suggestions for you:
Magnesium is of great importance in cardiac arrhythmias.
It increases the ventricular threshold for fibrillation. Sinus node refractoriness and conduction in the AV node are both prolonged.
Main indications for intravenous application of magnesium are Torsade de pointes tachycardias, digitalis toxicity induced tachyarrhythmias and multifocal atrial tachycardias.
Additionally, patients with ventricular arrhythmias due to overdoses of neuroleptics or tricyclic antidepressants may profit from i.v. magnesium.
Monomorphic ventricular tachycardias and ventricular arrhythmias refractory to class III antiarrhythmics have been shown to respond to i.v. magnesium.
Recent publications have documented that perioperative use of magnesium can reduce the incidence of arrhythmic events on the atrial and ventricular level.
Oral magnesium has been used for many years in patients with symptomatic extrasystoles. Studies show that the incidence of extrasystoles as well as patients' symptoms are reduced during oral magnesium therapy.
PMID: 11105328
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Posted by Keebler (Member # 12673) on :
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Bryon - Thanks for that name, I am amazed. This place looks great. Looking over it, it does not seem to be a in-house residential place as would be so nice.
With a search on their site for "lyme" - at first glance they really seem to understand it, quoting Burrascano, But they also have a link explaining problems with insurance.
I am amazed I've never heard of them before. Has anyone here had experience with them ?
My thinking: however, for patients who are new to all this, who still need diagnostics or for lyme patients who have other stuff going on and get treatment for, say, heart stuff . . . the billing would be different.
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Posted by ByronSBell 2007 (Member # 11496) on :
billing is the same for most everyone, doesn't matter what symptoms you have...
Posted by LittleLymie19 (Member # 15610) on :
Does anyone know of a place like this in California? I have heart issues too, especially at night, and I would like to be monitored if it gets any worse (which hopefully it won't since it's already pretty debilitating!). I can't even be on antibiotics right now. My Primary Care Medical Facility refuses to do any more heart tests, so a place like this would be my only option. I'm no where close to this one though!
Posted by bettyg (Member # 6147) on :
keebler,
big thanks for your 2 links you showed; especially the INSURANCE REIMBURSEMENT ONE.
i copied it here starting a new post and broke it up ...long but worthwhile! xox