LymeNet Flash: How much do you trust your LLMDs????

This is topic How much do you trust your LLMDs???? in forum Medical Questions at LymeNet Flash.

To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/69789

Posted by Geet3721 (Member # 15751) on :

I just received a call from my LLMD's office and they said all co-infections are negative, which I'm thankful for I just don't know if I fully believe this

From reading different threads on this website I read how many people have been burned, and I don't want to wait to long to find out oh well you have bart or babs or something else.

I don't want to insult the first doc that is treating me like I'm not completely crazy but I want to be sure, any advise?

My symptoms started in 10/07, so my LLMD said its likely that I can recover up to 95% which is fantastic I so want my life back and I honestly don't think I ever fuctioned at 100% so 95% is perfect!

I am on week three of Omnicef at 300 mg 2 times a day, having previously received Dox 100mg twice a day for 28 days and IV Rocephin for 27 days (don't ask . . . damn ducks). Also just wondering when can I expect to feel some kind of change???

I don't think I'm Herxing and I don't really know if I feel better, somedays I think well maybe but then I'm dizzy, ugh this is very frustrating.

Thanks all!

Posted by Clarissa (Member # 4715) on :

Please PM me the name of your LLMD so we can discuss his/her protocols.

Best,

Posted by sixgoofykids (Member # 11141) on :

I think it's important to have an LLMD you trust. My coinfections tests came out negative, but my LLMD diagnosed me with bart and babs based on clinical symptoms.

Most people have coinfections.

Posted by Alv (Member # 15192) on :

I always have combined several metods to find what is wrong with me.

I found that ONE doctor DOES not KNOW IT ALL!

Combining the findings of several of them YES!

Posted by teresambear (Member # 15061) on :

I am not sure if this is same doc as mine. But, if it is Dr. R in Wading River I know for a fact that he treats co infections even if you test negative .

He goes by sx and if you are not getting better. This is something he tells me at every visit.

He, likes to knock lyme bacterial load down first. Than attacks co's than lyme

Believe me it is working.

Posted by njlymemom (Member # 15088) on :

My personal exp for myself and 3 others here

with 2 different llmds has been similar.

At first our co infection testing came back neg

so we were treated for lyme and started to

recover.

Once some of the lyme symptoms started lifting

it was easier to separate other symptoms that

were not improving.

We have been retested and some have come back for

pos co inf. and then we treat.

But other symptoms have not cleared, and seemed

in one instance to be babs and we treated

clinicly....with I am happy to say very good

results.

I don't know if this is the case for anyone else,

but for us and b/c our infections have been w/

us for most of our lives (if not all)testing has

not always given us the info we needed.

Progress has been slow but we are getting there.

Hope this helps.