LymeNet Flash: CD-57 Result

This is topic CD-57 Result in forum Medical Questions at LymeNet Flash.

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https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/70732

Posted by Lymeorsomething (Member # 16359) on :

So it looks as though my LabCorp CD-57 is 40 something...is this a good confirmation of a lyme diagnosis?

Posted by notkrazybrian (Member # 10621) on :

Yea it confirms you have lyme disease. If u havent done the western blot, theres really no reason for it now, unless u want it for more proof or other reasons. 40 is low mine was a 4 then a 19 havent done one in along time now. How are you feeling? brian

Posted by gemofnj (Member # 15551) on :

Hi Lyme,

Normal is over 60, but my LLMD recommends at least 120 before stopping abx.

Mine was a 45. It actually is an indication how your immune system was impacted by lyme. She gave me AG Immune to take so that it will help it go up.

Funny thing is, I do feel better even tho the number is low. LLMD says it has to go up before stopping abx.

Alot of people discount this test.
Strange! [dizzy]

Posted by Lymetoo (Member # 743) on :

quote:
Originally posted by gemofnj:
Alot of people discount this test.

Yes, because some with high test results feel horrible and some with low results feel good. Go figure.

Posted by Lymeorsomething (Member # 16359) on :

Thanks guys. My most recent Igenex western blot was positive IGM too. I was just wondering what the concensus was about the CD-57. I appreciate the answers.

Also I still feel like garbage...heavy fatigue still and even though I manage to work I can't do much else....

Posted by ByronSBell 2007 (Member # 11496) on :

quote:
Originally posted by gemofnj:
Hi Lyme,

Normal is over 60, but my LLMD recommends at least 120 before stopping abx.

Mine was a 45. It actually is an indication how your immune system was impacted by lyme. She gave me AG Immune to take so that it will help it go up.

Funny thing is, I do feel better even tho the number is low. LLMD says it has to go up before stopping abx.

Alot of people discount this test.
Strange!

That's strange, my LLMD wants patients to be over 200, clean Fry Labs smear, and symptom free before stopping treatment.

Posted by sameetra (Member # 16639) on :

Lymeorsomething,

Hello again !

LabCorp does a CD-57?

I couldn't find it on their website test menu...

I would like this test done while waiting for my 1st LLMD appointment.

Anyone know if it can be done through Quest, as well?

Thank You [hi]

Posted by Lymetoo (Member # 743) on :

Sameetra, I would rely on LabCorp for this one.

Byron... What about people whose CD57 will NEVER get above 100 or 200??? What then?

Posted by Lymeorsomething (Member # 16359) on :

I think that LI doctor B said that normal is over 200 as well...in his guidelines from a couple of years ago...

Posted by Lymeorsomething (Member # 16359) on :

Sam, it is true that LabCorp's CD-57 test is more trusted than Quest's generally....

Posted by gemofnj (Member # 15551) on :

I am definitely not an authority.

My LLMD said hers was 120. Her husband died of lyme and both her kids were born with it.

And I noticed on my test results from labcorp the normal range is 60-300.

Byron, who is your LLMD?

Posted by Allie (Member # 10778) on :

Here is a link to a great thread from a little while ago entitled "everything you wanted to know about the CD57 test and were too sick to ask".

It describes why Labcorp test is different (and better) than Quest.

http://flash.lymenet.org/scripts/ultimatebb.cgi?ubb=get_topic;f=1;t=068485#000000

I hope this helps.

Allie

Posted by gemofnj (Member # 15551) on :

Allie,

Thanks. Great information. [Smile]

Posted by Lymeorsomething (Member # 16359) on :

I gather that 200-300 is preferable but that 60-200 is OK....

Posted by Blackstone (Member # 9453) on :

Very, very important note.

Labcorp CD57 is time sensitive - That is to say, every day that you wait after collection, the less accurate the test becomes.

Make sure you have blood drawn on a monday or tuesday at the latest, so the test is performed in a day or two. This will provide the most accurate results.

Posted by lymednva (Member # 9098) on :

If you are treating Lyme 120 seems to be a minimum number to have before stopping tx.

My LLMD would switch me to herbal tx if mine had gone up that much. It hasn't. At last check it was 39.

Posted by Tracy9 (Member # 7521) on :

Mine is 32. My LLMD said they like to see it at least 150.

Posted by Lymeorsomething (Member # 16359) on :

Thanks for the replies....I guess that I have a ways to go...

My symptoms haven't budged much so I'll probably have to hit things harder....

Posted by ByronSBell 2007 (Member # 11496) on :

quote:
Originally posted by Lymetoo:
Sameetra, I would rely on LabCorp for this one.

Byron... What about people whose CD57 will NEVER get above 100 or 200??? What then?

Some patients immune systems never totally recover so they have to stay on low dose abx for a long time once they get where they want.

Posted by AliG (Member # 9734) on :

I just replied to your other thread & then saw this one.

I do believe that Lyme is the only thing KNOWN to impact the CD-57 like that.

A CD 57 of "26" got me thwapped with IV Rocephin again WITH Biaxin added this time. [Roll Eyes]

Sorry to say, welcome to the club! [group hug]

Posted by disturbedme (Member # 12346) on :

Augh, the CD57 is kind of annoying. Mine is only 9... it was 18 and now it's down to 9 and has stayed at 9 for about half a year. [bonk]

My husband's is only 26.

Posted by Lymeorsomething (Member # 16359) on :

Disturbed, how are your symptoms at the moment?

Posted by disturbedme (Member # 12346) on :

quote:
Originally posted by Lymeorsomething:
Disturbed, how are your symptoms at the moment?

Truthfully, I feel better now at 9 than when my CD57 was at 18. At 18, I was at my sickest and was going from doc to doc to try to find out what was wrong with me.

I've been treating about a year and a half and my CD57 is down to 9. Not sure exactly what this means.

All I know is that I physically am doing better than I was. I'm having more good days. I still have bad days, though. It's still a roller coaster ride for me, but it is better than it was.