posted
Yea it confirms you have lyme disease. If u havent done the western blot, theres really no reason for it now, unless u want it for more proof or other reasons. 40 is low mine was a 4 then a 19 havent done one in along time now. How are you feeling? brian
Posts: 217 | From Everywhere | Registered: Nov 2006
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gemofnj
Frequent Contributor (1K+ posts)
Member # 15551
posted
Hi Lyme,
Normal is over 60, but my LLMD recommends at least 120 before stopping abx.
Mine was a 45. It actually is an indication how your immune system was impacted by lyme. She gave me AG Immune to take so that it will help it go up.
Funny thing is, I do feel better even tho the number is low. LLMD says it has to go up before stopping abx.
Alot of people discount this test. Strange! Posts: 1127 | From atlantic city, nj | Registered: May 2008
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quote:Originally posted by gemofnj: Alot of people discount this test.
Yes, because some with high test results feel horrible and some with low results feel good. Go figure.
-------------------- --Lymetutu-- Opinions, not medical advice! Posts: 96227 | From Texas | Registered: Feb 2001
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
Thanks guys. My most recent Igenex western blot was positive IGM too. I was just wondering what the concensus was about the CD-57. I appreciate the answers.
Also I still feel like garbage...heavy fatigue still and even though I manage to work I can't do much else....
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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ByronSBell 2007
Unregistered
posted
quote:Originally posted by gemofnj: Hi Lyme,
Normal is over 60, but my LLMD recommends at least 120 before stopping abx.
Mine was a 45. It actually is an indication how your immune system was impacted by lyme. She gave me AG Immune to take so that it will help it go up.
Funny thing is, I do feel better even tho the number is low. LLMD says it has to go up before stopping abx.
Alot of people discount this test. Strange!
That's strange, my LLMD wants patients to be over 200, clean Fry Labs smear, and symptom free before stopping treatment.
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Labcorp CD57 is time sensitive - That is to say, every day that you wait after collection, the less accurate the test becomes.
Make sure you have blood drawn on a monday or tuesday at the latest, so the test is performed in a day or two. This will provide the most accurate results.
Posts: 690 | From East coast, USA | Registered: Jun 2006
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lymednva
Frequent Contributor (1K+ posts)
Member # 9098
posted
If you are treating Lyme 120 seems to be a minimum number to have before stopping tx.
My LLMD would switch me to herbal tx if mine had gone up that much. It hasn't. At last check it was 39.
-------------------- Lymednva Posts: 2407 | From over the river and through the woods | Registered: Apr 2006
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
posted
Mine is 32. My LLMD said they like to see it at least 150.
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
Thanks for the replies....I guess that I have a ways to go...
My symptoms haven't budged much so I'll probably have to hit things harder....
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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ByronSBell 2007
Unregistered
posted
quote:Originally posted by Lymetoo: Sameetra, I would rely on LabCorp for this one.
Byron... What about people whose CD57 will NEVER get above 100 or 200??? What then?
Some patients immune systems never totally recover so they have to stay on low dose abx for a long time once they get where they want.
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
I just replied to your other thread & then saw this one.
I do believe that Lyme is the only thing KNOWN to impact the CD-57 like that.
A CD 57 of "26" got me thwapped with IV Rocephin again WITH Biaxin added this time.
Sorry to say, welcome to the club!
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Augh, the CD57 is kind of annoying. Mine is only 9... it was 18 and now it's down to 9 and has stayed at 9 for about half a year.
My husband's is only 26.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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Lymeorsomething
Frequent Contributor (1K+ posts)
Member # 16359
posted
Disturbed, how are your symptoms at the moment?
-------------------- "Whatever can go wrong will go wrong." Posts: 2062 | From CT | Registered: Jul 2008
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
quote:Originally posted by Lymeorsomething: Disturbed, how are your symptoms at the moment?
Truthfully, I feel better now at 9 than when my CD57 was at 18. At 18, I was at my sickest and was going from doc to doc to try to find out what was wrong with me.
I've been treating about a year and a half and my CD57 is down to 9. Not sure exactly what this means.
All I know is that I physically am doing better than I was. I'm having more good days. I still have bad days, though. It's still a roller coaster ride for me, but it is better than it was.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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