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Posted by Clint31 (Member # 16420) on :
 
Is the constant dizziness I have while walking dangerous, or is it something to be expected? What are possible things that could be causing this? Or is it just the toxins being released in the brain during my treatment with ABx?

Thanks
 
Posted by sixgoofykids (Member # 11141) on :
 
I had that. I think the biggest danger is falling.
 
Posted by Clint31 (Member # 16420) on :
 
So I shouldn't worry
 
Posted by disturbedme (Member # 12346) on :
 
The only real dangerous thing about it, I think, would be walking and ending up tripping or falling over and injuring yourself that way.

I have/had dizziness for over a year when I first got very ill. I still have it once in a while. It's really disconcerting, but I don't think it'll harm you unless you try to walk or drive in that condition. Please, please, please don't try to drive or carry something heavy, etc., etc., -- the list could go on -- when you are dizzy.
 
Posted by sixgoofykids (Member # 11141) on :
 
Beyond mentioning it to your LLMD and detoxing as much as you can, I wouldn't worry. For months I needed someone's arm to hold onto to walk.

I did drive, but it was more of a balance issue than true dizziness. If I was sitting down, I didn't really feel it at all.
 
Posted by Clint31 (Member # 16420) on :
 
This is the symptom that makes me feel like im a dying young man
 
Posted by pigwit (Member # 9059) on :
 
Toxins could be part of the problem. I had increasing problems with balance, coordination or muscle control, exhaustion, etc. These problems immediately decreased when I had mecury amalgam fillings removed last week.

I am hoping for further improvement as I detox.
 
Posted by Lymetoo (Member # 743) on :
 
You'll be OK, Clint!! I promise!!

Hi pigwit!! [hi]
 
Posted by llelnino (Member # 16067) on :
 
I am constantly dizzy and lightheaded especially when standing or with exertion.
 
Posted by Erica741 (Member # 15186) on :
 
Clint,

I think I recall you saying on another post that you are on minocycline? Mino is notorious for causing dizziness. With some people, the dizziness passes after awhile, but for others (like me) it is a horrible side effect that gets worse as treatment progresses.

My LLMD replaced my minocycline with omnicef, which is generally better tolerated.

I hope you feel better and your dizziness passes soon.

Erica
 
Posted by Clint31 (Member # 16420) on :
 
yeah the dizziness has been since july, some days are better than others. doxy has been constant since then.

Maybe it is the doxy/minocycline.

I told my LLMD it was my worst symptom and made it very clear, she said "we can help the dizziness" and never really addressed it. I think I thought that she was gonna look at my hormone levels as a possible cause
 
Posted by Clint31 (Member # 16420) on :
 
i'd think my body would be adjusted to the doxy by now though... after a couple months of taking it.

I also have decreased my dosage from 400 mg a day to 200 mg a day... so if it was the doxy causing it I would think it would have helped.
 
Posted by Keebler (Member # 12673) on :
 
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Clint,

This may be a reaction to one of the meds (i.e. zithromax?).

It does not sound like you are taking minocycline, still, this may help as many get vertigo and tinnitus with zith.


If so, ask if you can take NAC and B-6. B-6 helped reduce vertigo in a study where minocycline triggered it. ( http://tinyurl.com/3xpvck )

NAC has been mentioned in other research to help reduce vertigo as a side-effect of some meds. But, you should ask your doctor as NAC may cause some meds to be cleared too quickly.


Sometimes, it just takes a while being on treatment.


Often, the vertigo is because the inner ear is greatly affected by toxins. Inflammation, too, is a culprit. Turmeric (or it's stronger version, curcumin) may help in that regard as it is anti-inflammatory.

You might ask if you can substitute another Rx for the zith.

in the meantime, ginger . . . ginger tea.

or some anti-vertigo Rx (others will know those - I'm more for the ginger.)

Good luck.


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Posted by Clint31 (Member # 16420) on :
 
Is it the zith, or the doxy causing the dizziness
 
Posted by Lymetoo (Member # 743) on :
 
I thought you said you were on mino?? Mino is notorious for causing dizziness.

Any known lyme symptom that gets worse [or shows up for the first time] while on abx is most likely due to a herx.

BUT... mino is definitely a wobbler !!
 
Posted by Clint31 (Member # 16420) on :
 
I think it is the mino along with some herxing or die off.... that sounds likely
 
Posted by Lymetoo (Member # 743) on :
 
 -
 
Posted by lymeHerx001 (Member # 6215) on :
 
Clint, I have chronic vertigo/dizziness and multiple chemical sensitivities since starting on Biaxin in 04.

It by far is the most depressing symptom. I felt like I lost part of myself.


I have tried to go off the Biaxin for many months and the dizzyness does not go away.

I used to get it every so often but now it just stays.

I had to stop wearing my favorite cologne and I cant even smell that well anymore.
 
Posted by Geneal (Member # 10375) on :
 
How is your blood pressure?

I have dizziness upon standing up too quickly or standing still.

I have POTs and NMH.

Mino caused true vertigo for me.

I couldn't even crawl on the floor on it.

Not a good thing for a mother of two.

I can't take it.

Drink a lot of water for sure.

Maybe ask your doctor about possible dysautonomia issues as well.

Hugs,

Geneal
 
Posted by lymeHerx001 (Member # 6215) on :
 
I dont know if your quesiton is directed at me...

but while Im at it my blood pressure is perfect.


Only upon standing does it drop and I get dizzy. Plaquenil makes this WAY WORSE!!!!!!!

Vertigo and Dizzyness is different.
 
Posted by Clint31 (Member # 16420) on :
 
The dizziness just isn't getting any better
 
Posted by Keebler (Member # 12673) on :
 
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How much ginger have you been taking each day? It generally needs to be taken 3 times a day for it to help.


Did you discuss with your LLMD changing anything about your protocol (i.e. the zith - if it is causing the vertigo what are her suggestions?)


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Posted by Lymetoo (Member # 743) on :
 
quote:
Originally posted by Clint31:
The dizziness just isn't getting any better

Stop your meds for two days and see what happens. Contact your LLMD for advice ... not me... [Wink]

If you're better, it's a herx.
 
Posted by Clint31 (Member # 16420) on :
 
quote:
Originally posted by Keebler:
-

How much ginger have you been taking each day? It generally needs to be taken 3 times a day for it to help.


Did you discuss with your LLMD changing anything about your protocol (i.e. the zith - if it is causing the vertigo what are her suggestions?)


-

I need to get some ginger. Do they sell it at GNC
 
Posted by lymeHerx001 (Member # 6215) on :
 
they sell it many places
 
Posted by notkrazybrian (Member # 10621) on :
 
GNC is one of the most OVER PRICED places to buy supplements i would try other places...
www.iherb.com
www.vitacost.com
www.immunesupport.com
there are more, but cant remember right now
 
Posted by Clint31 (Member # 16420) on :
 
Just got 200 magnesium tablets at the store for like $5
 
Posted by lymeHerx001 (Member # 6215) on :
 
keep in mind that there are different forms of magnessium.
 
Posted by Clint31 (Member # 16420) on :
 
of course naturally the form I bought will be the wrong one
 
Posted by Lymetoo (Member # 743) on :
 
Yeah, well.... the cheap forms are not as absorbable.

Look for mg glycinate or asporotate next time... not mg oxide.
 
Posted by lymeHerx001 (Member # 6215) on :
 
also certain forms are more prone to diahorea
 
Posted by IMHisda (Member # 6998) on :
 
Make sure yoru LLMD check your Hormone levels and your blood pressure laying down and standing. My brain stopped making Cortisol due to Lyme and this causes the orthostatic blood pressure when I up at times.
 
Posted by kylasrain (Member # 12031) on :
 
quote:
Originally posted by Clint31:


Maybe it is the doxy/minocycline.

It's the mino. No doubt. I just got off it after sitting still and staring at a wall for 6 days to keep from throwing up like I was out to sea!

Its not dangerous, per se, but logically, being dizzy all of the time can't be good.
 


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