LymeNet Flash: WB false negatives

This is topic WB false negatives in forum Medical Questions at LymeNet Flash.

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Posted by barbarame (Member # 16423) on :

Does anyone know where I need to go to get articles on false negative testing .

I am ill with symptoms from this disease and unfortuanely do not test positive.

I am trying to start collecting in case my insurance denies.

thank you,
barb

Posted by Keebler (Member # 12673) on :

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Sorry, this is all I have that directly mentions testing. It may help. You can call the author's office for the list of references used and go directly to those, too.

The phone number is at the link, bottom of article:

http://tinyurl.com/2dmvs2

From the May 2007 issue of Clinical Advisor (home page: www.clinicaladvisor.com )

CONTROVERSY CONTINUES TO FUEL THE "LYME WAR"
By Virginia Savely, RN, FNP-C

*****

As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.

Excerpts:

" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."

`` . . . Patients with Lyme disease almost always have negative results on standard blood screening tests and have no remarkable findings on physical exam . . . "

". . . If all cases were detected and treated in the early stages of Lyme disease, the debate over the diagnosis and treatment of late-stage disease would not be an issue, and devastating rheumatologic, neurologic, and cardiac complications could be avoided..."

. . . * Clinicians do not realize that the CDC has gone on record as saying the commercial Lyme tests are designed for epidemiologic rather than diagnostic purposes, and a diagnosis should be based on clinical presentation rather than serologic results.

- FULL ARTICLE AT LINK ABOVE.

======================

I don't know if this would be of help:

www.ct.gov/ag/cwp/view.asp?a=2795&q=414284

Connecticut Attorney General's Office

Press Release

Attorney General's Investigation Reveals Flawed Lyme Disease Guideline Process, IDSA Agrees To Reassess Guidelines, Install Independent Arbiter

May 1, 2008

Attorney General Richard Blumenthal today announced that his antitrust investigation has uncovered serious flaws in the Infectious Diseases Society of America's (IDSA) process for writing its 2006 Lyme disease guidelines and the IDSA has agreed to reassess them with the assistance of an outside arbiter.

- cont'd at link.

Printable version: www.ct.gov/ag/cwp/view.asp?a=2795&q=414284&pp=12&n=1

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In TREEPATROL's NEWBIE LINKS - there is a full section on Wester Blot testing.

http://flash.lymenet.org/ubb/ultimatebb.php?ubb=get_topic;f=1;t=029917

treepatrol's - Topic: Newbie Learning Help Links 5/21/08

This is just one link from there: CDC Citations

www.lymeinfo.net/cdccitations.html

From the left hand column:

Quote:

"Not all LD patients present with typical manifestations; other conditions might be confused with LD and laboratory testing might be inaccurate."

- Centers for Disease Control MMWR, January 18, 2002 / 51(02);29-31

====================

And, the LDA may be a good resource for you:

www.lymediseaseassociation.org

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Posted by adamm (Member # 11910) on :

I know Johns Hopkins published one in which they basically

concluded that all Lyme testing is crap...

maybe try lymecryme.com or lymeinfo.net?

Posted by barbarame (Member # 16423) on :

thank you very much.

barb

Posted by herbalfrog (Member # 12711) on :

I tested negative twice; then insisted to be tested by Bowen Research Institute in Tarpon Springs, Florida, where they test with fluorescopy: positive for Lyme, Babesiosis and Bartonella.
I would like to refer you to "wildernetwork.org/bowen.html