posted
Does anyone know where I need to go to get articles on false negative testing .
I am ill with symptoms from this disease and unfortuanely do not test positive.
I am trying to start collecting in case my insurance denies.
thank you, barb
Posts: 167 | From USA | Registered: Jul 2008
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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Sorry, this is all I have that directly mentions testing. It may help. You can call the author's office for the list of references used and go directly to those, too.
The phone number is at the link, bottom of article:
CONTROVERSY CONTINUES TO FUEL THE "LYME WAR" By Virginia Savely, RN, FNP-C
*****
As two medical societies battle over its diagnosis and treatment, Lyme disease remains a frequently missed illness. Here is how to spot and treat it.
Excerpts:
" . . .To treat Lyme disease for a comparable number of life cycles, treatment would need to last 30 weeks. . . ."
`` . . . Patients with Lyme disease almost always have negative results on standard blood screening tests and have no remarkable findings on physical exam . . . "
". . . If all cases were detected and treated in the early stages of Lyme disease, the debate over the diagnosis and treatment of late-stage disease would not be an issue, and devastating rheumatologic, neurologic, and cardiac complications could be avoided..."
. . . * Clinicians do not realize that the CDC has gone on record as saying the commercial Lyme tests are designed for epidemiologic rather than diagnostic purposes, and a diagnosis should be based on clinical presentation rather than serologic results.
Attorney General Richard Blumenthal today announced that his antitrust investigation has uncovered serious flaws in the Infectious Diseases Society of America's (IDSA) process for writing its 2006 Lyme disease guidelines and the IDSA has agreed to reassess them with the assistance of an outside arbiter.
posted
I tested negative twice; then insisted to be tested by Bowen Research Institute in Tarpon Springs, Florida, where they test with fluorescopy: positive for Lyme, Babesiosis and Bartonella. I would like to refer you to "wildernetwork.org/bowen.html
-------------------- Else Posts: 82 | From Florida | Registered: Aug 2007
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