I believe I have the cyst form of the disease from how my LLMD described it to us. She said that the bacteria is smart and can change its form, that it can 'harden' etc. etc. and make itself harder to be killed by drugs like doxy. I think she was telling me I have the cyst form.
If I have the cyst form, does this mean I have a nasty strain of lyme? Or does it mean I've had it for a long time? What is different about people who have the cyst form and people that have traditional lyme?
Posted by Wimenin (Member # 15294) on :
You can have all the forms, and I dont think it means anything other then the lyme changes as it tries to survive.
btw: From what Ive heard, doxy doesnt break down the cyst form. So if thats what you've got, (and I believe everyone has some cyst forms in them), you're going to need something else to break the cyst, like flagyl or Tindamax..
Posted by Clint31 (Member # 16420) on :
starting flagyl today.
Posted by treepatrol (Member # 4117) on :
Just means you have lyme.
Posted by sixgoofykids (Member # 11141) on :
All of our Lyme can change to three forms - cyst, cell wall deficient, and spirochete. My LLMD treats all forms at the same time so the Lyme can't hide.
Drugs like Flagyl, Tindamax work on cysts.
Drugs like Biaxin, Zith, etc. work on cell wall deficient/gram negative. I believe the tetracyclines are also in this category (can someone confirm?), but I believe they also work on the spirochetes. They are described as being both gram-negative and gram-positive abx.
Drugs like amoxy, bicillin, omnicef, ceftin, etc, work on spirochete.
Posted by gemofnj (Member # 15551) on :
Can I ask a few questions?
How would your doctor know you have the "cyst" form?
Why wouldnt the LLMD's treat for cyst form automatically?
Does Zith kill it??
Is there a test for it, or you just dont get better??
Posted by TF (Member # 14183) on :
To gemofnj, I tried to send you a private message answering your questions, but your mailbox was full.
Posted by Clint31 (Member # 16420) on :
I think if you plateau.... you can consider that you might have cyst form... from what i was told...
Posted by adamm (Member # 11910) on :
Everyone with Lyme has spiral, cystic, and L-forms in them.
Posted by Keebler (Member # 12673) on :
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The spriochete automatically goes into cyst form. Anyone who has lyme will also have this form. There is no way around it.
That is why combination treatment is ALWAYS used . . . rotation and combination. Different methods, too.
The Singleton book explains much about this in detail.
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This book, by an ILADS member LLMD, has a lot of good information:
- by Kenneth B. Singleton , MD; James A. Duke. Ph.D. (Foreword)
You can read more about it and see customer reviews.
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[ 26. September 2008, 02:11 PM: Message edited by: Keebler ]
Posted by NorthernLyme1 (Member # 8992) on :
Here is a detailed video on conversion of spirochetes into the cyst form due to addition of penicillin thanks to the work of a poster called lymebug. The field of view is not given but I would estimate at around 100 microns.
Why do some people get better on just one abx then without adding in flagy or tindi. which are considered cyst busters?
Didn't Dr. B get better on ceftin alone, just by taking it, getting better, then re-introducing it?
Just thinking out loud here. I never did take flagyl or tindi. My LLMD said they are too toxic and wouldn't prescribe them for me.
I do take GSE, hoping that helps with cysts.
Posted by maureen2174 (Member # 11471) on :
Why do some people get better on just one abx then without adding in flagy or tindi. which are considered cyst busters?
Didn't Dr. B get better on ceftin alone, just by taking it, getting better, then re-introducing it?
Just thinking out loud here. I never did take flagyl or tindi. My LLMD said they are too toxic and wouldn't prescribe them for me.
I do take GSE, hoping that helps with cysts.
Posted by Lymetoo (Member # 743) on :
quote:Originally posted by adamm: Everyone with Lyme has spiral, cystic, and L-forms in them.
absolutely correct!
Posted by Bobidor (Member # 14453) on :
quote: Didn't Dr. B get better on ceftin alone, just by taking it, getting better, then re-introducing it?
From what I understood, Dr. B did that at the very end of his treatment. I don't know for how long he was treated nor which abx he took before ceftin.
My LLMD told me yesterday that it can work when you've been treating Lyme for a long time but can't quite get rid of some last few symptoms. The ceftin trick can give good results then, but there's no guarantee.