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» LymeNet Flash » Questions and Discussion » Medical Questions » If you have cyst form what does that indicate?

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Author Topic: If you have cyst form what does that indicate?
Clint31
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I believe I have the cyst form of the disease from how my LLMD described it to us. She said that the bacteria is smart and can change its form, that it can 'harden' etc. etc. and make itself harder to be killed by drugs like doxy. I think she was telling me I have the cyst form.

If I have the cyst form, does this mean I have a nasty strain of lyme? Or does it mean I've had it for a long time? What is different about people who have the cyst form and people that have traditional lyme?

--------------------
DX'ed Lyme Disease: 7/7/2008
DX'ed Babesia, Epstein Barr, Liver Parasite 8/15/2013.

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Wimenin
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You can have all the forms, and I dont think it means anything other then the lyme changes as it tries to survive.

btw: From what Ive heard, doxy doesnt break down the cyst form. So if thats what you've got, (and I believe everyone has some cyst forms in them), you're going to need something else to break the cyst, like flagyl or Tindamax..

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Clint31
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starting flagyl today.

--------------------
DX'ed Lyme Disease: 7/7/2008
DX'ed Babesia, Epstein Barr, Liver Parasite 8/15/2013.

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treepatrol
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Just means you have lyme.

--------------------
Do unto others as you would have them do unto you.
Remember Iam not a Doctor Just someone struggling like you with Tick Borne Diseases.

Newbie Links

Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
sixgoofykids
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All of our Lyme can change to three forms - cyst, cell wall deficient, and spirochete. My LLMD treats all forms at the same time so the Lyme can't hide.

Drugs like Flagyl, Tindamax work on cysts.

Drugs like Biaxin, Zith, etc. work on cell wall deficient/gram negative. I believe the tetracyclines are also in this category (can someone confirm?), but I believe they also work on the spirochetes. They are described as being both gram-negative and gram-positive abx.

Drugs like amoxy, bicillin, omnicef, ceftin, etc, work on spirochete.

--------------------
sixgoofykids.blogspot.com

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gemofnj
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Can I ask a few questions?

How would your doctor know you have the "cyst" form?

Why wouldnt the LLMD's treat for cyst form automatically?

Does Zith kill it??

Is there a test for it, or you just dont get better??

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TF
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To gemofnj, I tried to send you a private message answering your questions, but your mailbox was full.
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Clint31
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I think if you plateau.... you can consider that you might have cyst form... from what i was told...

--------------------
DX'ed Lyme Disease: 7/7/2008
DX'ed Babesia, Epstein Barr, Liver Parasite 8/15/2013.

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adamm
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Everyone with Lyme has spiral, cystic, and L-forms in them.
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Keebler
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-

The spriochete automatically goes into cyst form. Anyone who has lyme will also have this form. There is no way around it.

That is why combination treatment is ALWAYS used . . . rotation and combination. Different methods, too.

The Singleton book explains much about this in detail.


-

This book, by an ILADS member LLMD, has a lot of good information:


http://tinyurl.com/6lq3pb (through Amazon)

THE LYME DISEASE SOLUTION

- by Kenneth B. Singleton , MD; James A. Duke. Ph.D. (Foreword)

You can read more about it and see customer reviews.


-

[ 26. September 2008, 02:11 PM: Message edited by: Keebler ]

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NorthernLyme1
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Here is a detailed video on conversion of spirochetes into the cyst form due to addition of penicillin thanks to the work of a poster called lymebug. The field of view is not given but I would estimate at around 100 microns.

http://www.youtube.com/watch?v=lVmCa70bAxE&feature=related

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maureen2174
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Why do some people get better on just one abx then without adding in flagy or tindi. which are considered cyst busters?

Didn't Dr. B get better on ceftin alone, just by taking it, getting better, then re-introducing it?

Just thinking out loud here. I never did take flagyl or tindi. My LLMD said they are too toxic and wouldn't prescribe them for me.

I do take GSE, hoping that helps with cysts.

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maureen2174
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Why do some people get better on just one abx then without adding in flagy or tindi. which are considered cyst busters?

Didn't Dr. B get better on ceftin alone, just by taking it, getting better, then re-introducing it?

Just thinking out loud here. I never did take flagyl or tindi. My LLMD said they are too toxic and wouldn't prescribe them for me.

I do take GSE, hoping that helps with cysts.

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Lymetoo
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quote:
Originally posted by adamm:
Everyone with Lyme has spiral, cystic, and L-forms in them.

absolutely correct!

--------------------
--Lymetutu--
Opinions, not medical advice!

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Bobidor
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quote:
Didn't Dr. B get better on ceftin alone, just by taking it, getting better, then re-introducing it?
From what I understood, Dr. B did that at the very end of his treatment. I don't know for how long he was treated nor which abx he took before ceftin.

My LLMD told me yesterday that it can work when you've been treating Lyme for a long time but can't quite get rid of some last few symptoms. The ceftin trick can give good results then, but there's no guarantee.

Julie

Posts: 209 | From Montreal, QC, CAN | Registered: Jan 2008  |  IP: Logged | Report this post to a Moderator
   

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