HEllo my whole goal is to see what the # 1 issus of lyme is, i know almost everyone has several just curios your most distrubing one is.
mine is weakness.pain in arms
Posted by Hoosiers51 (Member # 15759) on :
horrible, constant fatigue/drowsiness
Posted by seekhelp (Member # 15067) on :
severe neck / jaw tightness. It feels like someone is twisting my neck with a rubber band and pressing their fist into my jaw. It is relentless. It's not stabbling pain, just unbearable pressure and now I'm getting tingling in my face around the area.
The only abnormality on my cervical MRI was four bulging discs from the C4-T1.
Posted by UnexpectedIlls (Member # 15144) on :
Severe Head pressure, and feeling like when I walk I veer to left and like I am walking on a treadmill, Tachycardia, palpitations and heart racing while sleeping. De conditiong and being bedridden for almost 2 years.
[ 03. November 2008, 07:32 PM: Message edited by: UnexpectedIlls ]
Posted by Ocean (Member # 3496) on :
If I could get rid of the anxiety, it would be the fatigue.
Take care, Ocean
Posted by hopeandhealth (Member # 17605) on :
Neck muscles/jaw tightness....crispy/burned feeling on my skin...but no burn.
It never ever stops.
Posted by havefaith377 (Member # 15250) on :
Shoulder/neck/arm pain!!! L worse than R.
Posted by MayberryNut (Member # 16589) on :
Very bothersome and constant tremor of the back and neck. (Neck pain and headache are also a nuisance.)
Posted by gemofnj (Member # 15551) on :
Looking back over the last 11 months, the most relentless, continuous pain that hasnt disappeared yet is the NECK soreness and stiffness by FAR the most annoying symptom.
It was one of my early symptoms and still has not disappeared. UGH. Posted by Angelica (Member # 15601) on :
Fatigue normally and lack of stamina but when my bart symptoms are in full swing I would have to say out of control anxiety which can turn into panic attacks.
Posted by designt1 (Member # 16568) on :
knee stiffness, swelling, and more recent, knee pain!
Posted by GraceT (Member # 16558) on :
TINGLING, RINGING, BUZZING EARS, HEAD & NECK .
Any Herx causes additional shooting pains in ears and head. Heck ~ used to be worse. A number of Symptoms have been peeled back. Above is part of what I deal with recently.
Posted by rachellemarie (Member # 16419) on :
Massive fatigue! Like I am on a sleeping pill all day long at its worse.
Posted by joalo (Member # 12752) on :
Fatigue!!!
Posted by Liz D (Member # 16739) on :
shooting stabbing pains in my muscles, joints, bones and skin. I truly thought I was loosing my mind over it.....
Posted by Geet3721 (Member # 15751) on :
Dizziness, weird heart palps and Anxiety!!!!
[ 11. November 2008, 12:58 PM: Message edited by: Geet3721 ]
Posted by adamm (Member # 11910) on :
Cognitive impairment that's done nothing but get worse with treatment.
Posted by sparkle7 (Member # 10397) on :
Back pain. Sometimes it's in one area & then in another.
I always have lower back pain, though.
In the beginning, it was more neck pain. Now my neck isn't so bad anymore... Strange.
Posted by sutherngrl (Member # 16270) on :
Horrible, crazy fatigue!
Posted by disturbedme (Member # 12346) on :
Most of my symptoms are neuro... except for the tachycardia, which I'd say is the WORST symptom I have, but since it's controlled with beta blockers, it's not usually noticeable anymore for the most part.
I guess the WORST symptom (other than the NOW controlled tachycardia) I have is the just feeling 'out of it', full-head feeling, flu-like, draggy, dizziness, etc. Just a feeling of total malaise.
Posted by blaze (Member # 16838) on :
Teeth-clenching jaw tension, anxiety, and agitation.
Posted by echostef (Member # 12867) on :
Daily headaches, knee pain, and constant, overwhelming fatigue.
Posted by pryorka (Member # 13649) on :
24/7 headache and pressure
Posted by stuman455 (Member # 17823) on :
Always fatigued.....
Posted by toby67 (Member # 17143) on :
Great question and interesting answers! Mine is deep bone pain (legs) and fatigue - unless I'm in a bart herx, then add rage attacks!
Posted by Annxyz (Member # 9097) on :
Bone crushing indescribable fatigue ( getting dressed is hard ) and INTENSE flu like feeling ( accompanied w/ chills for 12 years )
On top this is a weariness of fighting a battle that seems insurmountable after 12 years ( This symptom is accompanied by tears ) .
Posted by lymephobic (Member # 17556) on :
Neck Pain/Pressure and feeling as if I am losing my mind.
The pain is so bad on some days that I feel like I will vomit. Advil helps, but only for a short time.
Posted by zil (Member # 12048) on :
I'm the same as Annxyz. Daily exhaustion, low stamina is the worst. I am terribly de-conditioned. I have constant neck pain, jaw tension/clenching, burning tongue. Sick, sick, sick, of it all.
Posted by LittleLymie19 (Member # 15610) on :
Feeling like I'm suffocating 24/7. It's a mix of shortness of breath/chest pressure/air hunger/heart palps/heart rate issues that makes me feel like I can't breathe or could pass out at any moment.
Posted by savebabe (Member # 9847) on :
Headaches!
Posted by blinkie (Member # 14470) on :
Fatigue-mosdt disabling symptom
neck pain/stiffness-most painful symptom
heart issues-scariest symptom
Posted by Cadames62008 (Member # 16275) on :
tacharcia, and the shaky feeling even though I am not shaking like a vibration feeling
Posted by tickssuck (Member # 15388) on :
I'm like the above poster. The shaky, constant electrical feeling, makes me tremor sometimes - this is by far my most uncomfortable symptom. The heart stuff is scary too.
Posted by sweet suze (Member # 17492) on :
Like Liz D, shooting stabbing pains everywhere, but terrible joint pain, muscle pain and fatigue are just as bad
Posted by Nutmeg (Member # 7250) on :
Muscle/connective tissue/joint pain and structural dysfunction in all the places I've been injured many times...neck & upper back, right knee, low back. I have degenerative arthritis in all these places, and lots of inflammation, and probably zillions of colonies living the high life there.
Nutmeg
Posted by mazou (Member # 15319) on :
Derealization/unreality, cognitive impairment, deep bone achiness
Posted by JKM03 (Member # 17788) on :
My daughter; Seizures and horrible headaches
Posted by Erica741 (Member # 15186) on :
Definitely the severe fatigue that prevents me from leaving the house most of the time.
Also the almost constant fever, which makes the fatigue even worse.
Posted by METALLlC BLUE (Member # 6628) on :
Fatigue (Neurological/Psychiatric)
Posted by randibear (Member # 11290) on :
severe eye pain, dryness and facial twitching....
so mostly facial symptoms
Posted by lymielauren28 (Member # 13742) on :
Brain fog! I feel like I'm high as a kite half the time - I don't know how else to describe it. Everything looks weird, sounds weird, etc. Like I'm not really connected to earth or anything else around me. It's my worst symptom and the one that seems the most reticent to go Posted by feelfit (Member # 12770) on :
Headaches and Head pressure 24/7 for over a year has been constant since starting tx.
Second in line is anxiety and agitation, eye weirdness.
Posted by Tracy9 (Member # 7521) on :
Profound fatigue
Posted by Al (Member # 9420) on :
Dizziness, feel like fainting all the time
Posted by Fordace (Member # 14874) on :
ANXIETY all the time is the worst, then the elbows and knees.....this sucks. I feel like crying it sucks so bad......
Lets not forget the music playing in my head 24/7....I think I will go mad one day....
Posted by Julie F. (Member # 15956) on :
twitching in my left arm has been my longest/most consistent symptom
Posted by bettyg (Member # 6147) on :
didn't go thru to see if i posted earlier or not..
FATIGUE AND PAIN! EQUAL Posted by Cass A (Member # 11134) on :
fatigue/brain fog/memory and tinnitus.
The first three seem lumped together, because sleeping makes them seem better.
The tinnitus lessened briefly when I started treating for Babesia, but now is worse.
Best,
Cass A
Posted by shelly23 (Member # 16124) on :
Wow, thank all of you for a reply, my purpose here was to help other, becuase i am so worried that some of my symptoms are not lyme. I feel worried scaried and afraid of death.. For example i have extreme muslce pain and weakness in my arms. I have seen nero and the test ruled out ALS but still scared to DEATH any adivce. COme one come all i need all or anyone who has exprieced these fears and have advice. You all are so great here:)
Posted by lymemommy (Member # 12495) on :
For my son (lyme), seizures, both now and in retrospect, all along. We just didn't know that all that behavioral stuff back in the beginning was probably seizures, but sure enough...
For my husband (lyme and bart) fatigue, and (from my perspective) rage/depression.
For me (2 strains of bart, myco) fatigue.
Posted by tickssuck (Member # 15388) on :
Hi Shelly,
Sure...I, and so many others, have gone/go through the fears of other dreaded diseases. My crazy-twitching muscles just freaked me out with the whole ALS thing. 3 years later, her I am. I do have intermittent weakness, but it improves/worsens, waxes and wanes, along with so many other symptoms.
A + WB for me along with +'s for EVERY tick-borne infection possible...sort of put my mind to rest (sort of...who wants this?). I finally felt like I knew what I was dealing with, LD and company.
Your WB is VERY clear...Lyme...how did you test for co-infetions? It's one crazy disease with the laundry-list of symptoms we can have. Keep us posted. TS
Posted by Wimenin (Member # 15294) on :
Two symptoms... headaches, anxiety.
The rest of them come and go (although less often, less severity as when it all started).
If can get end those two remaining things... Id consider myself cured (or at least in remission).
Of course, the interesting question might be...what were your first symptoms, and are your first ones the last ones to be cured?
It is for me.
It started with a headache and bizarre anxiety...and now those are my last ones to fix.
As Ive always told people... I think lyme is like the "tunnel of horror" and you have to exit the same way you came in. The longer it takes to turn around in the tunnel, the longer the horror continues till you get back out...and you always go back through the same horrors as when you started.
Posted by KS (Member # 12549) on :
Nausea
Posted by merrygirl (Member # 12041) on :
Severe fatigue, the kind where it feels like you are wearing a lead suit under water.
Posted by kim812 (Member # 17644) on :
Chronic Fatigue and-Constant muscle twitching,pain,shock sensations of my left calf. My two worse symptoms still after 4 long years.
Posted by jocus20 (Member # 11576) on :
derealization and fatigue
Posted by lovingattitude (Member # 17569) on :
changes by the day...
chronic fatigue
visual processing
headaches
cognitive symptoms
Posted by ahmet ozbek (Member # 14358) on :
serios memory impairment, depression. neck-back pain(lithium oratate decrease substantially my fibromyalgic pain)
Posted by clpgotlyme (Member # 7875) on :
Red hot pokers stabbing my wrists, ankles, neck, and fatigue. This is after 3 years of treatment with great improvement. Have faith everyone who is just starting treatment. Slow and steady is winning the race for me! Cindy
Posted by Curiouser (Member # 14128) on :
Overwhelming fatigue, followed by: Tremors Headaches Impairment of fine motor skills/coordination Joint/neurological pain
While the last 4 are always there, I swear they flip a coin or play rock-paper-scissors to see which one is going to be amplified each day. They take turns. Isn't it nice when your symptoms get along so well? Posted by Dawnee (Member # 15089) on :
Worst for me is my hearing blinking off and on, off and on when I am laying down.
Tachycardia was the worst symptom but treatment has greatly diminished that.
And body wide muscle twitches... constant.
Posted by Alv (Member # 15192) on :
Neck , jaw , hedaches , anxiety and fatigue.ALL at the same time.
Posted by Pauline (Member # 10000) on :
headaches, stabbing head pains, pain in upper molar (trigeminal nerve pain), neck and shoulder stiffness and pain, weakness...
Posted by Robin123 (Member # 9197) on :
Hi Shelly - you need to be treating the Lyme (and any co's if you have them). You could start a separate post for your own symptom/treatment questions, if you want.
My strongest symptom right now: multiple chemical sensitivity - reacting to most chemicals, fabrics.
Posted by steven (Member # 13101) on :
nerve pain in my arms.
Posted by tiggerangie (Member # 17979) on :
The pins and needles pain and fatigue. I'm on mega dose of Lyrica to curb the pins and needle pain enough to function.
Posted by tally011 (Member # 15513) on :
besides the fatigue, DISTORTED VISION- as though i can see the air and have to strain to see past it.
Posted by hokie (Member # 14720) on :
Groin pain and electric shock sensations in my legs.
Posted by cottonbrain (Member # 13769) on :
relentless headaches with migraines
Posted by aiden424 (Member # 7633) on :
Well it's hard to narrow it down to just one. But I guess if I had to pick one it would be the really severe head pressure.
Posted by FancyRatFan (Member # 3088) on :
Head pain
Migraines
Extreme Light Sensitivity
Extreme Sound sensitivity
Jaw pain
Neck pain
Levels of pain change everyday
I already had a learning disability, now it's even more intense.
They are all my number one.
Posted by Amanda (Member # 14107) on :
Neck pain that keeps me from sitting for more than 10 minutes, or standing for more than 30 min.
gum and jaw pain can occasionally drive me bonkers
nerve pain along right rib cage
hearing issues
insomnia (but Lyrica has really helped that)
Posted by Michael_Venice (Member # 17254) on :
For me, day to day, it's
* Weakness, shakiness, dizziness (all come together)....and that 'unreal' feeling. I hate it.
* heart palps
* burning pain in thighs
those are the most common. I have other symptoms on a merry-go-round week to week, or day to day.
Posted by DebAz (Member # 18039) on :
Fatigue and Pain Severe and Severe all over and constant. Worse with Herx and they go together for me..
Sometimes I say I would be so happy without pain and sometimes I say i would be so happy without fatigue.
Its a tie for me.. Both the worst...
Lost of others but they all come second third fouth and so on..
Posted by janis1023 (Member # 15942) on :
Used to have terrible fatigue and could not tolerate stress but Cytomel & Cortef have helped with that. Also spaciness/brain fog helped by abx.
Posted by jlc (Member # 18061) on :
By far the most painful is when I get that painful twisting sensation in my sternum area and the pain penatratest to my back. Brings me to tears.
Day to day lately has been the numbness/tired feeling I have been feeling in my arms/hands, and legs.
Posted by Barby (Member # 18348) on :
Fatigue and pain (back pain is constant but the burning pain is more painful and debilitating).
Posted by Fordace (Member # 14874) on :
poor concentration no stamina anymore shortness of breath memory loss tingling feet and fingers blurry vision sore elbows and worst of all......anxiety
Posted by ajisuun (Member # 17658) on :
Fatigue, fatigue, fatigue. That road kill that's still breathing kind of feeling.
Posted by Mtgirl (Member # 13278) on :
I have lots that top the lists:
#1 most frequent since the tick bite- Fatigue, horrible, nightmarish fatigue.
#1 most painful- drilling, searing, shooting nerve pains.
#1 most frustrating- visual snow-it's like watching a TV screen without cable. It clouds everything I see. That is an all-day-everyday (as long as my eyes are open) symptom.
#1 most maddening/turn me into a crazywoman symptom- restless leg. I can't live with that one.
#1 most irritating symptom for today (and the last 3 weeks)- this horrible burning, shocky, stinging pain between my shoulder blades.
Posted by ForestNymph (Member # 15109) on :
Its really hard to say which is the worst since quite a few are terrible but the most debilitating is the constant nerve pain sensations varying from shooting, stabbing, deep aching, and/or burning. I can't function AT ALL without my pain medication.
Posted by carly (Member # 14810) on :
Like alot of others (and I didn't read all the posts) I can't choose just one.
I think the best you'll be able to do is narrow it down to a top three or five , maybe.
My "#1" symptom is joint/muscle/bone pain. Very close 2nd and 3rd: headaches/head pressure and fatigue like I took a sleeping pill.
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