I am a Dreamer, Believer, and Conquer; I will overcome this disease !!! Posts: 382 | From Alabama Via PA | Registered: Jun 2008
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Hoosiers51
Frequent Contributor (1K+ posts)
Member # 15759
posted
horrible, constant fatigue/drowsiness
Posts: 4590 | From Midwest | Registered: Jun 2008
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
severe neck / jaw tightness. It feels like someone is twisting my neck with a rubber band and pressing their fist into my jaw. It is relentless. It's not stabbling pain, just unbearable pressure and now I'm getting tingling in my face around the area.
The only abnormality on my cervical MRI was four bulging discs from the C4-T1.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
Severe Head pressure, and feeling like when I walk I veer to left and like I am walking on a treadmill, Tachycardia, palpitations and heart racing while sleeping. De conditiong and being bedridden for almost 2 years.
-------------------- "You'll be surprised to know how far you can go from the point you thought it was the end" Posts: 946 | From Massachusetts | Registered: Apr 2008
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Ocean
Frequent Contributor (1K+ posts)
Member # 3496
posted
If I could get rid of the anxiety, it would be the fatigue.
posted
Very bothersome and constant tremor of the back and neck. (Neck pain and headache are also a nuisance.)
Posts: 131 | From MD | Registered: Jul 2008
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gemofnj
Frequent Contributor (1K+ posts)
Member # 15551
posted
Looking back over the last 11 months, the most relentless, continuous pain that hasnt disappeared yet is the NECK soreness and stiffness by FAR the most annoying symptom.
It was one of my early symptoms and still has not disappeared. UGH. Posts: 1127 | From atlantic city, nj | Registered: May 2008
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Angelica
Unregistered
posted
Fatigue normally and lack of stamina but when my bart symptoms are in full swing I would have to say out of control anxiety which can turn into panic attacks.
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TINGLING, RINGING, BUZZING EARS, HEAD & NECK .
Any Herx causes additional shooting pains in ears and head. Heck ~ used to be worse. A number of Symptoms have been peeled back. Above is part of what I deal with recently.
Posts: 212 | From Arizona | Registered: Jul 2008
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Massive fatigue! Like I am on a sleeping pill all day long at its worse.
Posts: 215 | From Phoenix, AZ | Registered: Jul 2008
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joalo
Frequent Contributor (1K+ posts)
Member # 12752
posted
Fatigue!!!
-------------------- Sick since January 1985. Misdiagnosed for 20 years. Tested CDC positive October 2005. Treating since April 2006. Posts: 3228 | From Somewhere west of the Mississippi | Registered: Aug 2007
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posted
shooting stabbing pains in my muscles, joints, bones and skin. I truly thought I was loosing my mind over it.....
Posts: 234 | From BC Canada | Registered: Aug 2008
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-------------------- When the going gets tough. . . I'll keep fighting! Ms. Geet3721
New LLMD, New abx, New life coming right up!!!! Posts: 714 | From La La Lyme Land | Registered: Jun 2008
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adamm
Unregistered
posted
Cognitive impairment that's done nothing but get worse with treatment.
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sparkle7
Frequent Contributor (5K+ posts)
Member # 10397
posted
Back pain. Sometimes it's in one area & then in another.
I always have lower back pain, though.
In the beginning, it was more neck pain. Now my neck isn't so bad anymore... Strange.
Posts: 7772 | From Northeast, again... | Registered: Oct 2006
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
Most of my symptoms are neuro... except for the tachycardia, which I'd say is the WORST symptom I have, but since it's controlled with beta blockers, it's not usually noticeable anymore for the most part.
I guess the WORST symptom (other than the NOW controlled tachycardia) I have is the just feeling 'out of it', full-head feeling, flu-like, draggy, dizziness, etc. Just a feeling of total malaise.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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blaze
Unregistered
posted
Teeth-clenching jaw tension, anxiety, and agitation.
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posted
Always fatigued.....
Posts: 45 | From western kentucky | Registered: Oct 2008
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toby67
Unregistered
posted
Great question and interesting answers! Mine is deep bone pain (legs) and fatigue - unless I'm in a bart herx, then add rage attacks!
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Neck Pain/Pressure and feeling as if I am losing my mind.
The pain is so bad on some days that I feel like I will vomit. Advil helps, but only for a short time.
Posts: 193 | From New Jersey | Registered: Oct 2008
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posted
I'm the same as Annxyz. Daily exhaustion, low stamina is the worst. I am terribly de-conditioned. I have constant neck pain, jaw tension/clenching, burning tongue. Sick, sick, sick, of it all.
Posts: 383 | From Ar | Registered: May 2007
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Feeling like I'm suffocating 24/7. It's a mix of shortness of breath/chest pressure/air hunger/heart palps/heart rate issues that makes me feel like I can't breathe or could pass out at any moment.
Posts: 710 | From West Coast | Registered: May 2008
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savebabe
Frequent Contributor (1K+ posts)
Member # 9847
posted
Headaches!
Posts: 1603 | From ny | Registered: Aug 2006
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blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
Fatigue-mosdt disabling symptom
neck pain/stiffness-most painful symptom
heart issues-scariest symptom
Posts: 1104 | From N.California | Registered: Jan 2008
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I'm like the above poster. The shaky, constant electrical feeling, makes me tremor sometimes - this is by far my most uncomfortable symptom. The heart stuff is scary too.
Posts: 566 | From West Coast | Registered: May 2008
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posted
Like Liz D, shooting stabbing pains everywhere, but terrible joint pain, muscle pain and fatigue are just as bad
Posts: 16 | From finger lakes region new york | Registered: Sep 2008
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posted
Muscle/connective tissue/joint pain and structural dysfunction in all the places I've been injured many times...neck & upper back, right knee, low back. I have degenerative arthritis in all these places, and lots of inflammation, and probably zillions of colonies living the high life there.
Nutmeg
Posts: 386 | From WA state | Registered: May 2005
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
severe eye pain, dryness and facial twitching....
so mostly facial symptoms
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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lymielauren28
Frequent Contributor (1K+ posts)
Member # 13742
posted
Brain fog! I feel like I'm high as a kite half the time - I don't know how else to describe it. Everything looks weird, sounds weird, etc. Like I'm not really connected to earth or anything else around me. It's my worst symptom and the one that seems the most reticent to go
-------------------- "The only way out is through" Posts: 1434 | From mississippi | Registered: Nov 2007
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
Headaches and Head pressure 24/7 for over a year has been constant since starting tx.
Second in line is anxiety and agitation, eye weirdness.
Posts: 3975 | From usa | Registered: Aug 2007
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Tracy9
Frequent Contributor (1K+ posts)
Member # 7521
13 years Lyme & Co.; Small Fiber Neuropathy; Myasthenia Gravis, Adrenal Insufficiency. On chemo for 2 1/2 years as experimental treatment for MG. Posts: 4480 | From Northeastern Connecticut | Registered: Jun 2005
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posted
ANXIETY all the time is the worst, then the elbows and knees.....this sucks. I feel like crying it sucks so bad......
Lets not forget the music playing in my head 24/7....I think I will go mad one day....
Posts: 208 | From Hudson Valley, New York | Registered: Mar 2008
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posted
Wow, thank all of you for a reply, my purpose here was to help other, becuase i am so worried that some of my symptoms are not lyme. I feel worried scaried and afraid of death.. For example i have extreme muslce pain and weakness in my arms. I have seen nero and the test ruled out ALS but still scared to DEATH any adivce. COme one come all i need all or anyone who has exprieced these fears and have advice. You all are so great here:)
posted
For my son (lyme), seizures, both now and in retrospect, all along. We just didn't know that all that behavioral stuff back in the beginning was probably seizures, but sure enough...
For my husband (lyme and bart) fatigue, and (from my perspective) rage/depression.
For me (2 strains of bart, myco) fatigue.
Posts: 394 | From tinton falls nj | Registered: Jul 2007
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Sure...I, and so many others, have gone/go through the fears of other dreaded diseases. My crazy-twitching muscles just freaked me out with the whole ALS thing. 3 years later, her I am. I do have intermittent weakness, but it improves/worsens, waxes and wanes, along with so many other symptoms.
A + WB for me along with +'s for EVERY tick-borne infection possible...sort of put my mind to rest (sort of...who wants this?). I finally felt like I knew what I was dealing with, LD and company.
Your WB is VERY clear...Lyme...how did you test for co-infetions? It's one crazy disease with the laundry-list of symptoms we can have. Keep us posted. TS
Posts: 566 | From West Coast | Registered: May 2008
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The rest of them come and go (although less often, less severity as when it all started).
If can get end those two remaining things... Id consider myself cured (or at least in remission).
Of course, the interesting question might be...what were your first symptoms, and are your first ones the last ones to be cured?
It is for me.
It started with a headache and bizarre anxiety...and now those are my last ones to fix.
As Ive always told people... I think lyme is like the "tunnel of horror" and you have to exit the same way you came in. The longer it takes to turn around in the tunnel, the longer the horror continues till you get back out...and you always go back through the same horrors as when you started.
Posts: 514 | From . | Registered: Apr 2008
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posted
Chronic Fatigue and-Constant muscle twitching,pain,shock sensations of my left calf. My two worse symptoms still after 4 long years.
Posts: 343 | From North Carolina | Registered: Oct 2008
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posted
Red hot pokers stabbing my wrists, ankles, neck, and fatigue. This is after 3 years of treatment with great improvement. Have faith everyone who is just starting treatment. Slow and steady is winning the race for me! Cindy
-------------------- Cindy Posts: 227 | From VA | Registered: Sep 2005
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posted
Overwhelming fatigue, followed by: Tremors Headaches Impairment of fine motor skills/coordination Joint/neurological pain
While the last 4 are always there, I swear they flip a coin or play rock-paper-scissors to see which one is going to be amplified each day. They take turns. Isn't it nice when your symptoms get along so well?
-------------------- If you don't know where you are going, any road will take you there. - Lewis Carroll Posts: 356 | From Body-PA, Mind-elsewhere | Registered: Dec 2007
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Dawnee
Unregistered
posted
Worst for me is my hearing blinking off and on, off and on when I am laying down.
Tachycardia was the worst symptom but treatment has greatly diminished that.
And body wide muscle twitches... constant.
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Alv
Unregistered
posted
Neck , jaw , hedaches , anxiety and fatigue.ALL at the same time.
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Hi Shelly - you need to be treating the Lyme (and any co's if you have them). You could start a separate post for your own symptom/treatment questions, if you want.
My strongest symptom right now: multiple chemical sensitivity - reacting to most chemicals, fabrics.
Posts: 13116 | From San Francisco | Registered: May 2006
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posted
besides the fatigue, DISTORTED VISION- as though i can see the air and have to strain to see past it.
Posts: 5 | From Princeton, NJ | Registered: May 2008
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posted
Well it's hard to narrow it down to just one. But I guess if I had to pick one it would be the really severe head pressure.
-------------------- You never know how strong you are until being strong is the only choice you have. Posts: 807 | From South Dakota | Registered: Jul 2005
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I already had a learning disability, now it's even more intense.
They are all my number one.
Posts: 258 | From San Diego, CA USA | Registered: Sep 2002
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Amanda
Frequent Contributor (1K+ posts)
Member # 14107
posted
Neck pain that keeps me from sitting for more than 10 minutes, or standing for more than 30 min.
gum and jaw pain can occasionally drive me bonkers
nerve pain along right rib cage
hearing issues
insomnia (but Lyrica has really helped that)
-------------------- "few things are harder to put up with than the annoyance of a good example" - Mark Twain Posts: 1008 | From US | Registered: Dec 2007
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* Weakness, shakiness, dizziness (all come together)....and that 'unreal' feeling. I hate it.
* heart palps
* burning pain in thighs
those are the most common. I have other symptoms on a merry-go-round week to week, or day to day.
Posts: 322 | From Venice, CA | Registered: Sep 2008
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DebAz
Unregistered
posted
Fatigue and Pain Severe and Severe all over and constant. Worse with Herx and they go together for me..
Sometimes I say I would be so happy without pain and sometimes I say i would be so happy without fatigue.
Its a tie for me.. Both the worst...
Lost of others but they all come second third fouth and so on..
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Sweating like a pig! Totally heat intolerant.
Jan
-------------------- 3 Strains Mycoplasma and Chlymedia 2001. After treatment fine for all 2004. Major symptoms since 2005. Diag Aug 2008 Lyme. 400 mg/d doxy 500 2/d Ceftin Posts: 164 | From Texas | Registered: Jun 2008
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