LymeNet Flash: Cpn protocol? Anyone?

This is topic Cpn protocol? Anyone? in forum Medical Questions at LymeNet Flash.

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Posted by skigal (Member # 7443) on :

Just checking to see if anyone follows this? I think I saw a few members on here that were doing it.

If anyone is doing the Wheldon/Stratton protocol how is it going for you?

TIA

Posted by Keebler (Member # 12673) on :

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I'm sorry that I cannot comment directly. I could not tolerate the protocol.

You've probably been to this site but, just in case not, here's a fabulous site for comments; research, etc.

www.cpnhelp.org

Cpnhelp.org: A website devoted to the understanding and treatment of Chlamydia Pneumoniae, an infectious bacteria implicated in a number of human illnesses

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I was dx with Cpn last April but I cannot tolerate some of the key meds (I get serious rashes from many abx- other's don't, though). I can't afford to go back to the doctor. Still, I continue trying to learn more, especially about alternative methods but I'd sure love to know for sure if they would be strong enough.

I will also begin rifing soon.

I find the Cpn Help site to be of tremendous help with information regarding the protocol you mentioned.

Cpn (as related to endocrine stress) is discussed at length in this book:

http://tinyurl.com/6xse7l )

The Potbelly Syndrome: How Common Germs Cause Obesity, Diabetes, And Heart Disease (Paperback) - 2005

by Russell Farris and Per Marin, MD, PhD

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Posted by skigal (Member # 7443) on :

Thx Keebler, It seems a lot of the people there are treating C. Pneumoniae, TBDs, Myco & who knows what else [confused]

. I think I'll give the Wheldon a try. Then there's also the Stratton/Sririam(sp) protocol on the same site. I do like the idea of pulsing meds.

Anyone else on this?

Posted by timaca (Member # 6911) on :

skigal~

I am on doxy only for Cpn. I hope to add flagyl to this...we'll see what my doctor says at my next appt. I had very high antibody titers to Cpn (both IgG and IgA)

I'm also on acyclovir for several chronic viral infections.

I would encourage anyone who is battling lyme, or think they have lyme to also get tested for HHV-6, EBV and Cpn.

See: www.hhv-6foundation.org and www.cpnhelp.org for further info.

You can't tell by symptoms if you have lyme, cpn or viruses. The symptoms are the same.

Best, Timaca

Posted by yanivnaced (Member # 13212) on :

The mystery is how do you find or educate an LLMD on this protocol?

We asked my wife's LLMD last year about low dose pulsed protocols - he seemd not informed or interested.

Posted by timaca (Member # 6911) on :

If you post on the cpnhelp website, someone there may be able to direct you to a doctor in your area willing to treat for Cpn.

Best,
Timaca

Posted by 0624sm (Member # 15591) on :

My husband started this protocol in August 2006. We were unaware that he also has Lyme until January of this year. In the past several months, he has taken breaks from the Vanderbilt protocol to dabble with other oral abx, but he was doing better on the Vanderbilt. It can be rough and requires gradual ramping-up on the meds, but it's effective. For Lyme, I would recommend kicking the doxycycline dosage up to 100mg 3 times a day after all 3 meds are well-tolerated.