Cpnhelp.org: A website devoted to the understanding and treatment of Chlamydia Pneumoniae, an infectious bacteria implicated in a number of human illnesses
=======
I was dx with Cpn last April but I cannot tolerate some of the key meds (I get serious rashes from many abx- other's don't, though). I can't afford to go back to the doctor. Still, I continue trying to learn more, especially about alternative methods but I'd sure love to know for sure if they would be strong enough.
I will also begin rifing soon.
I find the Cpn Help site to be of tremendous help with information regarding the protocol you mentioned.
Cpn (as related to endocrine stress) is discussed at length in this book:
posted
Thx Keebler, It seems a lot of the people there are treating C. Pneumoniae, TBDs, Myco & who knows what else . I think I'll give the Wheldon a try. Then there's also the Stratton/Sririam(sp) protocol on the same site. I do like the idea of pulsing meds.
Anyone else on this?
Posts: 269 | From VA | Registered: Jun 2005
| IP: Logged |
timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
skigal~
I am on doxy only for Cpn. I hope to add flagyl to this...we'll see what my doctor says at my next appt. I had very high antibody titers to Cpn (both IgG and IgA)
I'm also on acyclovir for several chronic viral infections.
I would encourage anyone who is battling lyme, or think they have lyme to also get tested for HHV-6, EBV and Cpn.
posted
The mystery is how do you find or educate an LLMD on this protocol?
We asked my wife's LLMD last year about low dose pulsed protocols - he seemd not informed or interested.
Posts: 655 | From USA | Registered: Sep 2007
| IP: Logged |
timaca
Frequent Contributor (1K+ posts)
Member # 6911
posted
If you post on the cpnhelp website, someone there may be able to direct you to a doctor in your area willing to treat for Cpn.
Best, Timaca
Posts: 2872 | From above 7,000 ft in a pine forest | Registered: Feb 2005
| IP: Logged |
posted
My husband started this protocol in August 2006. We were unaware that he also has Lyme until January of this year. In the past several months, he has taken breaks from the Vanderbilt protocol to dabble with other oral abx, but he was doing better on the Vanderbilt. It can be rough and requires gradual ramping-up on the meds, but it's effective. For Lyme, I would recommend kicking the doxycycline dosage up to 100mg 3 times a day after all 3 meds are well-tolerated.
-------------------- Dallas caregiver for husband Steve who has Bb, Cpn, Mpn, EBV, CMV, other Herpes family viruses Posts: 51 | From Dallas, TX | Registered: May 2008
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/