live with this crazy disease. Carrots Posted by jamieL (Member # 16563) on :
I know my symptoms came out after a surgery.
Sorry to hear you're feeling bad again.
Are you no longer in contact with the LLMD?
Posted by Keebler (Member # 12673) on :
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I'm sorry that I cannot speak directly to your questions.
However, an herb called Salvia m. is fabulous to help inprove micro-circulation after surgery. I'll look up my notes about that and return. In the meantime:
Nutritional Supplements in Disseminated Lyme Disease.
J.J. Burrascano, Jr., MD
July, 2008
Four pages
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This book, by an ILADS member LLMD, holds great information about treatments options and support measures. Much discussion is given to the endocrine system and effects of high cortisol (which also affects weight). Best of all, he has well-thought out ways to achieve solution:
This book is specific to lyme and other chronic stealth infections. The author discusses the endocrine connection and effects of cortisol from the stress of this illness. The Singleton book (linked above) also discussed the importance of the endocrine connection.
You can read customer reviews and look inside the book at this link to its page at Amazon.
. . . Visceral Manipulation (VM) is a gentle hands-on therapy that works through the body's visceral system (the heart, liver, intestines and other internal organs) to locate and alleviate these abnormal points of tension throughout the body.
JOHN F. BARNES, P.T. is one of the top experts on myofascial release. After a surgery, this can help reduce - or soften - adhesions that typically occur.
From experience, I can tell you that massage can really help. And many LMTs (licensed massage therapist) have some training in visceral manipulation.
However, I have never found a LMT to have the top notch level of training as someone trained with either Upledger or Barnes.
You can ask a LMT or a PT what programs or seminars were part of their training. Then look that up to be sure you have the real deal.
Tai Chi or Qi Gong may help, too. You might find instructors at community centers. Learning from a teacher is best and perhaps they can then suggest a DVD for home guidance.
Best of luck. I know this is very complex and seems like an uphill battle. Still, I hope something provides a core treatment for you.
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Posted by Keebler (Member # 12673) on :
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If this rings a bell for you, you might find a good N.D. (naturopathic doctor) or L.Ac. (licensed aducupuncturist) to guide you. Acupuncuture, too, can help restore circulation and work with any possible adhesions from surgeries or just wear and tear on the body.
Someone who is also lyme literate would be best but ask if they have specific training in these areas.
Your liver might also need some added help to flush out drugs used during surgery. It can take a while for that to work out of your system. Milk Thistle is just one support measure.
Abdominal Adhesions: Prevention and Treatment -- by Subhuti Dharmananda, Ph.D (2203)
Adhesions are strands or of scar tissue (fibrin bands; see illustration, below) that form in response to abdominal surgery and extend beyond the specific site of incision, sometimes forming separately from the incision site within the peritoneum.
Scar tissue that mends the incision is normal, but the adhesions form additionally under some circumstances that are not fully understood. . . .
. . .
The fact that existing scars may be degraded somewhat by the enzyme action suggests the possibility that herbal therapies could contribute to alleviating adhesion symptoms by stimulating the body's production of hyaluronidase (or other enzymes of similar function) to perform this task.
Even if scar tissue is not removed, if it can be softened (made more elastic), there may be relief from its physical manifestations such as bowel blockage, pain, and some cases of infertility.
Herbs that are reputed to aid healing of injuries, soften abdominal masses, and alleviate abdominal pain of various origins may act, in part, by breaking down undesirable collagens to alleviate the symptoms.
. . . Key herbs for reducing fibrosis and masses are listed in Table 1 (11).
SALVIA and the History of Microcirculation Research in China -- by Subhuti Dharmananda, Ph.D. (2001)
Excerpts:
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The elevation of salvia to a key herb took place in two steps: recognition of salvia as a valuable blood-vitalizing agent leading to incorporation of the herb in modern formulas for angina pectoris; and then, investigations of its effectiveness in treating microcirculation disorders, leading to its use in treating liver fibrosis and cirrhosis.
. . .
Spontaneous resolution of liver fibrosis occurs mainly as the result of the action of collagenases, known as matrix metalloproteinases (enzymes incorporating heavy metals; these are partly induced by zinc), that breakdown the accumulated collagen.
When new liver fibrosis is inhibited by salvia, it is possible that natural processes slowly reverse the existing fibrosis. Although not yet studied, it is also possible that salvia helps induce collagenase or reduces collagenase inhibitors so that fibrosis recovery is speeded up.
It has been proposed that liver regeneration is promoted by salvia through general mechanisms of improving hepatic microcirculation, reducing lipid peroxidation, elevating plasma levels of fibronectin (an antifibrotic agent), and regulating immune responses (28).
. . . .
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Posted by bettyg (Member # 6147) on :
carrots, don't remember seeing your name before; but you started before i did!
may i suggest you add to your subject line ....
after surgeries including gastro, so much sicker; feedback please
just click on pencil, 3rd icon to right of your nickname, and that will open up subject line to add and/or text if you wanted more to go there too.
best wishes!
i've had 13-14 surgeries ... each one made me worse stirring up spirochetes in my body since i've had chronic lyme 39 yrs. this xmas...
Posted by Dawnee (Member # 15089) on :
You say when you got infected, but when did you start treatment and for how long?
I know that my bad symptoms came after a hysterectomy... and then a year later after a traumatic tooth extraction gone wrong. Thats when the Lyme hit the proverbial fan for me.
I personally would not be having any more surgery if I could help it... but it sounds like with you that may not be an option. I know there are plenty of people who have Lyme and do fine after surgery.. I would just take precautions and consult your LLMD about it.
Posted by Sammy07 (Member # 17627) on :
quote:Originally posted by carrots: I have had lyme disease for 22 years.
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