I was wondering if anybody was diagnoised with bfs or benign fasciculation syndrome and could this be part of lyme. Only tests pos. western blot bands 23 , 28
Posted by david1097 (Member # 3662) on :
could be, or not not be. BUT that alone plus the two bands would not pass as definative for lyme by any standard.
Other symptoms?
Posted by Mountaineer (Member # 14085) on :
Other symptoms
forgot diagnoised with rls
non stop twitching, myoclonus jerks, pin and needles , sleep problems, tired,fatiqued, alcohol intolerence,sensations throughout the body,aches and pains.
list goes on. I have these symptoms constant for about 3 years.
camp and hike alot, bitten before.
started with the flu so the doctors say?
Posted by glm1111 (Member # 16556) on :
Absolutely can be a part of Lyme. I have had all these symptoms. I just love these drs.
They always have a name for a set of syndromes. But can never come up with a cause. Posted by Mountaineer (Member # 14085) on :
I know, I've been to every possible doctor and had every possible test.
nobody can tell me anything.
Posted by david1097 (Member # 3662) on :
Could be. The antibodies seem to fade after a while. Might also be some other zoonosis. Have you seen a Tickborn disease Dr? (ie experienced LLMD). Given past risk factor I would go see one.
Any odd lumps or rashes. Do the symptoms come in waves and if so how often. Getting worse over time?
Posted by Mountaineer (Member # 14085) on :
I've been to a infectious disease doctor.tests come normal.
That was after I was treated by my doctor with doxy, because I insisted.
Not sure if that would have messed those results.
I've sent for the igenex kit and have it.
was to see a llmd but work and insurance has put it on hold.
Have rashes on shins and scaly bumpy itchy ones on back of scalp.
dermotologists says no lyme rash?
Funny thing my twin brother has none of this
symptoms are ever changing , some persistent, not getting worse.
My well being is not the same since all this has started and I guess I'm trying find answers.
It's not normal and has been quite frustrating.
Posted by Mountaineer (Member # 14085) on :
I've been to a infectious disease doctor.tests come normal.
That was after I was treated by my doctor with doxy, because I insisted.
Not sure if that would have messed those results.
I've sent for the igenex kit and have it.
was to see a llmd but work and insurance has put it on hold.
Have rashes on shins and scaly bumpy itchy ones on back of scalp.
dermotologists says no lyme rash?
Funny thing my twin brother has none of this
symptoms are ever changing , some persistent, not getting worse.
My well being is not the same since all this has started and I guess I'm trying find answers.
It's not normal and has been quite frustrating.
Posted by 6t5frlane (Member # 8628) on :
I am going through the same thing. Since Aug 05. Constant twitching ( calves are crazy !! ). etc. Igenix Positive in May 06, treated. Some synptoms left but mucle weakness and twiching remains...sucks
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