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» LymeNet Flash » Questions and Discussion » Medical Questions » bfs or lyme

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Author Topic: bfs or lyme
Mountaineer
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I was wondering if anybody was diagnoised with bfs or benign fasciculation syndrome and could this be part of lyme.
Only tests pos. western blot bands 23 , 28
Posts: 64 | From New Jersey | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
david1097
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could be, or not not be. BUT that alone plus the two bands would not pass as definative for lyme by any standard.

Other symptoms?
Posts: 1184 | From north america | Registered: Feb 2003  |  IP: Logged | Report this post to a Moderator
Mountaineer
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Other symptoms

forgot diagnoised with rls

non stop twitching, myoclonus jerks, pin and needles , sleep problems, tired,fatiqued, alcohol intolerence,sensations throughout the body,aches and pains.

list goes on. I have these symptoms constant for about 3 years.

camp and hike alot, bitten before.

started with the flu so the doctors say?
Posts: 64 | From New Jersey | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
glm1111
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Absolutely can be a part of Lyme. I have had all these symptoms. I just love these drs.


They always have a name for a set of syndromes. But can never come up with a cause. [bonk]

--------------------
PARASITES/WORMS ARE NOW
RECOGNIZED AS THE NUMBER 1 CO-INFECTION IN LYME DISEASE BY ILADS*
Posts: 6418 | From philadelphia pa | Registered: Jul 2008  |  IP: Logged | Report this post to a Moderator
Mountaineer
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I know, I've been to every possible doctor and had every possible test.

nobody can tell me anything.
Posts: 64 | From New Jersey | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
david1097
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Could be. The antibodies seem to fade after a while. Might also be some other zoonosis.
Have you seen a Tickborn disease Dr? (ie experienced LLMD). Given past risk factor I would go see one.

Any odd lumps or rashes. Do the symptoms come in waves and if so how often. Getting worse over time?
Posts: 1184 | From north america | Registered: Feb 2003  |  IP: Logged | Report this post to a Moderator
Mountaineer
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I've been to a infectious disease doctor.tests come normal.

That was after I was treated by my doctor with doxy, because I insisted.

Not sure if that would have messed those results.

I've sent for the igenex kit and have it.

was to see a llmd but work and insurance has put it on hold.

Have rashes on shins and scaly bumpy itchy ones on back of scalp.

dermotologists says no lyme rash?

Funny thing my twin brother has none of this

symptoms are ever changing , some persistent, not getting worse.

My well being is not the same since all this has started and I guess I'm trying find answers.

It's not normal and has been quite frustrating.
Posts: 64 | From New Jersey | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
Mountaineer
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I've been to a infectious disease doctor.tests come normal.

That was after I was treated by my doctor with doxy, because I insisted.

Not sure if that would have messed those results.

I've sent for the igenex kit and have it.

was to see a llmd but work and insurance has put it on hold.

Have rashes on shins and scaly bumpy itchy ones on back of scalp.

dermotologists says no lyme rash?

Funny thing my twin brother has none of this

symptoms are ever changing , some persistent, not getting worse.

My well being is not the same since all this has started and I guess I'm trying find answers.

It's not normal and has been quite frustrating.
Posts: 64 | From New Jersey | Registered: Dec 2007  |  IP: Logged | Report this post to a Moderator
6t5frlane
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I am going through the same thing. Since Aug 05. Constant twitching ( calves are crazy !! ). etc. Igenix Positive in May 06, treated. Some synptoms left but mucle weakness and twiching remains...sucks
Posts: 408 | From NY | Registered: Jan 2006  |  IP: Logged | Report this post to a Moderator
   

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