There has been a very important development taking place. Dr. Oz, of Oprah fame, did a radio show on Lyme disease and Under Our Skin. You can listen to it by clicking on http://www.zshare.net/audio/51988431783ad036/
Note, Dr. Oz asked for letters from patients with Lyme disease giving specifics on if we had long term antibiotic treament and if it cured us.....or at least put us into remission.
Dr. Oz doesn't understand the complexity of our disease, however he is willing to learn. So this is our opportunity to educate him by sharing our experience. For those of us on long term antibiotic treatment to remain in remission ....we need to make our case known.
We need to make our point short and end it with there is NO cure....we need more research. Also please refrain from showing anger in your letter....be factual and sincere, and keep it on a professional level. I say this because in the past, due to unfortunate bad experience with Lyme patients, Oprah has stayed away from having anything to do with Lyme disease.
This is a huge opportunity for us. With Dr. Oz's popularity, winning him over could be the tipping point for us. Please, please write to him so he gets an idea of how many chronic Lyme patients there are out here. THE MAIL ADDRESS TO SEND YOUR LETTER TO IS: https://www.oprah.com/plugform.jsp?plugId=495&referer= Posted by KS (Member # 12549) on :
Just sent something over....
Posted by onthemend (Member # 13454) on :
I sent an email, but even after MAJOR pruning, it was too long for the max 2000 characters allowed. So I trimmed it further, but then it became a little meaningless. So, I sent a hard copy to Andy Wilson at Open Eye pix and asked him to forward it to Dr. Oz as well!
We'll see. But this is all very helpful/hopeful.
onthemend
Posted by lpkayak (Member # 5230) on :
i had the same problem as onthemend-and it is very frusstrating cuz it hut=rts so much to type
i listened to the show again and oz said:
send me a note if you have chronic lyme, got treated and got better or if yougot treated and didn't get better. that seems to be all the info he wants-and he is looking for tousands of emaila dn i just read he only has 34-so i will go back one more try to keep it ral short and sweet
Posted by mtree (Member # 14305) on :
...34 or so....
oh...we can do better then that...
it only takes a few minutes to write to him....even if you haven't seen the documentary...OR even if you haven't listened to the radio interview...you can still write...
wow...only 34 or so... mtree
Posted by lightfoot (Member # 2536) on :
Fantasimo! Thanks for posting!
Posted by disturbedme (Member # 12346) on :
okay, sent mine!
Posted by madge (Member # 13704) on :
i've sent 7 already...it can't hurt the more he or she gets maybe it will make them want to do a show just on lyme...that would be sooooo goood!!!so come on people just write a short note...like its so hard to get tested...can't fine the right DR...was so sick for years and no help...i read somewere he wants any kind of info about lyme..our stories are good but if they are to long maybe they won't read them...now i'm sending the 4 e-mail to Oprah... Posted by hurtingramma (Member # 7770) on :
I sent one the other day, but where did you see the count of 34?
Posted by HopefulinNY (Member # 15425) on :
Sent mine today. My two children are showing improvement after a few months of high dose amox. So, I told about that. Since I have had it for at least 15-20 years, maybe more, I told him that I expected to need much longer treatment. I also told him that I believe my kids got it transplacentally. I sent it to his e-mail.
Jill
Posted by jlc (Member # 18061) on :
I had sent one a while back. Maybe I should do it again now that a LD confirmed I am chronic.
Posted by DebAz (Member # 18039) on :
Sent my story last week.. I hope this develops into something and some sort of show they air.
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...34 or so.... ![[Roll Eyes]](rolleyes.gif)
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mtree
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