posted
There has been a very important development taking place. Dr. Oz, of Oprah fame, did a radio show on Lyme disease and Under Our Skin. You can listen to it by clicking on http://www.zshare.net/audio/51988431783ad036/
Note, Dr. Oz asked for letters from patients with Lyme disease giving specifics on if we had long term antibiotic treament and if it cured us.....or at least put us into remission.
Dr. Oz doesn't understand the complexity of our disease, however he is willing to learn. So this is our opportunity to educate him by sharing our experience. For those of us on long term antibiotic treatment to remain in remission ....we need to make our case known.
We need to make our point short and end it with there is NO cure....we need more research. Also please refrain from showing anger in your letter....be factual and sincere, and keep it on a professional level. I say this because in the past, due to unfortunate bad experience with Lyme patients, Oprah has stayed away from having anything to do with Lyme disease.
This is a huge opportunity for us. With Dr. Oz's popularity, winning him over could be the tipping point for us. Please, please write to him so he gets an idea of how many chronic Lyme patients there are out here. THE MAIL ADDRESS TO SEND YOUR LETTER TO IS: https://www.oprah.com/plugform.jsp?plugId=495&referer=Posts: 48 | From nj | Registered: Aug 2007
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posted
I sent an email, but even after MAJOR pruning, it was too long for the max 2000 characters allowed. So I trimmed it further, but then it became a little meaningless. So, I sent a hard copy to Andy Wilson at Open Eye pix and asked him to forward it to Dr. Oz as well!
We'll see. But this is all very helpful/hopeful.
onthemend
Posts: 314 | From east coast | Registered: Oct 2007
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lpkayak
Honored Contributor (10K+ posts)
Member # 5230
posted
i had the same problem as onthemend-and it is very frusstrating cuz it hut=rts so much to type
i listened to the show again and oz said:
send me a note if you have chronic lyme, got treated and got better or if yougot treated and didn't get better. that seems to be all the info he wants-and he is looking for tousands of emaila dn i just read he only has 34-so i will go back one more try to keep it ral short and sweet
-------------------- Lyme? Its complicated. Educate yourself. Posts: 13712 | From new england | Registered: Feb 2004
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it only takes a few minutes to write to him....even if you haven't seen the documentary...OR even if you haven't listened to the radio interview...you can still write...
wow...only 34 or so... mtree
-------------------- worrying about tomorrow takes its strength away from today Posts: 970 | From Point PLeasant , NJ | Registered: Jan 2008
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lightfoot
Frequent Contributor (5K+ posts)
Member # 2536
posted
Fantasimo! Thanks for posting!
-------------------- Healing Smiles.....lightfoot Posts: 7228 | From CO | Registered: May 2002
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
okay, sent mine!
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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posted
i've sent 7 already...it can't hurt the more he or she gets maybe it will make them want to do a show just on lyme...that would be sooooo goood!!!so come on people just write a short note...like its so hard to get tested...can't fine the right DR...was so sick for years and no help...i read somewere he wants any kind of info about lyme..our stories are good but if they are to long maybe they won't read them...now i'm sending the 4 e-mail to Oprah...
-------------------- madgen Posts: 342 | From newjersey | Registered: Oct 2007
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posted
Sent mine today. My two children are showing improvement after a few months of high dose amox. So, I told about that. Since I have had it for at least 15-20 years, maybe more, I told him that I expected to need much longer treatment. I also told him that I believe my kids got it transplacentally. I sent it to his e-mail.
Jill
-------------------- Lyme diag. 2005, confirmed with LLMD Dec. 2007, 2 years of Marshall Protocol, Bicillin,mal.Dr.Z herbs, EBV, HHV-6,Babs,Bart?(3 kids positive for Lyme) Posts: 10 | From NY | Registered: May 2008
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posted
I had sent one a while back. Maybe I should do it again now that a LD confirmed I am chronic.
Posts: 60 | From WI | Registered: Nov 2008
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DebAz
Unregistered
posted
Sent my story last week.. I hope this develops into something and some sort of show they air.
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...34 or so.... ![[Roll Eyes]](rolleyes.gif)
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