This is topic Inflamed brain and eye pain in forum Medical Questions at LymeNet Flash.


To visit this topic, use this URL:
https://flash.lymenet.org/ubb/ultimatebb.php/topic/1/75635

---

Posted by kam (Member # 3410) on :
 
Going through what I call inflamed brain and eye pain. Sure hope it lets up soon.

This is the worse of all the symptoms for me.
 

---

Posted by seibertneurolyme (Member # 6416) on :
 
Hope you feel better soon.

Hubby has been there before and I know that this is no fun.

Bea Seibert
 

---

Posted by Wonko (Member # 18318) on :
 
Kam, I've had that for almost nine months straight. It got better for a little while when I was on steroids (before I knew about Lyme) and when I first started Mino I had a couple of better days.

My eyes hurt mostly when I move them, but sometimes I get strong pain in them while looking forward. I also see flashing lights in my peripheral vision, and have mild double vision.

My concentration is lousy and I have other cog problems. It's stressful, I worry about permanent damage.

I hope it passes soon for us both!
 

---

Posted by sutherngrl (Member # 16270) on :
 
I have eye pain with a dull headache all the time lately. Feels like my eyeballs are going to pop out of my head. It hurts to move them. They hurt more when I get tired.

I also have pain at the base of my skull. I was told the pain at the base of the skull is caused by brain swelling and that everyone with LD has brain swelling. Also told that the brain swelling can last a couple of years after you are over the Lyme.
 

---

Posted by Melanie Reber (Member # 3707) on :
 
I have written about this several times over the years here, but still, not many use it. I think that may be because many docs are unfamiliar with this off label usage.

Methazolamide or Neptazane is a wonderful drug for just this purpose.

It is actually a med used for glaucoma that reduces the swelling and pressure inside the cranium.

NOTHING ever helped my headaches and eye pain until I started with this. Ask your docs and give it a try.

My best,
Melanie
 

---

Posted by sutherngrl (Member # 16270) on :
 
I took acetazolamide(sp). Don't know if this is a similar drug to the ones you are mentioning here. It is for brain swelling and also used for glaucoma. Made me dehydrate and that led to even more fatigue than I already had. My head never stopped hurting.
 

---

Posted by bettyg (Member # 6147) on :
 
kam
kam

kam, my heart hurts for you; best wishes that you can shake this think for GOOD my friend.
 

---

Posted by madge (Member # 13704) on :
 
my husband also has had bad head and eye pain now
for almost 8 yrs...been treated now for lyme 2 yrs...so far don't think he was on either of these meds...thanks Melanie will ask dr about
them and hopeful he can get even just alittle
relief...so hard to watch and see him like this..
take care everyone...
 

---

Posted by onmyway (Member # 17607) on :
 
I have this same thing right now!!!! It is very painful!!! I just started Tygacil 4th week starts today!!!

Take Care,
Onmyway
 

---

Posted by pab (Member # 904) on :
 

quote:

---

Originally posted by onmyway:
I have this same thing right now!!!! It is very painful!!! I just started Tygacil 4th week starts today!!!

Take Care,
Onmyway

---