kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Going through what I call inflamed brain and eye pain. Sure hope it lets up soon.
This is the worse of all the symptoms for me.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
Kam, I've had that for almost nine months straight. It got better for a little while when I was on steroids (before I knew about Lyme) and when I first started Mino I had a couple of better days.
My eyes hurt mostly when I move them, but sometimes I get strong pain in them while looking forward. I also see flashing lights in my peripheral vision, and have mild double vision.
My concentration is lousy and I have other cog problems. It's stressful, I worry about permanent damage.
I hope it passes soon for us both!
Posts: 455 | From Was in PA, then MD, now in the Midwest | Registered: Nov 2008
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I have eye pain with a dull headache all the time lately. Feels like my eyeballs are going to pop out of my head. It hurts to move them. They hurt more when I get tired.
I also have pain at the base of my skull. I was told the pain at the base of the skull is caused by brain swelling and that everyone with LD has brain swelling. Also told that the brain swelling can last a couple of years after you are over the Lyme.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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Melanie Reber
Frequent Contributor (5K+ posts)
Member # 3707
posted
I have written about this several times over the years here, but still, not many use it. I think that may be because many docs are unfamiliar with this off label usage.
Methazolamide or Neptazane is a wonderful drug for just this purpose.
It is actually a med used for glaucoma that reduces the swelling and pressure inside the cranium.
NOTHING ever helped my headaches and eye pain until I started with this. Ask your docs and give it a try.
My best, Melanie
Posts: 7052 | From Colorado | Registered: Mar 2003
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sutherngrl
Frequent Contributor (1K+ posts)
Member # 16270
posted
I took acetazolamide(sp). Don't know if this is a similar drug to the ones you are mentioning here. It is for brain swelling and also used for glaucoma. Made me dehydrate and that led to even more fatigue than I already had. My head never stopped hurting.
Posts: 4035 | From Mississippi | Registered: Jul 2008
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bettyg
Unregistered
posted
kam kam
kam, my heart hurts for you; best wishes that you can shake this think for GOOD my friend.
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posted
my husband also has had bad head and eye pain now for almost 8 yrs...been treated now for lyme 2 yrs...so far don't think he was on either of these meds...thanks Melanie will ask dr about them and hopeful he can get even just alittle relief...so hard to watch and see him like this.. take care everyone...
-------------------- madgen Posts: 342 | From newjersey | Registered: Oct 2007
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