[ 18. January 2009, 02:22 PM: Message edited by: eric555 ]
Posted by bettyg (Member # 6147) on :
lyme patients UNITE ... join the cause to sound off to OBAMA'S TRANSITION TEAM in public chosing the top 10 issues his team will attack in first 90 days!!!
opportunity knocks once only; open the door and join us ... WE NEED ALL THE VOTES/COMMENTS WE CAN GET FOLKS.
lou b once posted we have 1,000 AND MORE VISITORS DAILY HERE, why can't we get 1,000 votes/comments on LYME DISEASE sent to OBAMA'S TEAM?
LET'S DO IT FOLKS! rally time!! they decide by TUESDAY; day he's sworn in as president of USA! Posted by FancyRatFan (Member # 3088) on :
up
Posted by liesandmorelies (Member # 15323) on :
up
Posted by bettyg (Member # 6147) on :
THIS ENDED 6 PM TONIGHT, 1-18.... *********************************
Posted by eric555 (Member # 18343) on :
Hi Betty,
You mean the Citizens Book Voting has Ended ?
But to Sign the Petition Letter which ends April 13th 2009 we are still good on.
[ 19. January 2009, 02:52 PM: Message edited by: eric555 ]
Posted by eric555 (Member # 18343) on :
Yeah,
We made it on the Front Page of Healthcare Actions on Change.gov Web Site !!!!!!!
65 People Joined In and had Sent the Letter as of Now.
This campaign is targeting your Governor, members of your State Senate, members of your State House, the President of the United States, members of the US Senate and members of the US House of Representatives.
Thank you All.
Best Regards, Eric
[ 19. January 2009, 11:04 AM: Message edited by: eric555 ]
Posted by bettyg (Member # 6147) on :
eric,
these 2 are so CONFUSING; i'm lost constantly!!
would you change your subject title and show the direct link there? that will eliminate the confusion of citizen's book CLOSED YESTERDAY and the one you refer to that we have added ideas!
big thanks!
uffda; i have started reading thru the 1,074 suggestions sent in; SO MANY REPEATED OVER AND OVER. it's overwhelming!
NOT seen one lyme or similar issue in the 1 hr. i've spent reading so far! Posted by Amanda (Member # 14107) on :
I'm confused.
If it is closed now, how can we add more comments?
I added my own comments a few days ago. Is there another placw where I should be adding comments?
Posted by eric555 (Member # 18343) on :
hi Betty,
How are you ? You are simply confussing the Citizen's Book which has closed,
(Betty, please Delete your post here about it ending, to avoid confusions)
and this here the Letter to be sent out to Take an Action to the Most Important People on Lyme Disease Epidemic.
It ends April 13th, 2009
the direct link is same as above, in the original thread starter here, which is...
In the Activism and General sections of this website, I started Threads just for this for All to Join and to send this Letter to their officials and the president.
Its very Easy.
Hope this Helps...
Thank you.
Best Regards, Eric
Posted by eric555 (Member # 18343) on :
Hi Amanda,
No this is not closed.
It ends April 13th.
You may edit my letter prior to sending if you wish.
Hope this Helps...
Best regards, Eric
Posted by eric555 (Member # 18343) on :
Lymestop,
It is my pleasure, and I thank you dearly for taking the time to do this...
Now we just need for more to Join.
Its Easy and Quick.
Best regards, Eric
Posted by stella marie (Member # 7216) on :
Thanks eric555,
I sent the letter!
Anyone can still do this now!!!
The campaign doen't end until Apr 13. Posted by treepatrol (Member # 4117) on :
Done
Posted by sutherngrl (Member # 16270) on :
UP
Posted by eric555 (Member # 18343) on :
Thank You to All !!!
This Now is Our Chance to Act Up.
The list keeps growing and now made the Front Cover of Health Care...
Best Regards, Eric
Posted by bettyg (Member # 6147) on :
copying the below here from mdjunction.org LYME board.... written by beauty, tawnee, moderator
beauty, did you go to ERIC'S post and then just INSERTED "YOUR" NEW LETTER? this way your reply counted towarded his LYME subject.
beauty, your new letter is outstanding, and as a severe NEURO LYME patient of 39 years, i'm going to break it up so we can read and comprehend it ok.
i'd also like to recommend to members here to click on ERIC'S LYME POST, and then insert beauty's wonderfully, thoughtfully written letter!!
Lyme Disease Pandemic
I am contacting you today because of an urgent and crucial matter: Lyme Disease.
It is pandemic and people are suffering due to poor recognition, uneducated & unwilling medical professionals, unreasonable insurance coverage, inadequate treatment protocols, and ultimately, neglect.
Government action is required, and that response needs to be in the forms of
providing the means for better awareness,
more reliable testing,
individualized and longer treatments,
a stronger understanding of the disease by society in general,
specific & required training of doctors and the entire medical community,
and we need more clinical studies and grant financing to further indispensable research.
These things are not an option, rather, they are imperative.
Lyme Disease is excrutiatingly painful and debilitating.
Left untreated, it can cause it's sufferers irreversable damage including blindess, deafness, paralysis, deformities, brain damage and even death.
Lyme is a relentless enemy demanding every ounce of it's host's energy, producing crippling languor and unrelenting pain & agony.
It is an incapacitating affliction that depletes the entire body of valuable nutrients causing vitamin & mineral deficiencies, significant decreases in essential enzymes, causes blood sugar instability and seriously bankrupts vital hormones that are paramount to our well being.
It drastically weakens our immune systems and robs us of the ability to repair & heal from wounds and other infections.
There are {Betty changed this ..over 300} conditions related to Lyme Disease.
Compelling evidence shows that Lyme is being found to be the underlying cause in an alarming number of medical cases such as:
Chronic Fatigue Syndrome, Fibromayalgia, Bell's Palsy, Parkinsons, Epilepsy, Lupus, Multiple Sclerosis, Scleroderma, Rheumatoid Arthritis, Hypothyroidism, Meningitis, Dementia, and Alzheimer's Disease, (Betty adding and majority of MENTAL illnesses), just to name a few.
Countless physicians have been abhorrently tormented, degraded & demoralized for their attempts in treating suffering Lyme Disease patients, as have scientists for their fundamental research because of a lack of bureaucratic acceptance that this disease not only exists, but is a phenomenal and devestating invader.
Lyme disease is not up for debate.
People are wasting away while the CDC & IDSA look the other way.
Because of the guidelines that are currently in place, millions of people, like myself, continue to suffer going undiagnosed, misdiagnosed or for being blatantly refused to even be seen by medical practitioners who swore a hippocratic oathe to do no harm yet their idleness does just that. Such is in my case.
I was both mocked and evaded despite the fact that I met CDC guidelines for a clinical diagnosis of Lyme, complete with evidence of a erythema migran.
I was told Lyme does not exist in my state, regardless of proof that it is, and not to come back if it had to do with Lyme Disease.
Lyme is an insidious disease. I urge you to view the documentary "Under Our Skin" by Open Eye Pictures, and then lend us your voice in the legislation.
Your citizens are crying out to their governent for help. What will your response be?
again, beauty; what a powerful story you wrote on behalf of yourself and our entire lyme community. well done my new friend! xox
BettyG, iowa activist
MOMMY MCMANN, sp, at the moment, i can't get to my hug from you, but the above link in TOP POST from pammie is what you need to sign this petition.
it's a LETTER PETITION, and i suggest using beauty's well-written letter when you click on ERIC'S LYME POST OK! that way your reply goes on eric's post so we have CUMULATIVE TOTAL RUNNING of every time someone sends their letter/vote.
again, it goes to YOUR STATE'S FEDERAL/STATE HOUSE REPS AND SENATORS!
i've been hearing back from my STATE senators/house reps saying to contact my DC sen/house reps. i just inform them it's an online petition, and i didn't make the selection of folks; they did.
NOW, PLEASE GO AND SEND YOUR LETTERS FOLKS. WE HAVE UNTIL APRIL 13, i believe! but 800 votes from THIS BOARD would be phenomenal !! GO MD JUNCTION MEMBERS!
BettyG, iowa activist
ps....tawnee just posted 256 SIGNATURES now on eric's initial post.
so beauty's letter is another one you could copy and add to ERIC'S petition he started there.
thanks gang! betty xox ***********
Posted by minoucat (Member # 5175) on :
4 days after sending in my (modified for my state) letter, I got 2 replies from state reps. So the letters are definitely being delivered at the state and teh national levels.
Posted by eric555 (Member # 18343) on :
Hi minoucat,
Good to see that its working, they are hearing us...
![[Smile]](smile.gif)
![[group hug]](graemlins/grouphug.gif)
![[kiss]](graemlins/kissing.gif)
![[Frown]](frown.gif)
![[cussing]](graemlins/cussing.gif)
![[Wink]](wink.gif)