The stories there are of people who usually took years to resolve their condition. Not exactly cheery.
S.
Posted by IMHisda (Member # 6998) on :
So far so good for me. I have neurolyme (12 yrs
before dx) and am down to pulsing 3 weeks off
one week on. Near the end of 3rd week, I have
some pain and then treatment week I am herxing
like mad but I never thought I'd see the day of
being off meds for three weeks! Have been
treating since 2002 or 2003 I think (memory still a little rusty).
Posted by bejoy (Member # 11129) on :
Bicillin with Metronidazole
VeneX bee venom ointment
Borrelia Series Remedy and LYM homeopathic from Deseret Biologicals with Lightworks treatment
In my case the alternatives helped the most.
Neuro symptms all gone. I can think now, and hold my hands steady.
Good luck with your treatment.
Posted by tickssuck (Member # 15388) on :
OK...I need some clarification here.
Neuro-Lyme...don't many of us have neurological issues with this disease? My symptoms are predominately neurological in nature, not so much cognitive, more central nervous system. Lots of tremors, overly-charged nervous system, with loads of other stuff.
Aren't there more treatment successes than the couple who've posted?
When bettyg said she hadn't read too many...this has really freaked me out. My progress is so terribly slow (10 months treating); but there is hope, isn't there? I'm scared. TS
Posted by sutherngrl (Member # 16270) on :
TS, I am with you. My LLMD says that Lyme "IS" neurological. The neuro symptoms are one of the ways used to determine that it is LD.
So hey, I guess I am confused here too.
Posted by bejoy (Member # 11129) on :
I am under the impression that neurological symptoms related to lyme can come from several problems:
brain lesions from borrelia neurotoxins from bacteria die-off neurotoxins from candida and fungal die-off bacterial and or viral lyme meningitis endocrine disorders resulting from lyme in the pituitary and or adrenals
All causes can be treated and many many have recovered entirely.
Those who get well don't tend to stick around for very long afterwards, so you don't hear as many success stories as you might like. Lots of folks get well, then they go on and live their lives.
Borrelia Burgdorferi (east coast) tends to have more of the arthritic symptoms. Borrelia Garinii (midwest variety) tends to have more of the neurological symptoms. I don't know why.
Posted by Sheryl777 (Member # 17804) on :
Bejoy, could you let me know the website for the Lightworks equipment?
The spirochetes seem to be under my scalp as it is always swollen. Maybe some bee venom would help but I've gone through applying Everclear as well as essential oils to those areas and nothing has worked so far.
I always have blood in my nasal mucus and in winter it is always harder for me to breathe.
S.
Posted by mustluvdogs (Member # 18273) on :
Hi. I also had problems with memory, concentration, reading, nerve pain etc. etc.,
Well I've had it for 7 years prior to correct dx.
I've been treating since, 10-23-08 and feel that my brain is coming back. I still will have an afternoon where I kind of lose concentration but for the most part, I feel like I'm recovering.
Good luck to you
Posted by jwf (Member # 6292) on :
Hi Sheryl,
There is hope and for us neuro-recovery was relatively short. Both my wife and I had extreme brain fog with very little short-term memory, difficulty with word choice and coherent thinking, and I had developed a stutter.
With herbs alone, in about 1 1/2 years our health, including mental, returned. I'm now in school studying acupunture and although not easy, the grades are fine.
You can search jwf for our story. We have been fine for over 3 years now even though my wife and I both were reinfected with ad- ditional tickbites. Our recovery with these has been even faster than with the original infection.
Blue Skies.......John
Posted by bejoy (Member # 11129) on :
I want to add to the neuro causes - environmental and food allergies
People are using it sucessfully with and without nosodes, but there is still much to learn.
I like John's list.
Bee Venom Venex ointment seems to kill spirochetes and open cysts. It also seems to help reduce inflammation.
I just want to note that longterm antibiotics are the only researched verified treatment for lyme. However, for those who are open for experimentation, many are getting very good results with some of these alternatives.
It depends on your philosophy, willingness to do your own study, availability of LLMD's or naturopaths, and insurance situation.
Best wishes.
Posted by ebbakarin (Member # 16362) on :
Neuro success story!
My problems were predominantly neurological related and included tingling in hands, hand and leg weakness, poor balance, vertigo, brain fog, stutter, word recall problems, distonia, shooting pains, and a really bad hand and arm tremor.
After 4 months of Flagyl, Zithromycin, and IV Rocephin nearly all of my symptoms, neuro and not, have resolved on most days. The only thing that remains consistently is my tremor which my LLMD says may never fully resolve (for which, comparatively, I'm not going to complain!). I'm not confident I would have gotten better without the heavy drugs; perhaps I would have but not at least as fast as I did with them.
In addition to some alternatives (already listed) I've also been drinking lots of water and taking epsom salt baths-- they were a bit hard on my in the beginning but over time I was able to tolerate more salt and warmer water and feel they help.
And of course lots of rest, healthful food, and a daily dose of exercise, even if walking around the yard for 10 minutes is all you can do. Three months ago that was enough for me and now I'm even riding my bike again. There is hope!
Take it day by day, and be positive! All the best, Ebba
Posted by Wimenin (Member # 15294) on :
It depends on your defintion of success story...
The original diagnosis I was given was meningitis and encephalitis, likely viral, although that turned out to be lyme menin/enceph.
Before being diagnosed, I was constantly going to ER with severe headaches, chest pains, digestive issues, cognitive/anxiety/depression issues, flu like symptoms.
Since starting treatment I no longer go off to the drs, Im back working full time, and only have 28 days flares (3-5 days) which I can tolerate a lot better. Its been a long haul as it took over 18 mos to diagnose, and Ive been on abx for 9 mos, but theres no doubt I have improved.
I think its unrealtistic for people to think that you can recover from lyme in a matter of weeks, unless you see the tick, and got trx within 24 hrs. The reality is that it may take months, years to recover, and you may be in a battle between lyme and yeast the longer it goes on.
Who knows, lyme could be a life changing, rest of your life type of illness. I guess the future will answer that question.
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