i was standing in half price books and all of a sudden i was extremely dizzy and started having blurry vision.
i really thought i was going to faint.
have you had this?
i didn't take ambien last night, slept on and off for hours and today the headache is not as bad. just about a 3-4 on a scale of 10....at last i'm not wanting to blow my head off....
Posted by HollyM (Member # 15386) on :
Yes, almost fainted in the shower and a department store. It's really scary I know. Take it easy if you can, sit or lye down as much as you can.
Posted by TerryK (Member # 8552) on :
Yes, for many years. It is part of the NMH (neurally mediated hypotension) that so many of us seem to have. The blurred vision goes along with it for me sometimes.
Also, consider that it could be related to blood sugar issues, especially the blurry vision.
Was it warm in the store when this symptom appeared? The shower can bring it on due to the heat. Taking cooler showers can help and staying out of warm temperatures can help.
I had reached a point where I couldn't be in normal temperatures. We had to keep our house so cool that people who came over would have to wear a coat. I had to schedule all of my appointments for the morning in the summer because it would wipe me out terribly to be in the summer weather.
Babesia treatment made a huge difference for me and now I can tolerate normal temperatures.
You may want to take your blood pressure while standing for awhile or when you feel dizzy. Mine used to be volatile so one minute it would be fine and the next it would be really low. Pulse also often goes up when bp goes down.
Hope you can get this under control ASAP. Be sure to mention it to your lyme doctor.
Terry
Posted by disturbedme (Member # 12346) on :
Yes, I have this. It's gotten much better after almost two years of treatment.
Before I was diagnosed and when I was actually NOT extremely ill, I did faint after church one morning. Luckily I was standing near my husband so he was able to catch me. That was around the start of the downnward spiral. After that I had a lot of dizziness, lightheadedness and wooziness, shortness of breath, and those types of issues until it got waaaaaaay out of hand and diagnosis and tx.
It's very disconcerting and scary, for sure.
Posted by Capa (Member # 18930) on :
I also have constant dizzy spells, frequent falls, and have fainted a few times. The Drs don't seem to "get it" so I am not being treated for it. They take notes about it but are seemingly stumped.
I do have consistently low blood pressure and a slow pulse.
Posted by TerryK (Member # 8552) on :
Capa, Consider asking for a tilt table test to see if NMH is your problem.
Terry
Posted by AZURE WISH (Member # 804) on :
Yes, I do get dizzy. I have to sit or lie down if i get full blown dizzy....
but i can move around with lightheadness all day.
For me, not drinking enough water makes it worse. (not drinking enough water also makes my constant headache worse)
Hope both symptoms get better soon.
Posted by Al (Member # 9420) on :
TerryK ,IS right on target !
Tilt table test.
Posted by MY3BOYS (Member # 17830) on :
i have this. is worse when change positions-- if i bend over to pick something up the room swims and i look like im surfing too
my LLMD and neuro know, told me to see cardio. went to cardio (he thought is was "cool" i had lyme and read up on it few yrs ago)..ekg showed sinus tach with heart rate 85-165 (with no activity mind u) cardio dismissed it and said..well no prob..take abt had lyme, rmsf is treated easily..no worries
soon as take month of abt you heart with be ok, just vasculitis of heart from RMSF. funny, i am only able to make Igm antibodies to the infectins i have but this did not matter. tried to educate a doc..no luck on this one.
maybe next one will be more open minded?? have learned to not change positions fast, kids have learned to pick up there own stuff of the floor and I sit down immed. when get dizzy when standing up. i know if i am up/doing to much this happens too
Posted by TerryK (Member # 8552) on :
Water (or staying hydrated) is one of the treatments recommended for NMH.
I also have problems changing position as do most people with NMH. From sitting to standing, and leaning over, blood pools in the legs and there is less blood to the heart.
This is a condition that is often associated with Chronic Fatigue syndrome which as we know, can be caused by lyme disease.
There is treatment so anyone with these symptoms should consider insisting on a proper evaluation. Treatment helps some people a LOT.
Terry
Posted by Capa (Member # 18930) on :
Thanks for all of the suggestions. At this point they told me I drink TOO much water! The Endo told me I'm drinking between 7-10 times the amount I need to be. Ugh! Lymies can't win!
Posted by randibear (Member # 11290) on :
a nurse once told me that you can measure dehydration this way. if you lift the skin on your hands and it stays up or takes a long time to go down, you're dehydrated.
don't know if it's true...
Posted by Geneal (Member # 10375) on :
Actually, you gently pinch the skin on your hands.
If it stays peaked (i.e. doesn't immediately spring back)
Then you may be dehydrated.
I am dizzy a lot now too.
I do okay standing still.
However, from sit to stand, while walking or changing head
Positions rather fast, I feel like the ground is coming up to my face.