Hey everyone, I just got home and I have to post this question as I truly just need some explanation as to what is happening to me.
I went into the Hospital yesterday because my heart was racing so bad and I couldn't get it down.
I was admitted just on this basis as it is a physical finding, but my other complaints were dismissed as anxiety and depression, but they are 100% real. So I have a few questions if someone can answer them as I know that I am not crazy.
1. My heart doubles in rate when I go from laying down to standing. When I stand up, I feel a rush of adrenaline shoot to my heart each and every time. It feels like anxiety, but it is definitely a rush sensation of adrenaline, like a rocket shooting up the middle of my chest.
I was watching the heart monitor and about 5 seconds after I feel this rush, I see my heart rate climbing and the rate went from 80 to 160 steadily over about 30 seconds and remained at 160 until I layed down. The doctor had no idea of why this was happening and was wondering if you could tell me how a spirochete or bacteria knows when I'm laying down or standing up, as if they had a brain. Or is this the cause of something else ?
2. I complained of weakness in my legs and when I was discharged I had to walk a block to my dads car and up three flights of stairs. I barely made it up the stairs and at the top of the stairs I noticed with each step I took, my legs were rubbing against each other and my feet were criss crossing in front of each other as if I had Cerebral Palsy. I felt like I could use those crutch canes that grasp the wrists for support. This must be exactly what people with CP experience.
I have had this weakness before but never pushed myself to walk such a distance, but today had no choice. Last time this happened, I had most of my strength back the next day. I pray that I get my strength back tomorrow. So, again, I ask, what is this all about ?
3. Lastly, I want to ask a question about my emotions. It seems like I fell like crying quite often, yet I really don't feel depressed at these times. So, I sometimes hold it in and sometime just let it out and say the heck with it. Again, and sorry for all of the questions, but what is this ? I am lost in Lyme and need some insight for my sanity.
Thank you as always, you people are so kind and helpful in putting things into perspective.
Shannon
Posted by VeryNew2Lyme (Member # 18958) on :
I just found out that #1 about can be known as POTS, which is also known at Dysautonomia Postural Orthostatic Tachycardia Syndrome. Is this part of Lyme or a separate condition in itslef I now have ? Just gets worse and worse.
Shannon
Posted by Leelee (Member # 19112) on :
I am sorry I have no explanations or help for you as I am still learning myself, but I did want to send you hugs and best wishes.
My thoughts are with you.
Posted by seibertneurolyme (Member # 6416) on :
POTS or othostatic hypertension can be caused by severe adrenal fatigue. It can be caused or worsened by Lyme or other tickborne diseases but this is a medical condition that needs to be treated separately.
The most common treatment is blood pressure meds.
Bea Seibert
Posted by beths (Member # 18864) on :
I had POTS really badly-It went away with treatment and adrenal support
Posted by feelfit (Member # 12770) on :
VNTL,
POTS is often a go along with Lyme. Several here have this condition. It should improve with treatment.
You symptoms are classic POTS.
I have tachycardia too and when it is over I am very weak....never got the leg crossing stuff though, just feel like passing out.
Hope that things improve quickly for you.
Feelfit
Posted by Geneal (Member # 10375) on :
I take florinef for POTs.
Dysautonomia issues are common here.
Hang in there.
I ended up in the ER with a racing heart and air hunger.
I was diagnosed with Generalized Anxiety Disorder.
That, unfortunately, is common here too.
Hope you feel better tomorrow.
I also have Neurally Mediated Hypotension.
Drinking water prior to getting up out of bed helps this.
Hugs,
Geneal
Posted by steve1906 (Member # 16206) on :
Hi Shannon,
I hope you start feeling better soon!!!
Just so you know your not crazy I think just about all of us have been to ER at some point.
I thought I was having a heart attack one night and went to the ER. The ER doctor couldn't figure Out what the hell was wrong with me so he said I want you to spend the night here at the hospital.
They did different rest every hour on the hour and never found anything wrong with me... In the morning about 4 doctors came in to talk to me and they all said nothing was wrong.
But, the last doc asked me what you are doing here! I told him the ER doctor told me to spend the night. He said there's nothing wrong with me (and I knew there was nothing wrong with me). I can't tell you what I said to him!!!
That was my first and last visit to the ER. I found out this is as common as it gets with lyme. I also had the weakness in my legs.
As far as the crying goes...thank god for little favors I don't have that!!!
Hang in there Shannon where all here for you.
Take care, Steve Posted by bettyg (Member # 6147) on :
many members here have POTS.
glad you are out, but what a bummer walking 3 blocks and up those stairs. have no knowledge on what you are going thru there.
are you on any anti-depressants? i'm on sertraline, can't remember other name; 1/2 pill a day ... sure helps on mood swings, etc.
but crying is good for the system too, so let it out! YOU'LL HAVE LESS WRINKLES!! see, there are a few good things in this mess.
![[Smile]](smile.gif)
![[Big Grin]](biggrin.gif)
![[lol]](graemlins/lol.gif)