posted
Hey everyone, I just got home and I have to post this question as I truly just need some explanation as to what is happening to me.
I went into the Hospital yesterday because my heart was racing so bad and I couldn't get it down.
I was admitted just on this basis as it is a physical finding, but my other complaints were dismissed as anxiety and depression, but they are 100% real. So I have a few questions if someone can answer them as I know that I am not crazy.
1. My heart doubles in rate when I go from laying down to standing. When I stand up, I feel a rush of adrenaline shoot to my heart each and every time. It feels like anxiety, but it is definitely a rush sensation of adrenaline, like a rocket shooting up the middle of my chest.
I was watching the heart monitor and about 5 seconds after I feel this rush, I see my heart rate climbing and the rate went from 80 to 160 steadily over about 30 seconds and remained at 160 until I layed down. The doctor had no idea of why this was happening and was wondering if you could tell me how a spirochete or bacteria knows when I'm laying down or standing up, as if they had a brain. Or is this the cause of something else ?
2. I complained of weakness in my legs and when I was discharged I had to walk a block to my dads car and up three flights of stairs. I barely made it up the stairs and at the top of the stairs I noticed with each step I took, my legs were rubbing against each other and my feet were criss crossing in front of each other as if I had Cerebral Palsy. I felt like I could use those crutch canes that grasp the wrists for support. This must be exactly what people with CP experience.
I have had this weakness before but never pushed myself to walk such a distance, but today had no choice. Last time this happened, I had most of my strength back the next day. I pray that I get my strength back tomorrow. So, again, I ask, what is this all about ?
3. Lastly, I want to ask a question about my emotions. It seems like I fell like crying quite often, yet I really don't feel depressed at these times. So, I sometimes hold it in and sometime just let it out and say the heck with it. Again, and sorry for all of the questions, but what is this ? I am lost in Lyme and need some insight for my sanity.
Thank you as always, you people are so kind and helpful in putting things into perspective.
Shannon
Posts: 32 | From DC | Registered: Jan 2009
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posted
I just found out that #1 about can be known as POTS, which is also known at Dysautonomia Postural Orthostatic Tachycardia Syndrome. Is this part of Lyme or a separate condition in itslef I now have ? Just gets worse and worse.
Shannon
Posts: 32 | From DC | Registered: Jan 2009
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
I am sorry I have no explanations or help for you as I am still learning myself, but I did want to send you hugs and best wishes.
My thoughts are with you.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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posted
POTS or othostatic hypertension can be caused by severe adrenal fatigue. It can be caused or worsened by Lyme or other tickborne diseases but this is a medical condition that needs to be treated separately.
The most common treatment is blood pressure meds.
Bea Seibert
Posts: 7306 | From Martinsville,VA,USA | Registered: Oct 2004
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beths
Frequent Contributor (1K+ posts)
Member # 18864
posted
I had POTS really badly-It went away with treatment and adrenal support
Posts: 1276 | From maryland | Registered: Jan 2009
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feelfit
Frequent Contributor (1K+ posts)
Member # 12770
posted
VNTL,
POTS is often a go along with Lyme. Several here have this condition. It should improve with treatment.
You symptoms are classic POTS.
I have tachycardia too and when it is over I am very weak....never got the leg crossing stuff though, just feel like passing out.
Hope that things improve quickly for you.
Feelfit
Posts: 3975 | From usa | Registered: Aug 2007
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I take florinef for POTs.
Dysautonomia issues are common here.
Hang in there.
I ended up in the ER with a racing heart and air hunger.
I was diagnosed with Generalized Anxiety Disorder.
That, unfortunately, is common here too.
Hope you feel better tomorrow.
I also have Neurally Mediated Hypotension.
Drinking water prior to getting up out of bed helps this.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
Hi Shannon,
I hope you start feeling better soon!!!
Just so you know your not crazy I think just about all of us have been to ER at some point.
I thought I was having a heart attack one night and went to the ER. The ER doctor couldn't figure Out what the hell was wrong with me so he said I want you to spend the night here at the hospital.
They did different rest every hour on the hour and never found anything wrong with me... In the morning about 4 doctors came in to talk to me and they all said nothing was wrong.
But, the last doc asked me what you are doing here! I told him the ER doctor told me to spend the night. He said there's nothing wrong with me (and I knew there was nothing wrong with me). I can't tell you what I said to him!!!
That was my first and last visit to the ER. I found out this is as common as it gets with lyme. I also had the weakness in my legs.
As far as the crying goes...thank god for little favors I don't have that!!!
Hang in there Shannon where all here for you.
Take care, Steve
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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bettyg
Unregistered
posted
many members here have POTS.
glad you are out, but what a bummer walking 3 blocks and up those stairs. have no knowledge on what you are going thru there.
are you on any anti-depressants? i'm on sertraline, can't remember other name; 1/2 pill a day ... sure helps on mood swings, etc.
but crying is good for the system too, so let it out! YOU'LL HAVE LESS WRINKLES!! see, there are a few good things in this mess.
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