Lyme and Tick-Borne Diseases Prevention, Education & Research Act of 2009
LDA, TFL, CALDA hire DC lobbing firm to assist patients' efforts
HISTORY
* At the end of 2008, the 110th Congress ended. In spite of our best efforts during the last Congress and redoubled efforts in the last three months of 2008 to pursue other avenues, all bills not acted upon died, including the Lyme bills. The sponsors agreed to reintroduce in the next Congress.
* 116 House Members from 30 states signed on to cosponsor the House bill during the last session.
CURRENT STATUS
* The 111th Congress convened in January 2009, and the new version of the Lyme bill, HR 1179, was introduced Feb. 25, 2009 by US Representative Christopher Smith of New Jersey [for himself, Mr. Tim Holden (PA), Mr. Bart Stupak (MI), and Mr. Frank Wolfe (VA)].
* To see the bill wording, go to the Lyme Disease Association's newly designed Legislative web site http://cwork.com/ and click on the link marked BILL TEXT
* The bill provides $100 million over 5 years for Lyme disease research, prevention, physician education and the formation of a federal Advisory Committee.
* Congressman Chris Smith carefully reviewed all the past bill language, including committee structure and function, for clarifications, updates, and added a few new additions to make the bill stronger. He took into consideration input from other congressmen and their constituents.
* To see a list of minor changes that were made to the 2009 bill, go to http://cwork.com/ and see BILL TEXT
* The Senate Bill is expected to be introduced shortly.
NEW STRATEGY
* In the fall of 2008, we worked with a lobbyist to develop strategies consisting of a multi-prong initiative which will engage congressmen in additional efforts to get recognition and monies for Lyme disease.
In 2009, the Lyme Disease Association, Time for Lyme, and the California Lyme Disease Association hired a lobbyist to lead the efforts for bill passage and for other avenues in DC.
The firm is the largest independent government affairs firm in Washington, DC.
TAKE ACTION NOW
* Go to LDA's LEGISLATION PAGE http://cwork.com/ for a listing of US House Members and contact information listed by state. A link for sample blurbs and letters is located at the top of the page.
* Please contact your own US House Member (not Senators).
* Tell him/her to sign onto the bill as a co-sponsor.
GOALS
* To add cosponsors and have a hearing on the bill, so it can move to the House floor for a vote.
Thanks to everyone's efforts last year, many more officials became educated about Lyme & tick-borne diseases.
We thank you for your actions and continuing support.
Together, we will get government to focus attention & resources on this disease.
[ 02-26-2009, 05:16 AM: Message edited by: Tincup ]
Posted by lakes592 (Member # 18905) on :
Will do thanks tincup!
Posted by njlymemom (Member # 15088) on :
thank you TC
Posted by Dekrator48 (Member # 18239) on :
Thanks Tincup...I just send my Congressman an email and it was a very easy process using that 2nd sample letter at the top of the page of the link.
Posted by Tincup (Member # 5829) on :
Hey D...
Thanks for jumping on the band wagon. It is a nice site that seems easy to follow.
Let us know if you hear back!
Hey Lakes and NJLM...
Good for you!!!
Hope we can get them signed up and beat the old record of 116 on the bill this session- (I think 116 was the count).
Be sure if you will to send it to all your friends and family in your email address book.
They don't have to have Lyme to support the bill.
Posted by Tincup (Member # 5829) on :
Up for the late night crew!
Posted by bettyg (Member # 6147) on :
tc, you mean ME/others!
yes, i too emailed IOWA'S HR TOM LATHAM, who CO-SPONSORED LAST YEAR. *************************
i had just used his link day before for sending him something else on medicare/SS/disability info!
Posted by sometimesdilly (Member # 9982) on :
go to bed, sweet betty! Posted by Robin123 (Member # 9197) on :
Bionic Betty doesn't go to bed...
Posted by firsttwin (Member # 5529) on :
Hi Tincup its me your buddy. I have been feeling so bad that I haven't been able to concentrate on anything but my pain.
I would love to help out but I can't myself.
Any suggestions?
Catchya later.
Me - firsttwin - Maria : (
Posted by bettyg (Member # 6147) on :
eric's post is at the top or was; having looked lately!
bionic betty DOES sleep when my body is completely worn out!!! i got off here shortly after posting that and then watched tv to 415 AM!!
then my cpap was calling me and i made 4.5 hrs. with that before freezing to death, and slept until 1030 to pee, and going to do a virus check and instead started answering all my private messages and replies to posts i made!
yesterday afternoon i was falling asleep here; napped straight for 3 hrs. and could have been longer but i needed to make supper for hubby and me! later ladies and gentlemen!
be sure to read posts on EMAILING TODAY OPRAH AND DR. OZ; SHE WILL DECIDE THIS WEEK on lyme show or not!
write, write, write! send the posts contents to all on your LYME GROUP LISTS/FRIENDS!! need many many posts!! thanks all Posted by Fordace (Member # 14874) on :
done, sent letter to NY Congressman John Hall......
Posted by Tincup (Member # 5829) on :
Zippity do dah! Let's keep 'em coming!
Posted by Tincup (Member # 5829) on :
Just in...
To see the Congressional Press Release concerning the introduction of the Lyme disease bill HR 1179, click here.
I heard someone couldn't find the actual bill wording (which is ok- it happens to all of us).
But rather than look for it or ask someone for help, they've accused others of keeping it hidden from everyone ... like there is a deep dark secret or conspiracy going on?
Sorry, but I had to laugh when I heard that one!
In case there are any other lost souls out there who want to read the bill (and it is encouraged)... the text can be found in a number of locations. Here are just a few.
Keep in mind the Senate bill isn't out yet (hasn't been introduced), so there won't be wording for it at any of the sites until the Senators actually introduce it.
In the action alert it said...
* To see the bill wording, go to the Lyme Disease Association's newly designed Legislative web site http://cwork.com/ and click on the link marked BILL TEXT
* To see the bill wording, go to the Lyme Disease Association's newly designed Legislative web site http://cwork.com/ and click on the link marked BILL TEXT
And to save folks from going nuts by spending their time trying to go back and forth to see any changes that were made during the sprucing up process... heaven forbid we ruin brains in the process of sharing news of a bill...
Now all I have to find at this point is my jammies, so I can go to bed.
Posted by Tincup (Member # 5829) on :
Feel free to send the press release above to your local papers and media outlets.
Posted by bettyg (Member # 6147) on :
up for weekend warriors here to read!
we need YOUR HELP; take 5-10 minutes and email congress about our lyme bill in the HOUSE!
big thanks! xox
Posted by Robin123 (Member # 9197) on :
HealthFreedomUSA calls it being Mouse Warriors...
Posted by hurtingramma (Member # 7770) on :
Done. 1 of 2 Senators supported the bill last time, and our only Rep also did. The one who didn't has been there so long, I don't think he even listens to his constituants any more.
Too bad, because he wields a lot of power, but not on Health issues.
Posted by hurtingramma (Member # 7770) on :
^^
Posted by bettyg (Member # 6147) on :
have you emailed your HOUSE REPS? DO IT NOW!
Posted by bettyg (Member # 6147) on :
time for us to come together like we have done the last 2.5 days for oprah and send emails to all OUR STATE'S HOUSE REPS IN DC !! thanks!
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