Lyme and Tick-Borne Diseases Prevention, Education & Research Act of 2009
LDA, TFL, CALDA hire DC lobbing firm to assist patients' efforts
HISTORY
* At the end of 2008, the 110th Congress ended. In spite of our best efforts during the last Congress and redoubled efforts in the last three months of 2008 to pursue other avenues, all bills not acted upon died, including the Lyme bills. The sponsors agreed to reintroduce in the next Congress.
* 116 House Members from 30 states signed on to cosponsor the House bill during the last session.
CURRENT STATUS
* The 111th Congress convened in January 2009, and the new version of the Lyme bill, HR 1179, was introduced Feb. 25, 2009 by US Representative Christopher Smith of New Jersey [for himself, Mr. Tim Holden (PA), Mr. Bart Stupak (MI), and Mr. Frank Wolfe (VA)].
* To see the bill wording, go to the Lyme Disease Association's newly designed Legislative web site http://cwork.com/ and click on the link marked BILL TEXT
* The bill provides $100 million over 5 years for Lyme disease research, prevention, physician education and the formation of a federal Advisory Committee.
* Congressman Chris Smith carefully reviewed all the past bill language, including committee structure and function, for clarifications, updates, and added a few new additions to make the bill stronger. He took into consideration input from other congressmen and their constituents.
* To see a list of minor changes that were made to the 2009 bill, go to http://cwork.com/ and see BILL TEXT
* The Senate Bill is expected to be introduced shortly.
NEW STRATEGY
* In the fall of 2008, we worked with a lobbyist to develop strategies consisting of a multi-prong initiative which will engage congressmen in additional efforts to get recognition and monies for Lyme disease.
In 2009, the Lyme Disease Association, Time for Lyme, and the California Lyme Disease Association hired a lobbyist to lead the efforts for bill passage and for other avenues in DC.
The firm is the largest independent government affairs firm in Washington, DC.
TAKE ACTION NOW
* Go to LDA's LEGISLATION PAGE http://cwork.com/ for a listing of US House Members and contact information listed by state. A link for sample blurbs and letters is located at the top of the page.
* Please contact your own US House Member (not Senators).
* Tell him/her to sign onto the bill as a co-sponsor.
GOALS
* To add cosponsors and have a hearing on the bill, so it can move to the House floor for a vote.
Thanks to everyone's efforts last year, many more officials became educated about Lyme & tick-borne diseases.
We thank you for your actions and continuing support.
Together, we will get government to focus attention & resources on this disease.
-------------------- This is NOT medical advice - and should NOT be used to replace your MD's advice. Info is only the opinion of those who publish the site.
The shortest way to do many things is to do only one thing at a time.
cb Posts: 669 | From somewherebetweentherocks | Registered: Mar 2008
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Dekrator48
Frequent Contributor (5K+ posts)
Member # 18239
posted
Thanks Tincup...I just send my Congressman an email and it was a very easy process using that 2nd sample letter at the top of the page of the link.
-------------------- The fibromyalgia I've had for 32 years was an undiagnosed Lyme symptom.
"For I know the plans I have for you", declares the Lord, "plans to prosper you and not to harm you, plans to give you hope and a future". -Jeremiah 29:11 Posts: 6076 | From Pennsylvania, USA | Registered: Nov 2008
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey D...
Thanks for jumping on the band wagon. It is a nice site that seems easy to follow.
Let us know if you hear back!
Hey Lakes and NJLM...
Good for you!!!
Hope we can get them signed up and beat the old record of 116 on the bill this session- (I think 116 was the count).
Be sure if you will to send it to all your friends and family in your email address book.
posted
Hi Tincup its me your buddy. I have been feeling so bad that I haven't been able to concentrate on anything but my pain.
I would love to help out but I can't myself.
Any suggestions?
Catchya later.
Me - firsttwin - Maria : (
Posts: 164 | From Rising Sun, MD, USA | Registered: Apr 2004
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bettyg
Unregistered
posted
eric's post is at the top or was; having looked lately!
bionic betty DOES sleep when my body is completely worn out!!! i got off here shortly after posting that and then watched tv to 415 AM!!
then my cpap was calling me and i made 4.5 hrs. with that before freezing to death, and slept until 1030 to pee, and going to do a virus check and instead started answering all my private messages and replies to posts i made!
yesterday afternoon i was falling asleep here; napped straight for 3 hrs. and could have been longer but i needed to make supper for hubby and me! later ladies and gentlemen!
be sure to read posts on EMAILING TODAY OPRAH AND DR. OZ; SHE WILL DECIDE THIS WEEK on lyme show or not!
write, write, write! send the posts contents to all on your LYME GROUP LISTS/FRIENDS!! need many many posts!! thanks all
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
I heard someone couldn't find the actual bill wording (which is ok- it happens to all of us).
But rather than look for it or ask someone for help, they've accused others of keeping it hidden from everyone ... like there is a deep dark secret or conspiracy going on?
Sorry, but I had to laugh when I heard that one!
In case there are any other lost souls out there who want to read the bill (and it is encouraged)... the text can be found in a number of locations. Here are just a few.
Keep in mind the Senate bill isn't out yet (hasn't been introduced), so there won't be wording for it at any of the sites until the Senators actually introduce it.
In the action alert it said...
* To see the bill wording, go to the Lyme Disease Association's newly designed Legislative web site http://cwork.com/ and click on the link marked BILL TEXT
* To see the bill wording, go to the Lyme Disease Association's newly designed Legislative web site http://cwork.com/ and click on the link marked BILL TEXT
And to save folks from going nuts by spending their time trying to go back and forth to see any changes that were made during the sprucing up process... heaven forbid we ruin brains in the process of sharing news of a bill...
posted
Done. 1 of 2 Senators supported the bill last time, and our only Rep also did. The one who didn't has been there so long, I don't think he even listens to his constituants any more.
Too bad, because he wields a lot of power, but not on Health issues.
-------------------- "Few of us can do great things, but all of us can do small things with great love". Mother Theresa
posted
have you emailed your HOUSE REPS? DO IT NOW!
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bettyg
Unregistered
posted
time for us to come together like we have done the last 2.5 days for oprah and send emails to all OUR STATE'S HOUSE REPS IN DC !! thanks!
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