LymeNet Flash: MS/Lyme we wonder why things are so wrong.

This is topic MS/Lyme we wonder why things are so wrong. in forum Medical Questions at LymeNet Flash.

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Posted by Sojourner (Member # 9424) on :

Here is a website touted as "great" for MS patients.

When one scrolls to the "Reporting" section, in other words what to suggest as a diagnosis, there is an interesting groups of comments. Quote below:

If a patient is clinically suspected of having MS and the MR-images support that diagnosis, than you should not consider the possibility of Lyme's disease and neuro-SLE in the differential diagnosis, because they have such a low prevalence.
There must be other ways to impress your collegues .
These diagnoses are only worth mentioning if there are clinical findings that support these diagnoses.

Can some sane person explain this to me......what the @#$%! is that all about? We don't diagnose (or even suggest) neuroborreliosis because it's RARE). Do they not see their own circular knowledge??????

Here is the link:http://www.radiologyassistant.nl/en/4556dea65db62

Good site for info or not..........to me, all the info is suspect given this little gem.

Posted by disturbedme (Member # 12346) on :

It's a bunch of crap.... the author couldn't even say lyme disease correctly...... re: Lyme's disease. ARRGGGGG.

Posted by AliG (Member # 9734) on :

Perhaps the author & editors could use some updating on the frequency of Lyme Disease & inaccuracy of Lyme tests?

contact: www.radiologyassistant.nl/en/420a2769e1b5e

Maybe the Dutch "don't have" Lyme's[sic] Disease? (sarcasm)

Posted by Kerryblue (Member # 4077) on :

Hi,MS is known according to CDC sister of.
They are now researching it being linked & co-infections or Link to Lyme we know there are more tan On list right now.
Who knows for sure if erichliosis,babs etc. or another neurotransmitter problem. Just saying unless get fMRI, tells lot more.
Hard to find who does & $$$$.

Posted by Keebler (Member # 12673) on :

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It's obvious that the authors at that site did absolutely no research about Lyme Disease. Otherwise, they would have at least know how to SPELL it !!

I wonder who is backing the author of that? A MS drug company?

Why would someone not even study it a bit before writing something that could have such an impact on so many ?

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Posted by AmyPW8 (Member # 11504) on :

Kerry,

Could you clarify what you were posting? I took it as the CDC was researching a Lyme & Co. connection to MS. Is that right? If so could you p.m. the details or source of that.

I was originally dxd with MS and would very much like to read that. [Smile]

Thanks