posted
Here is a website touted as "great" for MS patients.
When one scrolls to the "Reporting" section, in other words what to suggest as a diagnosis, there is an interesting groups of comments. Quote below:
If a patient is clinically suspected of having MS and the MR-images support that diagnosis, than you should not consider the possibility of Lyme's disease and neuro-SLE in the differential diagnosis, because they have such a low prevalence. There must be other ways to impress your collegues . These diagnoses are only worth mentioning if there are clinical findings that support these diagnoses.
Can some sane person explain this to me......what the @#$%! is that all about? We don't diagnose (or even suggest) neuroborreliosis because it's RARE). Do they not see their own circular knowledge??????
Here is the link:http://www.radiologyassistant.nl/en/4556dea65db62
Good site for info or not..........to me, all the info is suspect given this little gem.
Posts: 554 | From Naples, Italy | Registered: Jun 2006
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disturbedme
Frequent Contributor (1K+ posts)
Member # 12346
posted
It's a bunch of crap.... the author couldn't even say lyme disease correctly...... re: Lyme's disease. ARRGGGGG.
-------------------- One can never consent to creep when one feels an impulse to soar. ~ Helen Keller
My Lyme Story Posts: 2965 | From Land of Confusion (bitten in KS, moved to PA, now living in MD) | Registered: Jun 2007
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AliG
Frequent Contributor (1K+ posts)
Member # 9734
posted
Perhaps the author & editors could use some updating on the frequency of Lyme Disease & inaccuracy of Lyme tests?
Maybe the Dutch "don't have" Lyme's[sic] Disease? (sarcasm)
-------------------- Note: I'm NOT a medical professional. The information I share is from my own personal research and experience. Please do not construe anything I share as medical advice, which should only be obtained from a licensed medical practitioner. Posts: 4881 | From Middlesex County, NJ | Registered: Jul 2006
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posted
Hi,MS is known according to CDC sister of. They are now researching it being linked & co-infections or Link to Lyme we know there are more tan On list right now. Who knows for sure if erichliosis,babs etc. or another neurotransmitter problem. Just saying unless get fMRI, tells lot more. Hard to find who does & $$$$.
Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
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Keebler
Honored Contributor (25K+ posts)
Member # 12673
posted
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It's obvious that the authors at that site did absolutely no research about Lyme Disease. Otherwise, they would have at least know how to SPELL it !!
I wonder who is backing the author of that? A MS drug company?
Why would someone not even study it a bit before writing something that could have such an impact on so many ?
Could you clarify what you were posting? I took it as the CDC was researching a Lyme & Co. connection to MS. Is that right? If so could you p.m. the details or source of that.
I was originally dxd with MS and would very much like to read that.
Thanks
-------------------- Amy
Diagnosed April 29, 2007. Posts: 136 | From Joplin, MO | Registered: Apr 2007
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