I was wondering if anybody out there has had twitching as there
main symptom. Calves driving me nuts, fingers to.
Posted by Tick Tock (Member # 15948) on :
Yes, It comes and goes. Very distracting when it's my legs. Difficult to work with the computer when it's my thumb and fingers. Hard to read the newspaper because it moves the paper.
Posted by John S (Member # 19756) on :
Not my main symptom, but for some reason about a quarter of the twitches are in the calves.
Posted by jkmom (Member # 14004) on :
Yes, it is one of my main symptoms.
Mine is much better when I take zith, biaxin, or bactrim.
Posted by DaveNJ (Member # 17362) on :
Yes...but was one of the first things to clear up upon TX....
Posted by LisaS (Member # 10581) on :
Yes it is everywhere, at one time or another, now i got it in my thigh and one that keeps twitching or spasming under my right ribs, that is driving me crazy!
Posted by Bugg (Member # 8095) on :
This started for me AFTER all of the abx treatment.....starting to clear-up with heavy treatment with magnesium and Vitamin D and calcium...
Posted by bwillis (Member # 18811) on :
I never had any twitching until I started abx treatment. Many of the symptoms that people report I never had at all until I started abx in Jan. Its like abx gave me full blown Lyme where I only had a moderate case before.
Posted by SForsgren (Member # 7686) on :
I've had it for 13 years and it is one of few remaining symptoms. My dr. suggests Bartonella is a major cause of twitching, some suggest magnesium deficiency, etc.
Posted by kim812 (Member # 17644) on :
Muscle twitching(left calf only) was my first symptom. I also occasionally have it in my right wrist. My calf twitching is almost non-stop. This is one of my remaining orginal symptoms from October 2004.
Posted by Just Julie (Member # 1119) on :
Next month, May, my muscles will have twitched for 9 YEARS. It was my first (that I could connect the dot to) symptom. It scared me onto the internet, to search. When I typed in "muscle twitching" up popped MS, ALS and lyme.
I found a LLMD, and he could never give me a definitive answer as to why I had the muscle twitching. He never gave me an answer as to when (or if) they would go away with treatment. He really didn't address this as an issue, in the 3-4 yrs of abx treatment. I was on abx for 3-4 years continuously, all orals, no IV's.
I tried various types of magnesium, with NO resolution of the twitching. I did notice that AFTER I stopped taking all abx, about 3 months later, the muscle twitching became intermittent, not continous as it had been for the 3-4 yrs of treatment. I was elated. I thought they were going away.
But, as I underwent various stressors, I found the twitching to ramp up, and become noticable, then subside as my stress level went back down. I correlated it to an adrenaline rush--almost side by side, I would have a stress, feel myself become anxious, with adrenaline kicking in, and then, boom! muscles would start randoming twitching, all over the body. I hated it, I still hate it, but I've come to accept it.
Both my sons, after years of abx treatment also, repor tthat they too have muscle twitching. They did not have any at the start of their abx treatment, which went on for years, continously, too.
So sorry, it's most upseting.
Posted by bv (Member # 9578) on :
Muscle twitches in my calve muscles were my first symptoms. Have had them for 5 years now---every day. Very annoying & sometimes painful.
Also have burning skin on my back, stomach, face---pretty much everywhere. The muscle twitches & burning skin seem to occur @ same time.
Only other constant symptom is floaters in my eyes.
Doc says its peripheal neuropathy caused by LD---stress (physical or emotional) seems to make it worse.
Posted by Dawnee (Member # 15089) on :
It was one of my first major symptoms (besides the heart stuff) that finally brought me to my Lyme diagnosis. Mine was all over body twitching.. everywhere. My oldest daughter's main symptoms was also muscle twitching. After a year of abx my twitching in minimal now. I still have it, but NOTHING like it was... which was almost non-stop.
Posted by Buster (Member # 19472) on :
Hot epsom salt baths for 20-30min every few nights before bed have tremendously helped with muscle twitching for me. Within a week, mostly gone.
Posted by Need Lots of Help (Member # 18603) on :
My husbands upper lip twitches all the time. Just when we thought it couldn't get worse, we started treatment.........and it got WORSE!!
He said his face hurts at the end of the day. I will tell him to soak his face!!!
Shalome
Posted by paulieinct (Member # 17514) on :
I had muscle twitches in my legs and cramping so severe that I had to sleep in a sitting position for weeks. Turns out I had severe central spinal stenosis and had decompression surgery.
I believe most of my arthritis, incl the spinal stenosis, was caused or aggravated by Lyme infecting all the ligaments of my spine.
Post-surgery, I was much better, then some twitching returned. Then I got my Lyme diagnosis. 9 1/2 mos. on abx and most twitching is gone, including an annoying twitch on my lower lip.
Posted by twin_city (Member # 21016) on :
I've just been diagnosed. Mine started with twitching and bad cramps in the calves. That's what made me go to the doctor.
Posted by randibear (Member # 11290) on :
yes, in my feet and legs. drives me nuts.
Posted by ott70 (Member # 18237) on :
Seeing as the heart is a muscle, do you think it's reasonable that muscle twitching could be related to some of the flutters that us cardiac-symptom people feel? It doesn't happen often, but I swear sometimes my flutter feels like a twitch in my chest.
I get other muscle twitching also, but a fairly mild symptom for me. It's better now than it was a year ago.
![[Smile]](smile.gif)