posted
Yes, It comes and goes. Very distracting when it's my legs. Difficult to work with the computer when it's my thumb and fingers. Hard to read the newspaper because it moves the paper.
Posts: 79 | From Rhode Island | Registered: Jun 2008
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posted
Not my main symptom, but for some reason about a quarter of the twitches are in the calves.
Posts: 743 | From New York | Registered: Apr 2009
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posted
Yes...but was one of the first things to clear up upon TX....
-------------------- On my journey to wellness - One day at a time. Posts: 989 | From NJ | Registered: Sep 2008
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LisaS
Frequent Contributor (1K+ posts)
Member # 10581
posted
Yes it is everywhere, at one time or another, now i got it in my thigh and one that keeps twitching or spasming under my right ribs, that is driving me crazy!
Bugg
Frequent Contributor (1K+ posts)
Member # 8095
posted
This started for me AFTER all of the abx treatment.....starting to clear-up with heavy treatment with magnesium and Vitamin D and calcium...
Posts: 1155 | From Southeast | Registered: Oct 2005
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posted
I never had any twitching until I started abx treatment. Many of the symptoms that people report I never had at all until I started abx in Jan. Its like abx gave me full blown Lyme where I only had a moderate case before.
Posts: 199 | From utah | Registered: Jan 2009
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SForsgren
Frequent Contributor (1K+ posts)
Member # 7686
posted
I've had it for 13 years and it is one of few remaining symptoms. My dr. suggests Bartonella is a major cause of twitching, some suggest magnesium deficiency, etc.
-------------------- Be well, Scott Posts: 4617 | From San Jose, CA | Registered: Jul 2005
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posted
Muscle twitching(left calf only) was my first symptom. I also occasionally have it in my right wrist. My calf twitching is almost non-stop. This is one of my remaining orginal symptoms from October 2004.
Posts: 343 | From North Carolina | Registered: Oct 2008
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Just Julie
Frequent Contributor (1K+ posts)
Member # 1119
posted
Next month, May, my muscles will have twitched for 9 YEARS. It was my first (that I could connect the dot to) symptom. It scared me onto the internet, to search. When I typed in "muscle twitching" up popped MS, ALS and lyme.
I found a LLMD, and he could never give me a definitive answer as to why I had the muscle twitching. He never gave me an answer as to when (or if) they would go away with treatment. He really didn't address this as an issue, in the 3-4 yrs of abx treatment. I was on abx for 3-4 years continuously, all orals, no IV's.
I tried various types of magnesium, with NO resolution of the twitching. I did notice that AFTER I stopped taking all abx, about 3 months later, the muscle twitching became intermittent, not continous as it had been for the 3-4 yrs of treatment. I was elated. I thought they were going away.
But, as I underwent various stressors, I found the twitching to ramp up, and become noticable, then subside as my stress level went back down. I correlated it to an adrenaline rush--almost side by side, I would have a stress, feel myself become anxious, with adrenaline kicking in, and then, boom! muscles would start randoming twitching, all over the body. I hated it, I still hate it, but I've come to accept it.
Both my sons, after years of abx treatment also, repor tthat they too have muscle twitching. They did not have any at the start of their abx treatment, which went on for years, continously, too.
So sorry, it's most upseting.
-------------------- Julie Posts: 1027 | From Northern CA | Registered: May 2001
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posted
Muscle twitches in my calve muscles were my first symptoms. Have had them for 5 years now---every day. Very annoying & sometimes painful.
Also have burning skin on my back, stomach, face---pretty much everywhere. The muscle twitches & burning skin seem to occur @ same time.
Only other constant symptom is floaters in my eyes.
Doc says its peripheal neuropathy caused by LD---stress (physical or emotional) seems to make it worse.
Posts: 213 | From ohio | Registered: Jul 2006
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Dawnee
Unregistered
posted
It was one of my first major symptoms (besides the heart stuff) that finally brought me to my Lyme diagnosis. Mine was all over body twitching.. everywhere. My oldest daughter's main symptoms was also muscle twitching. After a year of abx my twitching in minimal now. I still have it, but NOTHING like it was... which was almost non-stop.
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posted
Hot epsom salt baths for 20-30min every few nights before bed have tremendously helped with muscle twitching for me. Within a week, mostly gone.
Posts: 458 | From Miss | Registered: Mar 2009
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I had muscle twitches in my legs and cramping so severe that I had to sleep in a sitting position for weeks. Turns out I had severe central spinal stenosis and had decompression surgery.
I believe most of my arthritis, incl the spinal stenosis, was caused or aggravated by Lyme infecting all the ligaments of my spine.
Post-surgery, I was much better, then some twitching returned. Then I got my Lyme diagnosis. 9 1/2 mos. on abx and most twitching is gone, including an annoying twitch on my lower lip.
-------------------- Sick since at least age 6, now 67. Decades of misdiagnosis. Numerous arthritic, neuro, psych, vision, cardiac symptoms. Been treating for 7 years, incl 8 mos on IV. Bart was missed so now treating that. Posts: 765 | From nw ct | Registered: Sep 2008
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posted
Seeing as the heart is a muscle, do you think it's reasonable that muscle twitching could be related to some of the flutters that us cardiac-symptom people feel? It doesn't happen often, but I swear sometimes my flutter feels like a twitch in my chest.
I get other muscle twitching also, but a fairly mild symptom for me. It's better now than it was a year ago.
Posts: 194 | From Colorado | Registered: Nov 2008
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