Does anyone have any malarone experiences and how well is it working?
Posted by Kreynolds (Member # 15117) on :
I have to bump this up because I switched from Mepron to Malarone and would like to know as well...
Posted by Geneal (Member # 10375) on :
I've been on both mepron and malarone.
Malarone first for 4 months each time.
Then mepron for 9 months.
Now malarone again.
I herx on both.
I think overall I do better on malarone.
Two pills twice a day.
Hugs,
Geneal
Posted by seekhelp (Member # 15067) on :
I took Malarone for 3 months. First month 4 pills for 3 days. Month two I took 2 pills daily. Month three 1 pill daily.
Nothing notable on it. No major side effects. It was no miracle, but my LLMD had weak dosing. Never took ART either. I believe it was very inadequate treatment overall for Babesia.
Posted by bears1985 (Member # 17271) on :
Has anyone had any success trying Artesunate?
Posted by VB (Member # 16824) on :
I took 2 malarone pills 2x a day for about 5-6 months. I didn't notice any side effects or major herxing from it.
I didn't really think it was doing much for me, but now that I've been off of it for a while I think it may have been and I just didn't realize it.
I do know that while I was on it, my CD57 improved consistently (from upper 20's to 60's). And now, it has declined again.
Posted by Abxnomore (Member # 18936) on :
I don't believe Artesunate is approved in the U.S. and I think it has to be given with another anti- malarial drug, such as mepron.
I have never tried it.
Posted by buckfever (Member # 9876) on :
I was on malarone for a total of 9 months. worked up to 6 pills a day.I never really herxed on it and I wondered if it was working , but it really did do me alot of good as my babs symtoms have been dramatically reduced .
I was also taking bactrum and at the end flagyl. Wish I could have stayed on all for longer but ran out of money. Malorone is expensive ,$650 a month with insurance paying 1/2.
Posted by btmb03 (Member # 18394) on :
Artensunate - it's one of the treatments Dr. Paul Cheney, CFS specialist outlined in his recent talk and I think he mentioned it helped pts.
I don't know where patients got it from and neither have I started babs tx so I'm afraid I cannot comment on Malarone.
Posted by Marcie (Member # 10070) on :
I took 1 malarone a day, which is a very low dose. I was on it for almost a year. At first
I had major herxes, but after time they got better. My llmd never increase my dose, so I am
sure I still have babesia, because 1 day is not enough to get rid of it. I do feel that overall it really helped me.
Posted by CherylSue (Member # 13077) on :
Any more postitive malarone experiences?
I've been on one a day for 2 weeks and increased to 2 per day a few days ago. Herxing big time? or is it Lyme acting up?