posted
Does anyone have any malarone experiences and how well is it working?
Posts: 136 | From Arizona | Registered: Sep 2008
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kreynolds
Frequent Contributor (1K+ posts)
Member # 15117
posted
I have to bump this up because I switched from Mepron to Malarone and would like to know as well...
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+ Biofilm blood test 12/2010 Posts: 1185 | From New York | Registered: Apr 2008
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Geneal
Frequent Contributor (5K+ posts)
Member # 10375
posted
I've been on both mepron and malarone.
Malarone first for 4 months each time.
Then mepron for 9 months.
Now malarone again.
I herx on both.
I think overall I do better on malarone.
Two pills twice a day.
Hugs,
Geneal
Posts: 6250 | From Louisiana | Registered: Oct 2006
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seekhelp
Frequent Contributor (5K+ posts)
Member # 15067
posted
I took Malarone for 3 months. First month 4 pills for 3 days. Month two I took 2 pills daily. Month three 1 pill daily.
Nothing notable on it. No major side effects. It was no miracle, but my LLMD had weak dosing. Never took ART either. I believe it was very inadequate treatment overall for Babesia.
Posts: 7545 | From The 5th Dimension - The Twilight Zone | Registered: Mar 2008
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posted
I took 2 malarone pills 2x a day for about 5-6 months. I didn't notice any side effects or major herxing from it.
I didn't really think it was doing much for me, but now that I've been off of it for a while I think it may have been and I just didn't realize it.
I do know that while I was on it, my CD57 improved consistently (from upper 20's to 60's). And now, it has declined again.
Posts: 453 | From TX | Registered: Aug 2008
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Abxnomore
Frequent Contributor (5K+ posts)
Member # 18936
posted
I don't believe Artesunate is approved in the U.S. and I think it has to be given with another anti- malarial drug, such as mepron.
I have never tried it.
Posts: 5191 | From Lyme Zone | Registered: Jan 2009
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posted
I was on malarone for a total of 9 months. worked up to 6 pills a day.I never really herxed on it and I wondered if it was working , but it really did do me alot of good as my babs symtoms have been dramatically reduced .
I was also taking bactrum and at the end flagyl. Wish I could have stayed on all for longer but ran out of money. Malorone is expensive ,$650 a month with insurance paying 1/2.
Posts: 97 | From West Chester ,Pa. | Registered: Aug 2006
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btmb03
Unregistered
posted
Artensunate - it's one of the treatments Dr. Paul Cheney, CFS specialist outlined in his recent talk and I think he mentioned it helped pts.
I don't know where patients got it from and neither have I started babs tx so I'm afraid I cannot comment on Malarone.
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posted
I took 1 malarone a day, which is a very low dose. I was on it for almost a year. At first
I had major herxes, but after time they got better. My llmd never increase my dose, so I am
sure I still have babesia, because 1 day is not enough to get rid of it. I do feel that overall it really helped me.
Posts: 323 | From Michigan | Registered: Sep 2006
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CherylSue
Frequent Contributor (1K+ posts)
Member # 13077
posted
Any more postitive malarone experiences?
I've been on one a day for 2 weeks and increased to 2 per day a few days ago. Herxing big time? or is it Lyme acting up?
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