I'm just curious about this. Some of my parents' friends are being diagnosed with parkinson's.
I wonder to myself if they should be tested and evaluated for lyme just to rule it out.
I remember that part in UOS when Dr. McDonald mentioned his finding lyme in the majority of alzheimer's brains he looked at.
I wonder also about MS and Lupus...how many of those diagnoses do you think are really lyme! Now whenever I hear those diagnoses, I think to myself that they may really have lyme.
I have not researched this and I'm sure it's not that simple, but would be interested to hear if your LLMD's have commented on these issues.
With the staggering amount of ignorance about lyme/coinfections, I'm coming to the conclusion that it's more and more plausible that lyme could be the root cause of many of these mysterious diseases that "have no cure".
Autism is another. I know that in many cases with lyme treatment, it disappears.
tickbattler
Posted by Ocean (Member # 3496) on :
Hey Tickbattler,
I'm not sure, but I wanted to add...wasn't it Alzheimer brains he was looking at who ended up testing pos for Lyme (7 out of 10)??
There is a lady in my mom's town right now who has 'atypical Parkinsons' according to her doc. She is 50 years old. She lays in bed all day, I need to call her and talk to her, just not sure how to approach her with the whole Lyme info so I don't come off sounding like a psycho!
I do the same with MS, Lupus, CFS, FM, ect...I think, "I wonder if they have Bb."
take care, Ocean
Posted by tickbattler (Member # 14873) on :
Thanks Ocean - yes, you are right...I just edited to correct it! tickbattler
Posted by bettyg (Member # 6147) on :
have no idea on percents; don't believe anyone would actually.
i know myself; my husband has UNDIAGNOSED lyme with advanced parkinson's/rolling hand tremors secondary to lyme!
a neurologist recently told me in a public setting ... he dismissed the whole thing and said my husband has a parkinson's like; NOT parkinson's and his 2 colleagues dx my hubby!'
read the below lists thought please!
2003 list of " 300 other" Possible Missed Diagnosis for Lyme! must read
ocean, just call this woman and see if it's convenient to stop by and just present it as is; don't we all wish someone would have taken the bull by its horns and did that for us? I SURE DO! xox
Posted by Lymetoo (Member # 743) on :
I believe my father had Lyme induced Parkinson's. Now, I also believe he really HAD Parkinson's .. not a misdiagnosis.
Lyme should be a really big suspect if someone is dxd with Parkinson's before the age of 70.
Posted by c3mom (Member # 16412) on :
Tickbattler, here's another story to add to this theory.
My freinds mom was dx'd with Parkinsons when she was only 54 yrs old. Before this she had a history of bad migraines.
She had two children. One had to have a heart monitor put on them when they were in middle school. The child also had HORRIBLE rage.
The other child had tachycharida sx.
Then they thought the father might have alzheimers, but I don't think that ever became final.
It didn't hit me till after my Dx that the mom was probably mis Dx'd. Too bad.
I have thought many times about telling the family, but would it do any good at this point? Do you have to take steroids for Parkinsons?
Oh, when I last talked to my freind, I asked how the mom was doing. My freind said the Parkinsons had not advanced as far as it could've yet.
Should I say something?
C
Posted by hobokinite (Member # 6132) on :
I know that Michael J Fox had Lyme disease a few years back before Parkinsons thus his may be just a Lyme manifestation or Lyme allowing a genteic time bomb to happen.
No harm getting tested.
Posted by HollyS (Member # 20550) on :
One way to approach it is to bring over UOS and watch it with them or give them a copy.
Remember the one Dr. on the film who was dx with Parkinson's?
He had Lyme and his Parkinson's symptoms dissipated once he was treated for Lyme.
Posted by losferwrds (Member # 19741) on :
Malvern. PA in is a pretty lyme endemic area, certainly wouldn't hurt to test them.
I still think the biggest hurdle though is decent tests, antibody tests for something that shuts off you immune system are nearly worthless.
How can they even associate symptoms with infections / co-infections, you never now what you have or what you killed.
Its terrible. Specially when you see final manifestations like people ending up with what appears to be MS and Parkinsons. Or kids that are considered Autistic or ADHD. Its a crime against humanity.
Posted by emla999/Lyme (Member # 12606) on :
Tickbattler,
Fungal mycotoxins have also been implicated as a possible cause of Parkinson's Disease. Actually, there is a specific group of mycotoxins known as the "tremorgenic mycotoxins". Tremorgenic mycotoxins induce muscle tremors in humans and animals.
So, your parents' friends might want to consider having their mycotoxin levels checked by RealTime Laboratories. Exposure to fungal mycotoxins is easier than one might think.
Can low level exposure to the mold mycotoxin, Ochratoxin-A, cause Parkinson's Disease?
"OTA may contribute to the pathogenesis of neurodegenerative diseases (e.g. Alzheimer's and Parkinson's disease) in which apoptotic processes are centrally involved."
"the hippocampus, a primary site of neurodegeneration in Alzheimer's disease, turned out to exhibit relatively high OTA levels with concurrently pronounced OTA neurotoxicity."
"Their widespread occurrence and the persistence of OTA in the food chain may contribute to a significant OTA exposure to humans.
In fact OTA has been frequently found in the human blood. The kidney is the main target tissue of OTA toxicity. In addition to its nephrotoxic effects, hepato-, terato- and immunotoxic activities of OTA have also been reported.
OTA has been classified as a putative human carcinogen by the International Agency for Research on Cancer (IARC ).
Furthermore, recent findings indicate that OTA may, to some extent, also affect the neuronal system."
Posted by saved10 (Member # 18413) on :
I was told at 50 that I had PD. However I was having symptoms that did't match up to PD. So, I started doing my owe research and came upon Lyme.
I was seeing a Nuro and insisted that I get tested for Lyme, I went through IGX I didn't have enough to be positve per CDC. I had more + on the IGG Test. Positive on the IGX Elisa, I don't think it's called that.
Went back to my Nuro, he said I had been infected with a tick, but did't have Lyme. I never went back and now seeing a LLMD.
I'll be in treatment for years. I also have a friend of mine was told she also has PD, turns out she has Lyme as well. Her LLMD told her it would takt 5 years to get better.
So, I'm starting to wonder what the heck is going on??? Makes you wonder though.
Posted by seekhelp (Member # 15067) on :
Tough to say honestly. I wonder how many people Dxed with Lyme here actually have Lyme! Once I get past that, I'll move on to the other issue lol.
Posted by GiGi (Member # 259) on :
As per Dr. K's publications, and having been his patient for a number of years, he finds Lyme in literally all neurlogical chronic diagnoses - i.e. he finds Lyme in Parkinsons, MS, ALS, Autism. He finds all other neurotoxin deposits, multiple pathogens, parasites in all of these patients. The only approach which he has found to work is addressing all of the problems to clear the terrain, or the place where toxins are deposited and where certain microorganisms can survive and flourish, i.e. change the habitat.
Here is a link for a study on percentages of other diseases where Borrelia is present.
Lida Mattman, PhD.,a brilliant researcher, had her lab closed down. I think it had something to do with her aggressive work on Lyme. It was many yrs. ago, and I have very little memory left in my Lyme brain, sorry.
Don't be misled by the title of the article, just keep reading. It has some research on this topic from other researchers as well, and is not the original article I once had, but I can't find that one.
I think I remember some of the numbers she got in the original article I lost track of. These is the percentages of patients in whom she found borrelia:
I don't remember seeing any numbers on SLE. I think she only studied the five diseases above, which she believed to be the most common ones that involve Borrelia.
Remember that presence does not necessarily prove causation. The borrelia could be an opportunist.
klutzo
Posted by Dekrator48 (Member # 18239) on :
I think there are probably alot of people who are misdiagnosed with all those other illnesses that have "no known cause".
I have an idea for a tv show called "Misdiagnosed".
We would have enough stories to keep the show going for years.
Posted by bettyg (Member # 6147) on :
dekrator, boy is that an accurate statement...MISDIAGNOSED could go on for DECADES!!
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