Hi, Has anyone else had a Purpura or Petechiae rash which is associated with Lyme?
I have several symptoms of lyme but my blood test was negative.
Now i'm also getting contant tingling in my hands & feet which seems to be getting worse by the day.
I'm in the UK & the doctor has never seen a case of lyme, he thinks it's very unlikely even though I had a bad bite on my ankle which has caused me trouble ever since.
I now have this rash on my arms. He tested my platelet count and that was 'normal'. He agreed to do another lyme test but I'm still waiting for the results.
Posted by steve1906 (Member # 16206) on :
When all my symptoms first started in January 2008 I also had rashes behind my knees, behind my elbows and all over my stomach.
They sent me to four doctors and did 2 skin biopsies. No one had any idea what these rashes where and why I had them!!!
Both biopsies came back (Drug Related) the funny thing about that is I wasn't taking any drugs what so ever!!! The doctors couldn't tell me what drug related meant.
I had these rashes for about 5-6 months...
So as far as I'm concerned I'll say YES to your question.
Good luck, Roy
Posted by Leelee (Member # 19112) on :
I would suspect Lyme or Bartonella. I have similar skin issues and my LLMD feels it is definitely caused by Bartonella.
Over the years I have been to several dermatologists looking for answers, but it wasn't until I saw an LLMD that I was properly diagnosed.
Since you had a known tick bite and have other tale-tell symptoms, I might suggest you be tested by Igenex.
Not sure who your doctor used, but Igenex provides the most accurate results.
Posted by fighter (Member # 20170) on :
now that i think of it, i had a bad case of petechiae around the same time it is suspected i first got lyme and co.
i was inpatient at the hospital at the time and was biopsied on my arms, legs, torso (that's where i had it) and nothing concrete came back.
so i don't know if it's coincidence or if it means anything. but, to answer your question, yes, i did have skin probs that correlate strongly with when i first started being symptomatic of lyme.
Posted by karenl (Member # 17753) on :
yes I have the rash on arms and legs and I have the tingling and even worse vibrations and other neuro symptoms. At the moment I am not sure if it is lyme, please read my post : contraindication for enzymes.
Posted by Hoosiers51 (Member # 15759) on :
One LLMD that I have spoken with believes petechiae is babesia-related. Babesia does have to do with the demise of red blood cells, so maybe that is why. It can pop up in patients treating babesia.
Posted by Hoosiers51 (Member # 15759) on :
I just read in a medical article that babesia can produce petechiae.
Go about 2/3 down, to where under "Clinical" it says "Physcial", and it is one of the bullet points under "Physical."
Posted by middlesizedpanda (Member # 20676) on :
Thanks everyone, I'm not going totally mad then. The NHS UK test is not a good one. I've contacted Igenex to see how I can get a test done - at least if I can get a diagnosis I might get some treatment, My legs are tingling/vibrating bad today.
Posted by Leelee (Member # 19112) on :
Hoosiers, Thanks for posting. That was a good article.
Posted by Tiramisu (Member # 15082) on :
I've gotten petechiae rashes for years. I'm clinically dx'd with Lyme.
I refer to them as "hickey rashes", because they are often on my neck or upper chest, and look like hickeys.
Sometimes they appear without itching, sometimes they are itchy at first.
Posted by Keebler (Member # 12673) on :
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Is this as a reaction to the sun or to certain light? If so, it might be a particular type of porphyria. PM me if you want links.
Although, since you had a bad (tick?) bite on your ankle that caused you lots of trouble, you should be evaluated by a good LLMD.
Are the tests you are waiting for being done by a lab that tests all the bands and is it a Western Blot test?
Other tick-borne infections should also be considered.
Good luck.
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Posted by middlesizedpanda (Member # 20676) on :
I've had the second test back and it was negative again. Here in the UK they wont do a western blot unless the first test is positive. I spoke today to a private LLMD but he wont take on any new cases for 2-3 months.
He suggested I rang back then if I'm still having problems. Finding a LLMD in Uk is very difficult.
My white cell count is low (1.7) not sure if its relevant to lyme or not.
My local doctor has agreed to try me on 100mg Doxycilin for 2 weeks to see if theres an improvement.
I'm going to try to get a igenex test plus co-infections. I'm so sure its lyme - its just trying to prove it.
Posted by mjbucuk (Member # 843) on :