posted
Hi, Has anyone else had a Purpura or Petechiae rash which is associated with Lyme?
I have several symptoms of lyme but my blood test was negative.
Now i'm also getting contant tingling in my hands & feet which seems to be getting worse by the day.
I'm in the UK & the doctor has never seen a case of lyme, he thinks it's very unlikely even though I had a bad bite on my ankle which has caused me trouble ever since.
I now have this rash on my arms. He tested my platelet count and that was 'normal'. He agreed to do another lyme test but I'm still waiting for the results.
Posts: 69 | From UK | Registered: Jun 2009
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steve1906
Frequent Contributor (1K+ posts)
Member # 16206
posted
When all my symptoms first started in January 2008 I also had rashes behind my knees, behind my elbows and all over my stomach.
They sent me to four doctors and did 2 skin biopsies. No one had any idea what these rashes where and why I had them!!!
Both biopsies came back (Drug Related) the funny thing about that is I wasn't taking any drugs what so ever!!! The doctors couldn't tell me what drug related meant.
I had these rashes for about 5-6 months...
So as far as I'm concerned I'll say YES to your question.
Good luck, Roy
-------------------- Everything I say is just my opinion! Posts: 3529 | From Massachusetts Boston Area | Registered: Jul 2008
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Leelee
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Member # 19112
posted
I would suspect Lyme or Bartonella. I have similar skin issues and my LLMD feels it is definitely caused by Bartonella.
Over the years I have been to several dermatologists looking for answers, but it wasn't until I saw an LLMD that I was properly diagnosed.
Since you had a known tick bite and have other tale-tell symptoms, I might suggest you be tested by Igenex.
Not sure who your doctor used, but Igenex provides the most accurate results.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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posted
now that i think of it, i had a bad case of petechiae around the same time it is suspected i first got lyme and co.
i was inpatient at the hospital at the time and was biopsied on my arms, legs, torso (that's where i had it) and nothing concrete came back.
so i don't know if it's coincidence or if it means anything. but, to answer your question, yes, i did have skin probs that correlate strongly with when i first started being symptomatic of lyme.
Posts: 34 | From Airmont NY | Registered: May 2009
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karenl
Frequent Contributor (1K+ posts)
Member # 17753
posted
yes I have the rash on arms and legs and I have the tingling and even worse vibrations and other neuro symptoms. At the moment I am not sure if it is lyme, please read my post : contraindication for enzymes.
Posts: 1834 | From US | Registered: Oct 2008
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Hoosiers51
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Member # 15759
posted
One LLMD that I have spoken with believes petechiae is babesia-related. Babesia does have to do with the demise of red blood cells, so maybe that is why. It can pop up in patients treating babesia.
Posts: 4590 | From Midwest | Registered: Jun 2008
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Hoosiers51
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Member # 15759
posted
I just read in a medical article that babesia can produce petechiae.
Go about 2/3 down, to where under "Clinical" it says "Physcial", and it is one of the bullet points under "Physical."
Posts: 4590 | From Midwest | Registered: Jun 2008
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posted
Thanks everyone, I'm not going totally mad then. The NHS UK test is not a good one. I've contacted Igenex to see how I can get a test done - at least if I can get a diagnosis I might get some treatment, My legs are tingling/vibrating bad today.
Posts: 69 | From UK | Registered: Jun 2009
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Leelee
Frequent Contributor (1K+ posts)
Member # 19112
posted
Hoosiers, Thanks for posting. That was a good article.
-------------------- The ultimate measure of a man is not where he stands in moments of comfort and convenience, but where he stands at times of challenge and controversy. Martin Luther King,Jr Posts: 1573 | From Maryland | Registered: Feb 2009
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posted
I've had the second test back and it was negative again. Here in the UK they wont do a western blot unless the first test is positive. I spoke today to a private LLMD but he wont take on any new cases for 2-3 months.
He suggested I rang back then if I'm still having problems. Finding a LLMD in Uk is very difficult.
My white cell count is low (1.7) not sure if its relevant to lyme or not.
My local doctor has agreed to try me on 100mg Doxycilin for 2 weeks to see if theres an improvement.
I'm going to try to get a igenex test plus co-infections. I'm so sure its lyme - its just trying to prove it.
Posts: 69 | From UK | Registered: Jun 2009
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