This is topic strange ??? in forum Medical Questions at LymeNet Flash.


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Posted by jsturner (Member # 20874) on :
 
Compared to most of the people I read about, I

find it strange how I found out I had Lyme. I

started having bad chest pains and went to the

ER. First my EKG was abnormal but was released. A

couple days later went to another ER with chest

pains that was worse. I was diagnosed with

Pleurisy. With a follow-up with my family doctor

blood test were done with Lyme test and came

back with a positive ELISA and western blot

(labcorp test). Now I had no other symptoms

associated with Lyme until I started antibiotics

(doxycycline and now have joint pain, nausea,

fatigue). Now my question...does this sound right

to you? It just doesn't sound like the typical

way most people find out they have Lyme (if there

is a typical way). I hope this isn't silly for

me to be asking this. Thanks all.
 
Posted by Pinelady (Member # 18524) on :
 
Hello jsturner. Yes it is very common to have the

symptoms you describe but uncommon to get a

positive test. Which is why most of us are here in

the first place. Unfortunately mine came back with

a report of one band migrating in the IgG region

unable to identify right before I experienced lung

involvement diagnosed as histoplasmosis, and for

which I was sick for over a year more. Including

chest pains and abdominal pains unable to

diagnose. Docs

always say you will get worse before you get

better. But the good thing is at least you know

and can treat. You can learn a lot here as I did.
 
Posted by Toppers (Member # 20083) on :
 
jsturner I had the same thing for 6 months straight with no other symptoms except severe shortness of breath. It was really strange and totally unexplainable. Abnormal ekg, that's about it, lots of ER visits. Then mine exploded into lots of neuro symptoms almost overnight and a week later the bottom of my feet hurt so bad I could barely walk on them--I was also turning very pale. I knew I had blood disease(s) then.

Why I had only those symptoms for that long is a total mystery just like everything else with lyme + co.
 
Posted by gemofnj (Member # 15551) on :
 
js,

welcome to the board and glad you found us. no you are NOT silly and your story is very unique!

usually its the other way around, such as joint pain, fatigue and then maybe heart issues. some are plagued with mainly neuro symptoms.

i also had the chest pains, shortness or breath, and abnormal EKG that showed possible heart block and was sent to a cardiologist immediately.

of course they found nothing abnormal about my stress eccho.

a few months later, i was tested for lyme at my suggestion, and it was ... you guessed it.. lyme of course.

just in case you are new to the board i'm going to attach this document which is a guideline by the top lyme doc in the us.

http://www.lymediseaseresource.com/BurrGuide2008.pdf

you may want to print for future use, or you may already have a copy of it.

i'm so hoping you are already looking for a lyme literate doctor in your area that follows the ILADS protocol.

also, there are other bugs that travel with lyme that are called coinfections. you may want to be tested for those once you get situated with an LLMD.

you can also visit 'seeking a doctor' at the front of this board.

good luck and keep us posted on your progress.
 
Posted by Leelee (Member # 19112) on :
 
I truly believe nothing is "normal" when it comes to Lyme and co-infections. The path of destruction within the body is unique to each person.

The unusual thing is that you actually had a positive test result. Most of us get false negatives until we test with Igenex

Best wishes in your healing.
 


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